MY LIVER

Why do you have to wait 3 weeks for blood results surely with all the underlying issues. I have all my bloods done every 3 weeks + results are back within 3 days max. Is this something that just happens in the USA surely not, I have been following this thread + am not sure what to make of it. I would be speaking to my Dr to ask why so long as 3 weeks can do a lot of damage if not getting treated surely

I get a call the same day or the following day if there's anything off. Prograf levels take 4-5 days.

I did feel a little concerned, me personally could not wait that long especially if you think there are liver problems, what are prograf levels please, I also have copies of my results from my doctors 1 when I came out of hospital in May 12, Oct & Jan 13, as I wanted to ensure my liver was not going any worse, I can see we're you come from when You say dying of liver disease a slow, long & horrible way to die for your loved ones too. I am almost a year sober and am still poorly with chronic liver disease also alcohol hepatitis which I still don't really understand. I still rely on Lactulose water tabs and many other essential vitamins, I got gastric enteritis last week end, was so ill I lost 7llb in 2 days totally dehydrated more Thant anyone else with a healthy liver. Connie my friend I mentioned who is very poorly been in hospital for three months lots of serious complaints due to alcohol has been told she will die if she drinks came on on Monday by Tuesday hit the boose, I took a leaf out of Zifflle/David book I told her husband to tell go out kill yourself buy your wine etc infact I told him to say he could a gun for her shoot herself put us all out of misery, he said he would (hope it's not headline news in local paper tomorrow ha). I carnt waste anytime on her now. So so selfish. Any way back to bloods I would urge LL to ask her doc for her results as reading between lines there underlying health issues not to be brushed under the carpet I wish you well LL

Sue (Liverool )
Ziff worked how to use emoticons now

It stuck in my mind David because its harsh but so true, I can see now the fustration of carers & people in recovery doing everything within their power to stay alive, & people who just don't seem to give a damm. It's the first time I have felt like like this, not only over a dear friend who has been sober in hospital for 3 months to start again within 1 day of coming home, and having serious underlying illness aswell. So yes using a gun would do us and our NHS which costs £1000's of pounds to keep her alive and abuse it, a favour, but I suppose that would be the decent thing to do, the hurt, pain, fustration within their family/friends lives are being destroyed. So when you give advice and its taken light heartedly and seems to be thrown back in your face with a sweaty kipper, not so nice David

Regards to all you carers and folks who wanna stay alive!

Sue(Liverpool)

LL, she is looking for trends. For instance, whether kidney function numbers are trending upward or if red blood cells are getting too low. Prograf levels are important to be able to determine if the dose should be changed or stay the same. They wait to see if the level changes at the next lab. They make decisions based on trends.

If you developed cirrhosis from drinking, then you will be diagnosed as having alcoholic cirrhosis, even if you no longer drink.

Hugs,
Connie

Hi LL I am in Liverpool England healingwell is a known site here too I have also asked a question on CF thread as I am worried about a member of my family so am hopin to get a little help there too. Are you still having the occasional drink or have you gone T total now ?

Regards
Sue
What have you done today to make you feel proud

Hi guys, what are/is prograf levels ?

Yes, I did have a drink Sue...2 beers at a horse betting parlor. Made me feel bad the rest of the day.

sorry about that first link, i changed it, that one is the good one.

Linda please listen to advice, life is not a rehearsal Hun, you cannot fix something that's broken, but you can mend a small break. When you go to have a drink just think this is going straight through my stomach to my liver it will kill you eeeventuuullleee (slow, and horrible). Please think as as poison because in reality that is what you are doing, would you inject ketamine in your body for a high? (no I don't think so). Have you come here for help? If so I don't see you taking alcohol as dangerous to you. When you say you felt awful after 2??? beers was it health wise or mentally. Wake up and smell the coffee Linda please. Except alcohol is no good for you I enjoy lots of different fruit juices with fizzy water and tart them up with strawberries, kiwi, mango & avocado which is very good for you liver, I almost died Linda I am so fortunate that I only have chronic liver disease and alcohol hepatitis, I am watching my close friend kill herself after 3 months of being abstinent. Her husband and children are in a terrible way watching their loved one destroy a lovely life a lovely person. I don't think I want to comment any more on this thread, prove me wrong Linda please listen you are talking to the best people I have ever spoken to, and read their real life stories.

Post Edited (Benny63) : 3/26/2013 7:27:14 PM (GMT-6)

 Sue , I don't think you posted anything wrong . If your wondering why there has been no response the reasons very widely with new posters . This person seems to be having a difficult time letting her " social drinking " go . We can only keep repeating that she shouldn't drink but the likelihood is that she still will so she may not be responding because she just doesn't want to hear us ragging her out . Better she says nothing at all than to lie and say she's quit completely . That's is the way I see it . Hopefully she's giving all these warnings a good second thought and might be stewing over the situation . Maybe she's getting help for her problems . Who knows ? 

We have a few who pop in and out here just long enough to shake things up a bit and disappear only to return later to start all over again . We are not gonna reach out and help everyone because some people just don't want help , They just want to whine about their problems and refuse to seek a solution or listen to solid advice . For some you can candy coat things and tickle their bottoms with feathers and they still will find something to gripe about or make a excuse to not do what they need to do . 

So hows my favorite limey ? What you been up to ?

A. Ziffle

 

Thanks for the speedy reply Ziffle, early on during my illness I was convinced being an alcoholic, or alcohol dependent they like to dress it up as now was hereditary, am not so sure now having being sober for almost 1 year albeit I've been very ill. Iam thinking its a weakness that takes away our problems or family issues whatever may be the case. I have not used any talk groups, I just don't wanna DIE!! I,would ask Linda to come back if she really wants support and take the bollocking from experienced members & carers, I could never put my family through what they went through, talk about Jekyll & Hyde, not a patch on me. I also like to talk to you guys for advice/support, & because you are all wake in my night time when the rest of England should be tucked up in bed. You know what too, I feel like Iam a different person now my thoughts & views are much clearer although I forget things a& spell wrong a lot of the time. But hey am 50 in June & feel like a teenager again (I wish). So Linda if you read this ont feel rejected the truth is always hard to swallow you may not like it, but think about it. Be honest you gain more respect if you want to drink you know the down all, I just wish I did, eyes wide shut as the saying goes. Well it is the end of March we have the coldest one ever on record and its snowing.



Sue cold, cold (Liverpool)