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Posted 3/5/2012 4:58 AM (GMT 0)
Iam new to the forum, But not new to hepc 1a

I think it is wonderful about a new treatment for hepc,

I was diagnosed in 2001 and did Treatament 4 times  I did the old combo 3 shots a day and riboviran, relapsed and 2002 did peg intron,2003,Then in 2004  took a year off then did Pegasys 2005 and then infergen 2006 finally cleared in 2007 My last treatment , I have been clear since 2007, It sounds like they are coming out with some really good new treatments, It would be nice if this disease would be wiped out, ((hugs)) to all of you who suffer with it and have family with it, I know it is hard sometimes, I know that my life line was a online support groups and support them very much,I have made some long time friends that saw me through the worst and still liked me through it all, May you all be blessed

 Always Renee

Posted 3/5/2012 5:16 PM (GMT 0)
Hello, Renee, and welcome to the Hepatitis forum of Healing Well. That is wonderful news that you finally cleared the virus! You have shown great courage in pursuing treatment and undergoing so many rounds of it before you were finally cleared. This couldn't have been easy with your fibromyalgia.

Researchers are now working on a vaccine for hep C, such as the one for hep B. There is also a movement afoot to test high-risk patients as part of a routine physical. In this way, if HCV is detected, treatment can be started before symptoms arise or are minimal.

I wish you continued success.

Hugs,
Connie
Posted 3/5/2012 5:17 PM (GMT 0)
hi Renee!

That was a very nice post.  I'm sure no one has chimed in since there wasn't a question involved.  Thank you for adding a very positive spin today!  Congrats on being clear!

Posted 3/6/2012 3:45 AM (GMT 0)

Thank you all

I think that there should be a test when getting a physical period  a ounce of prevention goes along way

I went in not knowing I had hepc  to get that Lamicil for toe funguss,They did blood work and my  live function test was good,

I started it and got really sick, They told me I needed to get used to it so I kept using it , I took myself off, After that I was so run down and exausted like I have never been so I went again and told my doctor she needed to figure out what was wrong with me or put me in a loony benLOL, I was serious though  She said I must be depressed and put me on serzone, Which was taken from the market because it was linked to severe  liver damge.

 Well after that I was cooked it made me even sicker,So I went back again she ran blood work,And all my tests came back high Iron levels and  everything so she sent me to a hemotolgist.

He tested me and was getting ready to treat me for hemochromatosis, But he said something just wasnt right and sent me to a gastroenterologist, And he tested me right away for Hepc,

 And then the journey began.

 I would like to say times did change over those years.

 The first biop I had was awful, It still is trauma in my brain LOLThen the second one was a breeze.

 I went to Baylor and had a team of hep C doctors, The first tx I did he didnt believe in treating side affect at all, I ran fevers of up to a 103, He told me I could take up to 4 asprin a day no antidepressents, Nothing. I was a true lab rat LOL well thats how I felt and come to find out I was his 2nd hep patient he treated hmmm,I dont know if anyone remembers the old combo

and its affects.

 I had just started a bussiness and was to sick and lost it in the first year

But each time I did tx the Doctors were better, And look even better treatments comming out YAHOO,

 Im not sure I had   fibromyalgia before I started tx, I do know that doing it so many times in a short spand, Not really having a break, I havent been well since. So begans a new journey, Seeing the affects now I might have done that different and spread them out, I dont think the brain fog has ever left.

 My last round I was told because they could see the affects on my health and my mind I would not be able to do another tretament, It all worked out

I test every year ,  My doctor told me I didnt need to But my mind says Yes I do The one thing I wish is that I wish I would test as never having it LOL

Thank you again Supporting those that walk this walk!

always Renee

Posted 3/6/2012 4:48 AM (GMT 0)
You don't have to test for hep C every year. However, it's a good idea to have your liver enzymes tested on a regular basis...maybe every six months.

It probably would have been best to give yourself a break between treatments, for your body to recover. I had a liver transplant a little over 4 mos. ago and the hep C fatigue is much worse than before transplant. However, they are waiting until I recover more from the surgery to start treatment.

I hope you will always stay clear of HCV. I agree that every person past a certain age should routinely be tested for HCV at an annual exam. However, what I read (thanks, David!) stated that they are trying to introduce the test to those who are at risk, for the time being. I think when they see how many people show positive, they will then consider giving it to the general population. There are lots of treatments in trial now, including one that doesn't include interferon.

Hugs,
Connie
Posted 3/6/2012 9:49 PM (GMT 0)
I am going to battle for the fourth time. I contracted gen 1a in my mid 20's. I am turning 50 this year and I have so much to live for. This regimen consists of interferon, riboviran and bicoprevair. Maybe my saving grace. I started on 3/2/2012. The side effects have not been bad. I will keep posting.
Posted 3/6/2012 10:38 PM (GMT 0)
Hi, Carhart, and welcome to the forum! I would like to ask you to please start a new thread (click on New Topic instead of Reply) and let us know of your situation. The stats on the new treatment are great, so hopefully this time will work for you!
When I do treatment, it will be the new triple drug one, as well.

Hugs,
Connie
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