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Doctors say I'm fine

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Posted 4/10/2014 1:27 PM (GMT 0)
Blood tests have been more or less normal. I did have raised direct bili (0.5) and ALT 53 AST 39 in october.

Since then they've dropped to normal each test, though I'm clearly mildly jaundiced in eyes and on skin, esp hands. Last bili test my total was 0.3 (a couple weeks ago) while jaundiced!!! :)

INR 1.2 in jan

rest pretty much ok.

I have pale floating poop occasionally after fatty meals, floating regularly, at times well formed, at others not, regularly have undigested food.

doctors say i'm fine... 2 GIs and 1 liver specialist say I'm fine.

I ate a LOT of almonds the other day and my poop was greyish yellow and floating. still yellow today.

pressure over rib area URQ.

How can I be fine? One says gilberts, another says something like gilberts with IBS, another says stop worrying. How can I be fine? If i eat bad stuff then I get pinching sensation 2 inches down and right of sternum at ribcge line, later a pressure feeling on ribs, tho feels more like its in or on ribs than under....

am I really fine and Im just not processing well?! i had pale stool in 2012 while taking ibuprofen while doing massive physical exercise. also a kid in school used to call me simpson... which may suggest that i had mild jaundice back then too? that would make sense but pale floating stool?

I know I've banged on about this here recenly a lot but I feel lost and my family are sick of it.

I'm going on vacation this sunday. I'm going to steer clear of any fat and meditate, swim in the ocean, yoga short runs, relaxation, lots of rest, lots of sleep and see how that affects me. Then Im going to see another GI with a tougher attitude I guess
Posted 4/10/2014 1:30 PM (GMT 0)
Ultrasound was clear but in November before more symtpoms started. Fibrotest gave me 0.25. 0.23 actitest also in november
Posted 4/10/2014 2:23 PM (GMT 0)
Sadly, I have no answer. You seem to have tried many medical professionals to get an answer. And since you were jaundiced in school, this is something long term. Likely genetic, as you mentioned. My first thought was gallbladder disease. But they would have caught that. Perhaps you can try a hepatologist at a hospital with a liver transplant center.

Your idea for an R&R vacation sounds like good medicine. Wish we were joining you ; ) Enjoy! Big Hugs
Posted 4/10/2014 2:29 PM (GMT 0)
not sure if was actually jaundiced, but just remember one kid would say "simpson, hey" like mr burns for a period of a about a year.

I'm just hoping that it is something akin to gilberts

as puberty was hitting around that time in school.

when i had white stool in 2012 I was hiking the appalachian trail in the white mountains and I was hardcore hardcore hiking bout 10 hours a day doing 15 to 19 miles a day.

I was majorly majorly stressed as was having breathing problems prior to symptoms emerging this time and since then I have been depressed and at times desperate.

fingers crossed anyway. If this holiday does me the world of good I think that could be the answer

anyway, i'm going to see a different doc when i get back from the caribbean (woo! :) ) to get new ultrasounds and fibromax i guess then im just going to have to draw a line under it and get on with life with whatever routine is necessary.
Posted 4/10/2014 3:50 PM (GMT 0)
I recommmend aghhh put all information on one topic in one thread...no need to start a new topic every time you post. Thanks, ML
Posted 4/28/2014 6:57 PM (GMT 0)
Aarg...Wanted to bring this to the top as our Moderator suggested you keep posting in one thread so we can keep up with your ongoing concern. I did read your posts back to 2013. Doctors have ruled out anything serious with your symptoms, so this is good news. It seems fatty meals cause you to have the symptoms that concern you. I would suggest changing your diet, avoiding fatty meals.
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