Sovaldi, Interferon, & Riba...Now Harvoni

hi dog, ribavirin has a long half life, (11 days i think). i missed doses on my last tx. and still got to SVR.
barry

Drama.
I called CVS Specialty Pharmacy when I didn't receive an expected text that my last auto shipment had arrived at the local pharmacy. I was informed that due to whatever reason, auto shipments weren't being processed. So I'm not going to received my medicine until the following Tuesday, four days without medicine. And the evil person I was speaking with informed me that if she noticed only a week supply of medicine left that she would be calling the specialty pharmacy to check on the next shipment.
I thought to myself, really? It's my fault that auto shipments that happened in the past are now not being processed. So I confirmed that the shipment wasn't coming on time and hung up.
I immediately called back and stated my case to a pharmacist who set up a shipment to arrive the next day. Which resulted in only five hours late on my Sovaldi pill.
I am now in the process of trying to get the evil call center person fired or determining what the deal is with CVS. Are they pulling this this crap for monetary reasons or what?
If I weren't so motivated to remain compliant to treatment, I could be sitting here now unmedicated with a virus that's mutating and becoming even harder to kill... for all CVS is concerned.
Otherwise I'm fine. Able to remain compliant to treatment with the hopes of SVR with a supportive wife. I'm drinking plenty of water and intake good calories, but I do indulge in a few cookies and ice cream.
I learned a long time ago that nothing happens unless I follow up and keep digging and working to be successful. If there is ever a next time, I certainly won't take "auto" anything for granted. Period.

Post Edited (Dog LeDon) : 5/31/2014 7:39:17 AM (GMT-6)

Dog, We had so much trouble with box pharmacies that we have returned to the TP hospital specialty pharmacy who works everything out with our docs and the Medicaid folks. Our meds are shipped and we have had no trouble since we switched. I dont think you are are at the TP stage of things, so this alternative may not be available to you. We have found that screaming and shouting at a pharmacist in a local store DOES achieve priority service -- at times. But who wants to scream and shout at folks????? Who should have to be this aggravated?

Our pet peeve with the robo processing was when they would kick out his prograf for antirejection or one of his blood pressure meds. BECAUSE? He takes .5 in the morning of prograf and 1.0 in the evening. They didn't want to fill to rx with the SAME drug. They would say EVERY TIME, that they already filled it! UGH. And the same with two different doses morning and evening for the Metopolol. EVERY time. And he'd go down there and fuss at someone who would call someone else who would call the doctor. Lots of energy on stupid stuff.

Well, we would have been frantic to think he would miss doses of the treatment drugs and hope this is solved for you now.

Hugs,
ML

I did my 10th shot yesterday. I have less than three weeks to go (20 days).
I am relaxed. My anxiety level is down to nada. I slept 6 hours strait last night.
I would like to say that the last ten weeks have passed quickly, but they haven't.
Twenty days should be a cinch though.
My hopes of SVR are high.
Good luck all.

Dog, And you are also doing the interferon which adds insult to injury. You are almost done, and I am very happy for you. I also have high hopes for your SVR. I know the sides are bleh...but 3 months and it is done. Sorry about the anxiety. Themister had every side fx with his 2nd riba/interferon treatment, became bedridden the last 4 months....and it was just a a bad time, all around. SVR obtained, so it was worth it.

I have had a bad wrist, and still am supposed to be read only here, but I wanted to reach out and cheer you on. Big Hugs

Next Friday is my last shot. I have 12 Sovaldi and about 75 ribavirin pills to take.
I am on the downhill slide and anxious to get this treatment behind me.
However, my little bug is nothing.
There are so many hurting.
Let's say a prayer for the sick, the children, the poor souls in bad places, everyone.
Amen.

Bless you dog and good luck. I finish my treatment July 5, my independence day. I was on interferon during past treatments I am geno 2a and am on ribavirin and sovaldi only now, and it is so much more easier to tolerate. Just some headaches a bit irratable, indigestion and a little difficulty getting a full nights sleep. I have been undetectable since week 2 and my liver functions are just a bit above normal verses 5X normal before treatment. Hope for your successful treatment
paulyme

Fingers toes crossed, etc.

congrats on finishing tx!! in 24 weeks, you will be standing in the winners circle

Hi Zoarie.
Congrats on being undetected.
All they are testing for is viral load.
If the gastro doesn't get with me soon about a liver function test, then I'm heading to my GP. He'll do it.
Thanks for commenting everyone and have a nice weekend.

Maheshk, please read my first and subsequent posts if you would like to know what you can expect from treatment day one and so forth. Not only treatment, but how to deal with the specialty pharmacy and other nuggets.
Again, I would like to thank everyone for sharing and encouraging me. This is an awesome platform and I wish that it had been available back in 2000 when I had my first experience with HCV treatment.
God bless everyone and I pray you all will receive strength, health, and be happy.

Dog, I also meant to add, would really appreciate if you can include how long it will take for that back and forth of one or two days w the shoop/feeling horrible and than next day feeling great, ect.

I have the same effects and am really wondering how long it will take before you feel consistently better and w/o the unpredictable bad days once you stop the meds.

Praise God.
I got the news today that the virus was not detected.
I go for another test in December.
I'm pretty happy.