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Posted 10/10/2014 10:27 PM (GMT 0)
www.trust.org/item/20141010175904-ffrxl/









edit to make the link hot!

Post Edited By Moderator (themiz) : 10/10/2014 5:32:55 PM (GMT-6)

Posted 10/10/2014 11:39 PM (GMT 0)
David, This is terrific news!

Thank you so much for posting. It looks like Gilead's HARVONI, with Solvaldi and ledispravir in one pill daily, is the all oral everyone has been waiting for. Big "ouch" on the price tag, but themister said it beats the half a million for a transplant.





edit to add...

Link for financial help paying for Harvoni through Gilead's Support Path.

www.gilead.com/responsibility/us-patient-access/support%20path%20for%20sovaldi%20and%20harvoni

Big Hugs
Posted 10/11/2014 12:46 AM (GMT 0)
Hey, what happened to my pasta primavera joke? Too flippant in regard to a serious issue? If so I apologize.

Susan
Posted 10/11/2014 12:58 AM (GMT 0)
News like this just makes me cry.

A whole generation of folks won't have to get sicker and sicker for 40 years until they are near death....and bar transplant DID die.

Hep C is on its way OUT.

ML
Posted 10/11/2014 1:34 AM (GMT 0)
To be serious for a second, as the volunteer president of a chapter of the American Liver Foundation, I spent at least 75% of my time on Hep C. I never thought there would be a cure. People were coming out of the woodwork, newly diagnosed and very ill, and their options for treatment were crappy at best.

To think that this scourge might actually be cured and hopefully eradicated is truly a miracle of modern medicine.

And that is no joke.

Susan
Posted 10/11/2014 1:36 AM (GMT 0)
My husband Dennis was just prescribed this new medication this afternoon. Don't know when he will start as we have to see how the insurance is going to handle it.... They want to have him go 24 weeks as the dragon is rather stubborn with him and doesn't want to stay Undetected. Will keep everyone updated when we know more!!





Kathy and Dennis
Posted 10/11/2014 2:06 AM (GMT 0)
Thanks for the hot link, I'm not very computer savvy.

about the cost of a transplant: MGH estimates that an average liver graft costs $750,000 the first year. Of course, MGH is one of the more expensive hospitals, and in MA, that's saying something.

Susan, I want to hear the joke...
Posted 10/11/2014 2:14 AM (GMT 0)
Kathy and Dennis.

B E S T N E W S E V E R ! ! !

I think about you guys all the time.

He will be our first on the new med.

Hugs and Hooray.

Carol (and Mike too)
Posted 10/11/2014 3:57 PM (GMT 0)
Carol (and Mike too!!)

We think of you guys as well!! :)

Not sure how all the insurance stuff will pan out but will let you guys know when we know more....

Hugs,

Kathy and Dennis
Posted 10/11/2014 6:16 PM (GMT 0)
Susan, ...I spoke to Mama Lama...and neither of us deleted your joke, or ever saw one :) Please email me if you ever feel something like that happened.

HW has been inundated with spam in the middle of the night. Mods are going crazy catching it and getting it gone. Your joke may have been caught up in the dusting up by the night crew. Big Hugs
Posted 10/13/2014 6:40 PM (GMT 0)
Hi,
My boyfriend just told me he has Hep C. We are not sexually active yet, but I wondered what to expect. He has been doing the interferon treatment.
Posted 10/13/2014 7:51 PM (GMT 0)
It's unlikely you'll get Hep C from sex. As a blood to blood contact is needed to spread it, sharing a toothbrush or razor would be unsafe. I had 2 long term relationships (12 and 16 years) before finding out I had Hep C. Both women used the pill, so no condoms were used. Neither has Hep C.
Posted 10/13/2014 11:23 PM (GMT 0)
David, my joke was lame, and once I heard the price of Harvoni I lost my humor.

I'm working on getting Xifaxin at an affordable price, and you can not even compare Xifaxin with Harvoni.

It is crazy.

Susan
Posted 10/14/2014 1:19 AM (GMT 0)
There is a link somewhere here that tells how to get help paying for xifaxin from the pharmaceutical manufacturer.
Posted 10/14/2014 2:00 AM (GMT 0)
In the Hepatitis Resources sticky, there are many links for various financial assistance programs for Harvoni, Solvaldi, Xifaxan, and more. Please check it out! Also, there are links many other liver disease topics. Hope that helps. Big Hugs
Posted 10/21/2014 5:02 PM (GMT 0)
Dennis just got the prescription Harvoni today!!


Treatment starts tonight for 24 weeks.


We will keep everyone updated when something new comes up!!



Kathy and Dennis
Posted 10/21/2014 6:06 PM (GMT 0)
Can't to hear how it goes.
Posted 10/21/2014 6:33 PM (GMT 0)
turn turn turn turn turn turn turn turn turn turn turn turn turn turn turn turn turn turn turn turn turn turn turn turn

24 happy faces for 24 weeks of Harvoni.

He is our first one....so we'll want to know EVERYTHING.

Hugs,

Mike and Carol
Posted 10/22/2014 3:53 PM (GMT 0)
Well Dennis made it through the first night.

He felt wobbly on his feet and more fatigue than normal which we expected.

He was up early and doing pretty good. He said he felt the effects of Harvoni sooner than he did when taking Solvadi and Olysio. No headache, just fatigue and a little off balance on his feet.

He does labs in 2 weeks and then more labs and doctor visit at 4 weeks.

First day down!! :)

Kathy and Dennis
Posted 10/23/2014 12:27 AM (GMT 0)
Thanks for posting right away....this medicine is really strong and really good. I hope it is kicking that Hep C right wear it hurts.

Hugs,

Carol and Mike
Posted 10/23/2014 2:31 AM (GMT 0)
It's worth suffering side effects for the treatment. ESLD takes longer and has much worse side effects. Stay with it, you'll get there.

MamaLama,
I think a comma in your last sentence is missing...
Posted 10/23/2014 2:34 AM (GMT 0)
David, I think I fixed it. Note to self...don't send stuff from phone. :-)
Posted 10/23/2014 3:35 PM (GMT 0)
Thanks ML and David for your support!!


We will keep you updated...So far he is just sleeping a lot but he says it's not bad. He definitely can feel it, so hopefully it's doing it thing and getting rid of the Hep C for good this time!! :)


Kathy and Dennis
Posted 11/6/2014 7:27 PM (GMT 0)
Dennis has been on Harvoni for 2 weeks now....He did his first set of labs and the doctor says they are looking good. Haven't gotten the Viral load back yet.

Side effects so far have been mild, insomnia, fatigue, headache, unbalanced on his feet, some foods not tasting good anymore especially fruit...Over all treatment is going well. Dennis is on the treatment for 6 months due to cirrhosis and relapsing from prior treatments.


He has a doctors appointment in 2 more weeks so will update more then.


Kathy and Dennis
Posted 11/6/2014 8:54 PM (GMT 0)
take a look at HepC.com
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