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Question: Non alcoholic cirrhosis

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Posted 6/20/2013 7:27 PM (GMT 0)
Hi:
I have noticed a couple of things as of late, and since you have all been so helpful in the past, I thought I would ask you.

1. My attitude has changed dramatically and find myself being negative and judge mental toward others. I get annoyed very easily and feel like I am becoming a real witch. Is this normal?

2. My stomach is always so bloated, to the point of discomfort, sometimes. Is it fluid? It growls something awful when the lactulose is wearing off and I am extremely gassy. Should I take more lactulose at that point?

3. Sometimes I have trouble going to the bathroom even after the lactulose. When I take it again about an hour later, I still don't go (diarrhea).

4. I was told that my liver is not bad enough for me to qualify for a transplant. How much worse does it have to get? If it gets worse, don't my other organs worsen, as well?

I have an appt with a second hepatologist on July 5th for a 2nd opinion, and I can't wait to see what she has to say compared to the first doctor.

Thank you for your time and all my questions.

Bebo
Posted 6/20/2013 7:39 PM (GMT 0)
It really sounds to me that you are not taking enough Lactulose. Try increasing the dosage or the number of times you take it per day...or both. As you know, Lactulose works through multiple loose bowel movements. If this is not happening, you need more. You also may need to take Xifaxan with it.

Regarding transplant, your MELD score would have to be high enough to be eligible for placement on a transplant list. MELD is calculated using Bili, INR, and creatinine lab values--a combination of liver and kidney function. If you have liver cancer (HCC), your score would be pushed to 22.

Do let us know what the 2nd hep doc has to say.

Hugs,
Connie
Posted 6/20/2013 8:03 PM (GMT 0)
Thanks, again! I am taking Xifaxan, so I will increase the Lactulose.

I do remember the doctor telling me I was at 12, but I was in shock and was not absorbing a lot of the info that he was giving me. I didn't know it has to be at 22 or higher.

You are the best!!!!

Bebo
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