Hi Blipette,
Welcome to Healing Well's Hepatitis forum.
We are a group of patients and caregivers who are dealing with liver disease.
And YES, most of us are familiar with forgetfulness and confusion.
Hep C, even before it does serious damage to the liver has its own kind of FOG. A lack of clarity that many patients complain of.
My partner has had Hep C for over 40 years and over time he found he couldn't do some of the things he once did...he was a computer specialist and he can't do that any more. He still uses his PC and is good with the varoius MS products, but he cant do the network stuff or problem solving he once did.
Then, later in the disease, when the cirrhosis sets in, patients are less able to process wastes in their system and various chemicals that once would be eliminated in stool or urine, continue to circulate in the blood. The patients can be tested for the ammonia level in their blood as this may be an indication of Heptatic Encephalopathy. The HE can come and go as the ammonia level goes up and down. Those with HE may have memory problems, are reported to be grumpy or opposisitonal, sometimes very negative with their family. My partner made me cry every day before he got on the good meds -- lactoluse and xifaxan. Check those out on the Internet.
It is important for patients with advanced liver disease (or any liver disease) to have a healthful diet...low sodium, no red meat (too hard to digest), and absolutely NO ALCOHOL. If you are drinking, even just a glass of wine at dinner, stop. NOW.
Should your liver begin to fail (decompensate), you will eventually need a liver transplant to extend life. Those using alcohol are not eligible for transplant programs in the US by policy. My partner quit drinking in 2010 and got his transplant 7 months later, May 1, 2011. He is doing well, but still has the Hep C!
Those with Hep C and cirrhosis are often burdened with Heptocellular Carcinoma. It is a risk you should be checking out.
Are you seeing a hepatologist? If you are not, you need to get a referral or take yourself to a major medical center. Don't fool around with the GI doc, they are find for polyps, but not that good with advanced liver disease.
If this is early in the progression of your Hep C, you could investigate some of the treatment programs now availble. There are studies showing the new 3 drug combo is very effective with 1a and 1b genotpye of Hep C.
If you have more questions, post regularly. There is some educational material at the top of this site with links to very important information.
Good luck, see you back here soon,
Carol
Post Edited (MamaLama) : 5/5/2012 7:57:48 PM (GMT-6)