Posted 4/18/2011 2:41 AM (GMT 0)
Hi Ribena,
I am glad you found this forum, because everyone here is wonderful and has lots of great advice. They have really helped me, whenever I am just frustrated or really concerned. They become like family, always supporting you through everything.
My main advice for you, through my own experience, which is all really new to me as well, is to make time for you. It is really stressful dealing with this disease. It is a roller coaster! Literally, one day the person is fine, then the next they aren't. You have to make sure that you find time somewhere everyday, just for you. My time anymore, is to take a nice long hot bath. I also take at least a day a week to spend with my kids, just us. Anymore, they are with my mom more than me, my mother in law stays so sick.
When it comes to your dad, all you can do is be there for him. There is probably not much that will comfort him right now. It is hard to watch someone you love whither away. Just be a loving daughter, and show him support and that you are there for him. As for your little sister, I am sure that she already comes to you for advice, and for comfort. You have probably already took that role in her life, even if without knowing so. Just be there. There are things that a dad just cant explain to a daughter like another girl. I know this from experience. She will need someone there to comfort her when a boy breaks her heart, to do her hair and make up, help with homework. Just to listen to her.
Just make sure that you take the time for you and your partner everyday. My fiance and me, we dont have any time alone until bed. We lay in bed and talk and that is our time. Yes it sucks really bad, but we both know, eventually we will have our time. Have date night or something to that effect, as I am sure your mom isnt living with you, you should have time together more often. My MIL lives with us, so we dont get that.
I hope everything works out for you. I know you will find lots of support here, I know I have. I will keep you and your family in my prayers.
Thoughts are with you,
Natalie