Hi there Newbie but Oldie

Hello from the UK, just to introduce myself briefly - married 60 year old with 2 sons one granddaughter, diagnosed 1989, two attempts at treatment, two relapses, transplant in 2009. Moderate fibrosis at last biopsy.

Think I MAY be up for trial with Sofusbuvir and Ledipasvir (where do they get these rubbish names??) will hear maybe Monday. Scared and so excited, and happy to have found you guys with so much information, I have been hunting all over the virtual world to get some facts.

Love to all out there on the journey, my consultant says there is no longer light at the end of the tunnel, we are now actually in the tunnel and coming through! x

Hi Michael,

Hoping your trial comes through. all we are reading says this combo, with and without the old drugs, shows great promise.

My partner, Mike, is also hoping to hear his trial comes through for the same drugs this week. did you see the post from EzAl? He has done well with the S&L combo!

Mike is 2.5 years post TP and hoping to slay the dragon once and for all.

Keep us posted about whether you get in, and how it is going. Plenty here are anxious for news...good, bad and inbetween.

Best,
Mama Lama

michael, that is wonderful news!
what is their criteria for trial selections?
all fingers and toes crossed 4 u.
keep up the good work,
zoarie

thank you for your warm welcomes! And I am a girl, it is Michaela! Yes, Hep C is chomping away on my new liver too, but as I have geno 3 it has also kindly layered it with a load of fat too. Hmph.

By the way, did anyone else on Prograf put on weight, I gained 25 lbs and cannot shift it whatever I do.

Best of luck Connie, maybe we will be going through it together! let's hope xx

yes, I was taking triple that, but they have reduced me to the same dose as you, but doesn't seem to have helped, but maybe it takes time. do you take Azathioprine too? I am wondering how much I can reasonably cut down on the meds before any possible tx. what geno are you?