November 2, 2011, Early afternoon
Just got off phone with Connie who is still at Mayo. She at first thought she could go home today, but the target is Thursday now. She will have been in the hospital just a week!
She sounds strong and has excellent mental status. Like everyone else, she finds the medication regime takes a lot to keep straight…but her sister is here now for a few weeks, and between them, they think they have it covered.
She had expected to have problems with the prednisone, but so far so good. She is on 40mg prednisone, 3.5 prograf twice a day, and cellcept (don’t know dosage) for her anti-rejection regime. And all the usual other stuff. She hopes to start titrating the prednisone down starting tomorrow. Because who can sleep on all that pred??? No one. She hasn’t needed any insulin today. She is hoping NOT to need insulin when she goes home, but time will tell.
Her labs have been up and down, as they often are after transplant. They are keeping an extra close eye on liver enzymes. They did a test to look at her bile ducts that I didn't know about--a cholangeogram (?) She, like others, is worried about what will happen to her Hep C virus post transplant. When/if it comes back. And she wonders when/if treatment will be offered for that. (Not something she looks forward to, as the treatment she had been on was rough.)
She isn’t up to many phone calls but promised to get news to us…reaching one or the other of us she has numbers for. She reiterated that she appreciates everyone pitching in on greeting new folks on the site to keep that going. She doubts fielding emails and posts will be her first priority for a while.
I shared with her that everyone is doing well…
So, y’all better DO WELL!
Carol