Traials with Hep C treatment over theyears

I was daignosed with hEP c in the late 90's. the FDA hadn't even  approved the treatment yet. I was part of a trial out of UMDNJ in Newark using Interfuron only, When I complained to SDchering about the aches and pains, I was told I was a rare case and the exception rather than the norm. My Dr. - who oversaw the treatment for the liver speacialist prescrbied me percodan for pain. soma for aches and xanax for anxiety. A recoevering addict when I beganb the reatment, I was in full blown addiction in no time. Needles to say the treatment did't work.

 

Last year I had a bisposy (2004) and my viral lode was 8 million. I was not ready to go on treatment again psycologically so I waited until this year. My viral lode is now 148 million. I am on the Pegasus (one shot a week with 6 pills of Ribavirin a day). The shots a killer, but I am clean and sober and the regiment inkly lasts a year thus tme as oposed ti 12 monthd the last time,'

 

One thing that coinfused me was the Dr, said I should  take Tylenol for pain. I had heard that was a tabboo for Hep suffererers, but he say that's only  for active drinkers .

 

The shot as I said is killer and I spend the night shivering to death, Does this level off, and what about the tylenol issue? Thanks. I am stage 2

Post Edited (curio) : 10/24/2005 9:51:25 AM (GMT-6)

Hey there! I was treated early on too, in 1994 with Intron A, and it was still experimental or just approved I think. I know there were insurance issues. I'm sorry you didn't get well. I supposedly did, but now they are telling me it's not altering the course of the disease even though I've been PCR neg for 11 years. Isn't that a trip. God bless you in your recovery. I was told the tylenol thing too and it was the only thing I could take for a while, now I can't take that. I hope you feel better.

I was told in 1993 that I had hep c...After a biopsy I was told I had stage 4 liver disease...I went on interferon & Dr. stopped me after 6 months there was no change....When the cocktail of interferon & ribaviran was approved, I went on it....Thought it was going to kill me...Was not able to function the day after I took the injection...Stayed in my recliner covered up from head to toe from chills....Was soooo sick I prayed to DIE....BUTTTTT thank the good Lord it done what it was suppose to...I am now free & clear from Hep C & have been for 5 years.... Am still having problems from the liver disease tho...Good luck to anyone on the interferon cocktail & God Bless....