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February 14th is National Donor Day!

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Posted 2/14/2015 2:43 AM (GMT 0)
February 14th is National Donor Day


Share more than your heart on Valentine's Day. Share the Gift of Life and love as an organ, eye, and tissue donor. You can sign up in a heartbeat by clicking below. Or help us spread the word!

www.organdonor.gov/index.html



Thank you, and Happy Valentine's Day wink
Posted 2/14/2015 3:26 AM (GMT 0)
Wondering if one obtains a SVR from Hep C if they would be accepted as a donor? When I was diagnosed in 1994 the state made me turn in my driver's license which contained a donor signature and authorization. Today I received my 12 wk results-- virus undetectable!! If I am able, after full treatment, to obtain SVR I will want it written in all documents, in addition to living will, my wish to be a donor
Thanks for letting us know about the donor holiday and keeping us all aware of how important it is to spread the word. Thinking of you and Themister, GC
Posted 2/14/2015 12:12 PM (GMT 0)
From organdonor.gov

Fact: Anyone, regardless of age or medical history, can sign up to be a donor. The transplant team will determine at an individual's time of death whether donation is possible.


From LiveOnNY

Frequently Asked Questions

What organs and tissues can I donate?

You can donate your heart, kidneys, pancreas, lungs, liver and intestines. You can also donate eyes, and tissues such as heart valves, cardiovascular tissue, bone and soft musculoskeletal tissue, and skin.

Who can be a donor?

All people can be considered as being potential organ, tissue and eye donors after death has been declared. Nothing should be ruled out. A doctor will make a medical determination at the time of death.Patients who have Hepatitis C may still donate organs to a patient who also has Hepatitis C. The same is true for Hepatitis B — but this happens less frequently. Most cancer patients may donate corneas.

Spread the word !
Posted 2/14/2015 12:22 PM (GMT 0)
getcured....Are you saying you were told to submit your drivers license because you were diagnosed with Hep C, and what state?

And a huge congratulations on your 12 week UNDETECTABLE!!!! This is the news we live to hear.

Big Hugs
Posted 2/14/2015 2:19 PM (GMT 0)
I have been on the bone marrow registry for about 20 years. Every few years they call to ask me if I still am willing to donate. Way back when I found out I had Hep C, I told them. They said I could still donate. I have been undetectable for the virus since 2012.
Posted 2/14/2015 4:45 PM (GMT 0)
When Mike was transplanted, he got a form asking IF HE WAS WILLING, IF AT DEATHS DOOR, to accept a Hep C liver. They promised drugs were on the horizon. He would have done that. They also told him sometimes they used a less than perfect liver to sustain life with the notion a second transplant could be done. At this point in his 65th year he does not think he would choose a second tp...though he has not faced that decision, so I don't know.

Hugs,
MamaLama
Posted 2/14/2015 4:53 PM (GMT 0)
David,

First, I am so grateful you are alive because someone decided to donate.

And Mama Lama...So grateful Mike is alive due to a someone donating.

In the 1990's I heard a news report about a female police officer who would die without a bone marrow transplant. It was a heartbreaking story. Such a simple thing to do, and I did not need to die to be on the bone marrow registry! I think when we get to a personal level with such stories.... see real people with their very real and wonderful lives that will soon be cut short...urgency sinks in.

I went to the tent pitched outside a prison gate where the mass registration campaign was being held. And it was packed. Just like that I was on the bone marrow registry! How I hoped I would be her match. But no. Her story disappeared and I would get updates over the years about the donor registry, but I was never a match.

Now I feel the real impact of donation. I watch each day as my sweetheart becomes sicker than sick. I held his head last year as he was unconscious and turned blue in a hepatic episode, while waiting for emergency EMT's to arrive. He survived, but I know how fragile life is.

Knowing others can impact real lives when theirs has ended. Clicking a link. This is so simple. So simple. Big Hugs

www.organdonor.gov
Posted 2/14/2015 5:54 PM (GMT 0)

MamaLama said...
When Mike was transplanted, he got a form asking IF HE WAS WILLING, IF AT DEATHS DOOR, to accept a Hep C liver. They promised drugs were on the horizon. He would have done that. They also told him sometimes they used a less than perfect liver to sustain life with the notion a second transplant could be done. At this point in his 65th year he does not think he would choose a second tp...though he has not faced that decision, so I don't know.

Hugs,
MamaLama


If someone is Hep C positive,.... as Mike was....a Hep C positive liver (not cirrhotic) should not impact the transplant . Here is the info I read about that.

www.ncbi.nlm.nih.gov/pubmed/11552208

Since Hep C is pretty easy to treat now, and getting better all the time...maybe a Hep C donor who has a good liver is not such a bad thing in any transplant candidate?

Discussion?

Themister told me he would not want to treat again, having done that twice....so, let's hope he won't need to make that decision.

What say you? Big Hugs
Posted 2/14/2015 6:26 PM (GMT 0)
I met a guy at the transplant clinic that had a transplant the day after I did. He was in really bad shape, coughing up blood when he came in to MGH. They asked him if he would opt for a HIV positive liver, if things got too bad. Didn't sound like a good choice, but at the time, treating HIV was a better possibility than treating Hep C. That was a little over 5 years ago. He drove all the way from Maine to Boston when he got the call. Talk about a tough guy.
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