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Posted 3/23/2003 6:08 AM (GMT 0)

Hello,

My husband was recently diagnoised with Hep C.  We have been together 10 years and have 2 children together.

my question and or concern is:

How strong are the chances that I have Hep C? what about our children?

Should my husband and I stay abstinate from sex until we know?

We just found out and don't have a DR appt for 2 weeks and I am just overwhelmed with worry and concern.

Anybody that could help I would appreciate it.

 

thank you

Posted 3/31/2003 1:25 AM (GMT 0)
I found out two years ago, I'm 41 years old been married 15 years
and we have 4 children. I'm pretty sure I got Hep-c when I was 18
years old. My wife and children have been tested and are all negative.
I understand that it has to be direct blood to blood contact, open sore
to open sore, needle prick, the infected blood has to penatrate the
skin of another. Sharing a glass or spoon will not infect but fingernail
clippers and razors are a no no. I have no symtoms of hep-c accept
alittle tired but i work alot also . Hope this helps,
Keep on smiling, Jesus saves!
Posted 4/2/2003 4:51 AM (GMT 0)

Ok, Take and deep breath, and let out, try to relax a little.  I know what you are going through.  The "Love of my Life" was recently diagnosed, about a month ago and just started treatments it is a very scary and overwhelming time!

First to answwer your question,  I have done tons of research on Hep C.  Almost every where I have seen, the chance of Hep C being spread in a monogumus relationship without any other STD which would leave "opening" for entry, is only like 2%.  The problem with the studies that are done, in that 2% there is not conclusive evidence it did not get spread in another way, ie use of razors.  Your children should be clear, however, I would have them tested anyway because there is always the chance spread when helping to clean wounds and such.  I have found this wonderful web site, that has one of the best support and information message boards availible.  I do not have the web address on this computer though-its at work.  However, usually if you do a search for "janis hep c" but don't put " around it, it will bring it up!  The web site itself has a wealth of info-In fact they just had a new article today on the hep c and sex issue.  I felt like I was going in circles on resarch till I found that site by luck!  And the people are the greatest!  There are patients, people in remission, spouses, and friends. If you have any other questions or concerns you can email me and I will try to pass along any info I have found on it!  [email protected]

Wishing the best to you and your family in the confussing and trying time.

B.

Posted 4/18/2003 8:14 AM (GMT 0)
Hi everbody,
I would like to share experience (İncluding medical treatment and alternative treatment on Hepatitis B) with you. Whoever infected with Hepatitis B, what they have done, how they treated, what is the result? I wonder very much about treatment. I am being treated at the moment. I t has been almost 4 months. Not yet definite result. Response will be highly appreciated. Best regards.
Posted 5/1/2003 10:20 AM (GMT 0)
I found out a few mounths ago (through a blood test i had to take because i am bipolar) that i have hepC. Because i am bipolar they won't give me pegalated interferon. They want to give me regular interferon so it will wear off sooner incase i have problems with depresson. will it work as well.
Posted 5/1/2003 10:27 AM (GMT 0)
I will have to take the injections daily. So far the insurance is rejecting me. If the insuance doesn't approve me are there any other choices.
Posted 5/2/2003 8:26 PM (GMT 0)
Hello all,
I too have Hep C, among other stuff, and it's an adjustment for sure. I can't say if the peg-intron works better or what Bob; it really depends on your specific diagnosis and factors. Have you tried 'Commitment To Care?' They provide shots/meds for folks who cannot get it otherwise. Just do a search and you will find them or ask your doctor.
I tried the peg-intron and it was way too much physically for me! It did, however, knock my viral load dowm a lot in the 5 months I took it.
Also, I was in a relationship for 6 years (I think I contracted it around 89-90) and my ex does not have it.
Necip, do you mean Hep C?
Posted 6/15/2003 7:33 PM (GMT 0)
I was diagnosed with HepC about a year ago and have been in denial since. Of course I was diagnosed after being tested because I was feeling like the walking dead. Well, the denial thing just doesn't cut it anymore. The pain and exhaustion are something to be dealt with every day now.
I am divorced with two beautiful daughters 13 & 19, and this is supposed to be the prime of my life. The great years?

I don't know where to turn now. I feel my life being reduced as I speed on a downhill spiral and I need help.
Please write with any help, advice, inspiration, stories, or even just a hello.
Angelhepper
Posted 6/16/2003 10:47 PM (GMT 0)
This has help me , two months after i start taking this my
energy and liver levels were back to normal.
Go with an open mind to http://www.utopiasilver.com and
read some of the testimonys on hep c.
I chose to belive and now i have my live back.
I wish the same for you .
Posted 7/28/2003 3:52 PM (GMT 0)

hi , i am a 39 yr old hemopheliac. i was diagnosed in 1999 with hep c. one of my kids(i have 3) also tested positive. she is very sick but not from the hep c, the virus is destroying her kidneys. it isvery important to test yourself and your kids as early treatment is most responsive. my duaghter and i have genotype 1a which is the least responsive to interferon. my husband and i have a healthy sexual relationship. do not have sex if you are having your period or if there is any way of blood to blood contact. your hubby will be going through a very tough treatment comparible to chemotherapy and will need everyone's love and support. the meds can have psychiatric side effects do if he has any predispositions make sure he sees a shrink first.there is plenty of new drugs coming on the market in the very near future so if he doesnt respond to treatment right away, dont lose hope. the drug companies are spending billions on research and are very aggressive about getting approval and hosting clinical trials. the global community is investing in cures and we will win this fight together. pray often and make sure he eats healthy and exercises and gets plenty of rest. if he gets depressed or angry be compassionate. good luck and dont worry, it will be ok. andi

Posted 7/28/2003 3:58 PM (GMT 0)
i am looking for anyone whom has aquired MPGN or nephrotic syndrome from the hep c virus. my teen has this combo and i am looking for anyone with experience or info on this matter. we need to agressively clear this virus but the rebitron caused severe depression and suicidal ideology, and para suicidal cutting. we had to stop treatment because she was losing touch with reality and had no quality of life. i understand from research and talking with others that it is the rivovarin that causes this crap. has anyone tried the monotherapy as a management approach? does anyone have any suggestions or research links on the topic of renal/hep c info? thanks i am desperate to save my kid and get treated myself. andi
Posted 8/23/2003 7:17 PM (GMT 0)

Hey all...

I'm 30 years old and was diagnosed with Hep C somewhere around 4-5 years ago.  I started taking the Pegasys treatment late March this year. 

It seems to be doing exactly what it is suppose to do...killing the virus; although, the side effects are somewhat overwhelming.  I reached a point where I was quite depressed and the doc prescribed me Paxil.  It helped.  Took some time to get use to, but evened out in the long run.

As I have continued the treatment, I have experienced other side effects which have begun to interfere with work.  My thryroid started to freak out.  It was working too fast....doc slowed it down and then it was too slow. Now, they are trying to get it to a normal functioning state.  Ultimately, it is due strictly to the treatment for the Hep C. 

I have been extremely moody, extremely fatiqued, and have lost much of my spunk and normal sarcastic and fun personality. 

I have some support....which is truly important. I do not know how to deal with not being able to express to people in the office and such, exactly what I am going through.  I feel like a slacker....but, know really, that I feel like a slug!!!!  I wish I had the energy to live the life I have not lived yet. 

Anyway, I hate to be a downer.......that is not my style. 

If anyone is being treated for Hep C and has thought s they care to share, I would be most interested in communications.

Bless you all.....Let's just hang in there!

Posted 8/25/2003 4:42 AM (GMT 0)

Hi Sydnee,

 

Hang in there with the treatment, I completed treatment 4 months ago, and after 12 weeks my PCR was negative. This was the 3rd time I had been thru treatment, but this outcome has mane it all worthwhile. Once you complete treatment you will feel so much better, so just keep up the good work and focus on the end result.  It's worth it.

Posted 10/16/2003 6:50 AM (GMT 0)
Hi friends,
It has been ages I could not look messages. Thanks a lot for sharing experiences about treatment of hepatitis B.
I have been treated first with the combination of Intron-A and Lamuvidine for one year. During treatment, in the end of 3th month, liver enzimes level was normal and went on same till 15 months period. But following treatment, after 3 months, liver enzimes level were high again. My doctor told that interferon dose was insufficient, its dose was 4,5 mln, so he gave me 9 mln Roferon and zeffix (Lamuvidine 100 mg), roferon injection 3 times a week and zeffix one tablet a day, treatment took 6 months, now liver enzimes level is very normal, HBV-DNA-PCR is negative. I feel very good and energetic, thanks to medicine and doctors.
I would like to share my doctor saying with you. Doctor says that this ilness is going on like sea, as sea is same times very calm sometimes is wavy. But in the and wave will turn to be calm. Do not forget. Be patient. Believe in your doctor. Looking forward to hearing you all.
Posted 12/20/2003 7:09 PM (GMT 0)

I need to be put in touch with people who have had the "tips" procedure done.  (A stent/shunt to alleviate ascites).  I can find lots of technical info but none on the effects on quality of life.  I have heard of incidents of forgetfulness, a fuzzy feeling, confusion as a result of the procedure.  I need to know more about this from the people who have been affected.  I'm afraid I'm pretty computer illiterate and stumbled onto this place in a futile attempt to locate this info but I think I can find my way back to read replies posted.  This is very important to me as you can imagine so I certainly appreciate any info/help anyone can provide.  Thank you.

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