acute,/chronic hep.b,cirrhosis,crohns,blood clotting,etc.

Hello, I would like to introduce myself to this area, as I have 18 yrs. of Medical Records that would span this world at least twice. I have been on so many different medications, seen countless specialist, I could start my own Hospital Yellow Pages book, due to the numerous stays, spanning from New England,Florida,and back to New England again. My first stay in a hospital was in Sept.1994, for Colitis, (they thought) that stay lasted until after Easter in April. I was in and out of Hospitals for Months,and Months,I was spending so much time in the hospitals, that I would see a CNA/LNA start on their first day training,and years later end up being my RN! Fast forward to Christmas 1999, I was alone and very sick, I thought I had some terrible Flu. My eyes were a beautiful Neon Yellow, my skin was a dull yellow, my pee looked like brewed tea, my BM's looked like gray clay,I could not lift my arms to brush my hair, even if I wanted to it was not happening. I was house sitting for a friend that was not coming back for two more days, so I laid down for a nap, and awoke to my friend throwing me into his car. I must have been a site to see? In the ER I overheard the Dr. telling my friend;"Take her home and let me know when she passes." To everyones surprise, especially the Dr. I did Not Die.,But was on Lamivudine 4xs a day and basically a coma for 7 months. Recovery time was 18 months.

2006-08 I was severely ill again, with all kinds of Dr.s not knowing what to do with me 105 fevers that they could not control, even with the Ice packings and fans,every antibiotic,I had so many pumps, Picc., Ivs,everywhere, I looked like a friggen Christmas tree. I had to be shipped to Tampa General, to see what their Diagnoses would be??? Problem child they said to me. After hundreds of Transfusions,Ct.scans,colonoscopies,endoscopies,etc..... they finally had it," Crohns Disease!"

Some time in between stays in the hospitals after the Crohns news, My intestines Blew-out, I started hemorrhaging Blood Clots out my Vah-JJ the size of grapefruits!! Into Emerg. Surgery,( where I was told later that they had lost me a couple of times ) I do not know where I went those two times? I woke up in ISCU. incubated, and stoned out of my mind..!!!! When I was coherent, the Surgeon told me I was the Proud Mother of a New,"ILIEOSTOMY" Familiar Poloptosis is the new Diagnosis??
2012 They just revised my Illy and took more intestines. I also have Factor 5lydon,(blood clotting disorder) a de-generative bone disease(to long to remember) Asthma,depression,anxiety,and ptsd.
Now you kind of know,"KOVERTKATIE". One more thing, the friend that helped me earlier in the story, we became Partners, he took care of me the whole time after 2000, while I was in the Hospital getting my new Illy, he Passed away from, Small Cell Lung Carcinoma. He was 57, and his Name was;"ALAN" God Bless All Of Us, and Those Who Took/Take Care Of Us In NEED....!!!!!!XOXO

Thank you hep93, I was diagnosed Dec. 27, 1999 with accute/chronic hep B. I have eradicated the disease, but am still a carrier. I have been very lucky thus far.
1)I was not expected to survive that date.
2)I already had a very serious intestinal issues dating from 1994
3)My GI, at the time(1999) gave me a life expectancy of 2-5 yrs. at the most (he was wrong) Thank God
4)I have No Immune system, so my GI said I should live in a bubble to avoid any Viruses.
5)The cirrhosis covers a vast amount of my liver, leaving what is left to carry a heavy load of meds. That I need as a result of the Crohns, and Depression issues. It seems to be a catch 22, you are dam#&, if you do, and dam#&, if you don't...What to do?

Thank you for your sympathy,>> "ALAN" was the best person in my eyes! He did everything possible to make sure I would survive,physically, and mentally, and he never complained once."ALAN" was, and still is my Angel!!!!

If I only had a brain.??? I really can't remember what the reason behind why my immune system is so compromised? I have ah...NO CLUE? I do know that whenever I go out my Infectious Disease Dr.s recommended me to wear a mask, not from me spreading anything, but to keep,"ME" from catching anything air born.

U see, when I got sick with the Hep.b I lost quite a few yrs. of my memory, and I have short-term memory issues. Confusion, cannot stay focused on anything,attention span of a,"NAT."

Last November I had my Ilieostomy revised, and I had a huge abscess that needed to be addressed as well. When I woke up from the surgery I had a HUGE HOLE 4inchs. internally deep in my abdomen, seems the abscess was a fighter. They tried some crazy named antibiotic infusions for 4 wks. along with;"Cipro,Bactrum,Flagyl,and Amoxacylian. I was wound packing 2x's a day for 11 months. During that period they tried excising and debrying my monster wound, silver packing, silver nitrate therapy, nothing was working. Back to surgery this August to open me up again, cleaned me up, stapled me up and hoped for the best? I stayed in patient for 6 days in a huge amount of pain, more-so than usual. The Surgeons said, they drove around in me for awhile.

So, what was your question? I'm sorry, I go all over the place, this is the first time I have talked to Other people about my history, with the exception of My Baby Brother, Sister, and Dr.s. One side of my brain is trying to tell the story, while the other side is thinking about;"Sunshine, Lollipops,and Rainbows and Happy Thoughts, and.......La,la,la I'm sure I will get better at this sometime, I just have so many years of long term care,misdiagnoses,I feel like an Experiment for the Dr.s to study.

I am happy to have stumbled upon this site, it feels so comfortable to me, Like a good Ole pair of Jammie's.....Thank you for being so patient and kind to me, it really feels good to talk to someone else who gets it,and has been down those similar Paths as I have..

Sometime we can talk about what happened to my brother and I, and not the other 4 siblings? We will do that over coffee, if that is ok? How many people do you know that have,INFARCTED a Bladder? I know, Nobody that I have ever heard of? Except for my Brother. We really could write a book together, he would do the writing, of course.! Thank you again hep93, look forward to doing this every day, it gives me something to do, and I feel better..xoxoxoxooxoxox

Those nasty Abscesses!!! I never heard of the medicinal honey treatments? I will try to make a note of that, then I will try to find the note? It has Nothing to do with AGE!!!!! Laugh,Laugh...

Wow..!! You have to be a strong person to go through all of those surgeries, and infections that never go away? How do you deal with it, if you don't mind me asking? Do you have a Life Partner?

I thought Mac is your life partner...