Today is day 84 Sovaldi/Riba Treatment

Well it`s finally here. Day 84, the last day of my 12 week Sovaldi / Rib treatment.
For me everything went the way it was suppose to .
From day one when I was offered to go on this new treatment by my Hep C clinic. To getting 100 % coverage from Manulife. My Gilead caseworker helping me deal with Manulife when Sovaldi was so new it wasn`t even on their DIN list. My specialist and her assistant who have been fantastic. And my family Doctor with his moral support. He has a friend who contracted Hep C and did the interferon treatment so he was aware of what might be in store for me.

I didn`t have much to say on this forum as I only had a few minor sides. A bit of brain fog the first couple of days at the start. The after shower itch that started to go away around the 10th week .And, that crazy after supper watching TV itch behind the knee. Am I the only one that got that ?

I didn`t want to write " I`m doin` great !" when so many others were having difficulties with sides.
Sometimes when I read some of the posts I wondered if I was taking the same treatment ?

I didn`t post any numbers as I did`nt ask for a written copy of them. My Dr said the numbers were in line with treatment and if there`s a problem she would call me asap.With blood draws every two weeks I was ok with that.
Here in Ontario we don`t get VL results with every draw. I was told I get one at the end. My team is super confident that I am UND. I did a draw yesterday so I may get the news before my appointment in early May.

Well that`s about it from me.I would like to thank Mama Lamma and her crew for doing all the hard work in keeping this forum up.It`s been moderated with respect , dignity, compassion and at a time ( hard cough ) some civility.

To all on treatment good luck stay the course it`s not as long as the calender reads, the last third fly`s by.
To the people who have just started or thinking of starting. Do not let reading about the sides freak you out. These posts are from people who are having problems and need help and support and this is a great place for that.
What I`m trying to say is that people who suffer difficult sides are in the minority. Gilead`s clinical trail numbers prove it. Most people interpret these numbers the wrong way.
For example.
note; these numbers are for example only

14% of people suffered from side A......... which really means 86% didn`t
11% of people suffered from side B........ which really means 89% didn`t
See what I`m saying. It` all how you interpret that.
Go for the treatment if at all possible. You can find ways to get help financially and you can get some support and love here.
That`s it for me,
See Ya !
944s

Post Edited By Moderator (MamaLama) : 8/28/2014 3:33:01 PM (GMT-6)

Congrats - I am looking forward to getting there myself. I have had the crazy itch on the tops of my feet and my knuckles. I am having more side effects but am finding more support sources. My insurance - Cigna/GreatWest and a voucher from Gilead made my cost $15 a month. I am very grateful that I have been able to get this treatment. i was very close to just accepting my fate and after 10 years of sobriety had gone back to drinking. This has given me a whole new outlook and am now 1 yr sober, all test results are great as far as the HCV viral counts.

Thanks for the input, it gives me hope.

Good job and I hope all goes well with your SVR.
I just did my fourth shot a few minutes ago. Sometimes when I'm watching TV I'll get an itch if I think about itching, lol, but never if I'm working or doing something that occupies my thinking.
I agree, look at the glass half full. There's a 80 - 90% chance I will make SVR. And my liver is only getting worse if I don't. Easy choice.
Later this year when combo treatments are the norm, a person will have 100% chance to SVR, and no interferon.
Thanks, 944s, and good luck.

Great to know many others are getting treatment. Will be looking forward to your labs. music 👱

glad to hear your good news!!

I was told today by my specialist that I am now SVR.
All that`s left now is some periodic ultra sound and a blood test in 6 months.

So excited for your svr!!!
music👱

congratulations on the SVR!!!!! I MIMIC MAMALAMA.... WOO HOOO!!!!!

Oh this is terrific!!! Congratulations. ( little dance!)

Enjoy the HCVfree life!

Hi Dorad,
Sorry not to respond earlier. I kind of drifted away from this site.I find it difficult to write about it as I had no trouble with getting treatment and no side effects.Sometimes when I read some of the posts I feel very very fortunate on how my treatment went.I will leave it at that.
I was looked after by a GI Clinic at a local hospital. This clinic is connected to the University here and the`re on the leading edge of treatment.My case worker applied to Gilead for the Sovaldi program. It was Jan 2nd and it had just been approved. Along with the Gilead caseworker we had a telephone conference with Manulife. At that time with it being so new it wasn`t on their DIN list but..I was promised they would get back to me, which they did.My wife has the top manulife policy no co-pay which helped.By the first of Feb I started treatment 12 weeks. I only go to clinic now to get ultra sound on my liver once every 6 months now.I still talk with my caseworker about Sovaldi and stuff as I was their first.She told me that in some cases the coverage providers aren`t as co-operative so to speak as they were when I was approved. Even with the off label.
Good luck with this Dorad.
Sorry I don`t have any shortcuts for you.

Post Edited (944s) : 10/7/2014 8:21:08 AM (GMT-6)