HealingWell
Search Close Search
☰

husbands failing liver

Support Forums
>
Hepatitis
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/6/2006 1:26 AM (GMT 0)
Hi , My hepatolagest told me to be very careful with herbs & told me that green tea & some other teas(herbal) were very harmfull to a cirhotic liver.They make you think your feeling better but actually cause further progession of cirhosis. I don't know about other liver diseases. Best thing to do dr. told me is give qualified Pharmacist nature of liver disease or g. I. specialist or hepatolagist. They told me the teas also can induce ascetis. I can have 2 coffees a day they told me.Please everybody always check with qualified person about specific details of liver disease before taking or administrating to someone else. Results could seem ok when actually they are not.Yes your right iron,coper, is. I was told not to use the multivitamin because the iron,copper,chromium,vitamin a & b3 are all toxic to a diseased liver. all other b vitamins are critical as is vatamin c,d,& e. Hope this helps. I too send my sympathy,s to those you have lost thier loved ones.
Posted 1/6/2006 3:02 AM (GMT 0)
Thanks for the quick reply, Lerie.  Without having ascites or cirrhosis, I guess I'm okay with the green tea...but I will double-check with the oncologist.  :-)
Posted 1/6/2006 3:36 AM (GMT 0)
Hi hep 93 Your welcome & please do check for you condition.I left a message for you in another slot as well.later...
Posted 5/9/2008 10:45 PM (GMT 0)
Hi, I'm not sure if this is the right place to post in but my brother seems to be having a liver problem, he looks pale and it started with a pain in his right side of the chest. He also has a bloated belly, I can't seem to figure out what it is, has anyone over here faced this problem? Please let me know, Thanks.

Regards,
Basma.
Posted 5/9/2008 11:15 PM (GMT 0)
Hi Basma,

You might want to click on New Topic--above Quick Reply and start a new thread.
You would get better results, I think.

Carol
Posted 9/22/2008 2:57 AM (GMT 0)

My fiance has Hep C diagnosed @ 6yr ago, Treated 3 yrs ago, -ve, + 6mth ltr.

Now advanced cirrhosis and marked decline and 5 x acitic tap's in past 6 wks to drain, cry waiting

on new's from liver unit if TIPS is viable option.

I'm a nurse as well and driving myself crazy with cyber info overload. confused Hope to marry in 8 week's, God sparing:)

All the best

allyb

Posted 9/22/2008 11:49 PM (GMT 0)

Hi, Losing It.  Welcome to the forum.  You might want to copy your post and put it in a New Topic thread.  You posted under older posts.

Hugs,

Connie

Posted 9/24/2008 1:28 AM (GMT 0)
Welcome to the forum Allyb. I am so sorry that you and your fiance are having to deal with this terrible disease. All the information can be very scary. You have come to a great place for support. Everyone here is very helpful and caring. They have been true life savers for me. You and my finance will be in my prayers.
Posted 9/24/2008 1:36 PM (GMT 0)
Thanks, specialist's meeting today to decide whether or not the TIPS shunt is going ahead. He is back in for more acities drainage to local hospital tomorrow. New symptom's of anxiety, agitation, poor concentration and a fuzzy head. Anyone any experience after the shunt has been put in, i'm reading that the mental symptoms due to toxicity can worsen and i'm concerned about this?
Thank's for all your prayer's.
The wedding planning is taking our mind off things just now at least:)
Allyb
Posted 9/24/2008 1:55 PM (GMT 0)
Not sure how to post a new thread, HEPC93, thanks for your welcome thou
Allyb
Posted 10/10/2008 2:44 PM (GMT 0)
My husband is so sick.  He has cirrosis and is drinking again.  He sleeps most of the time now, usually sitting in a chair.  He still tries to do things around the house, but of late he is having a very hard time.  It is so hard to see him like this, he has always had so much energy.  It is now 11:00 am where I live and he has been asleep since 11:00 last night and slept most of the day yesterday.  I work and I don't think he is eating much while I am gone.  I try to get him to eat at night but he doesn't.  He will not take the lactulose, and is getting confused.  I just wonder how much longer he will be like this

Posted 10/10/2008 7:18 PM (GMT 0)
Welcome to the forum Parisdr. I am sorry that your huband has this disease and also that he is drinking again. Know one can really answer your question regarding time. This disease effects everyone differently. I can tell you that if he is drinking I doubt that he will hold out very long. One of the requirements for the transplant list is no drinking for at least six months before they can make the list and some are required to attend AA meetings. If he doesn't take the lactulose the ammonia in his body could build up and cause him to slip into a coma. My heart goes out to you dealing with this disease and alcoholism also. It is so heartbreaking. My husband has cirrhosis and hep C. He stopped drinking 2 years ago when he was diagnosed. He takes lactulose also. It helps him pretty much. He does well for awhile and then it seems like the confusion and extreme fatigue start all over again. He had been feeling and acting pretty good for about the last month or so, but the last couple of weeks I started seeing it coming on again. I have never been able to figure out what causes the onset. This is one very frustrating and overwhelming disease. If you read some of the older posts you will find them very helpful. You have come to a great place for support. There are many knowledgable and caring people here to help you through the tough times. God knows they have done wonders for me.

You will be in my prayers.
Posted 10/10/2008 9:24 PM (GMT 0)

At both the top left and bottom left of this page there are 3 gray rectangles which say New Topic, Post Reply, and Printable.  Click on New Topic to introduce yourself and tell us what brought you here (the problems you are dealing with.) 

The reason for this is that new members' posts can "slip through the cracks" and not be seen or recognized when they are tacked onto other threads, particularly old ones.

Parisdr, I'm sorry your husband is so sick, but he is making himself sicker by drinking with cirrhosis.  Perhaps he thinks, "Well, I already have cirrhosis, so what the heck."  However, one can slow down the progression of the disease by not drinking alcohol; eating a diet rich in fruits and vegetables, and eliminating red meat from the diet.  If he is not willing to do this, and won't even take the Lactulose, there is not much you or anyone else can do except pray for him.  Please be sure to take care of yourself.


Posted 10/11/2008 12:24 AM (GMT 0)
Thanks for answering so fast.  I get so depressed at times because we had a good life and now it is all gone.  The alcohol and this horrible disease has taken it all away.  He sleeps most of the time.  He went to sleep last night at 11 and I woke him this afternoon at 4:00.  I don't know what to do for him.  He wont go to the doctor and gets upset when I ask him about it.  I still work and I worry about him all the time.  I just don't know how to help him

Posted 10/11/2008 3:46 AM (GMT 0)

Parisdr, liver disease causes extreme fatigue.  Couple that with the alcohol abuse and of course your husband is sleeping a lot.  He is probably also depressed and uses sleep as an escape.  There is the possibility that he could just go into a coma and pass away.  I just want to prepare you for the realities of his not getting help with the disease.  As I said previously, there is really nothing you can do but pray for him.  You didn't cause the problem and you can't "fix" it, much as you'd like to.

My heart goes out to you.  I know it must be hard to focus on work when you are worrying about your husband at home.

Posted 10/11/2008 3:52 AM (GMT 0)
I know how it feels to miss the life you once had. Some days are harder than others. I try to just accept the obstacles that have been placed in our way and believe that someday I will have my husband back again. I try to take one day at a time. It is hard for me not to be afraid of the future, sometimes it seems so bleak to me. When I start thinking that way I try my best to push it out of my mind. I have been making an effort to be my old optimistic self again. I know how lonely and depressing it must feel for you with your husband being so fatigued all the time. My husband has those days also. I know that you just want your old life back and you want to make him better. You are doing all that you can do to help him by standing by him. You can't make him stop drinking or go to the doctor. Pray and ask God to help you through this. He hears your prayers. Remember that you are not alone. There are so many people here that understand exactally what you are going through.
Posted 11/13/2008 1:48 AM (GMT 0)
Hi Folk's,

Not been on in a while, kind of banned myself from the www shocked

Survival strategy as sometimes knowledge is dangerous skull

Busy few months spent mainly at hospital's smhair

Fiance successfully transplanted on tuesday smilewinkgrin

Wedding postponed till we can all enjoy in a few week's idea

Wouldn't have put a penny on my situation changing so fast shocked

All for the good so far and God willing for the future :-)

Even considering fertility treatment as planned for discussion in Dec 08 wink

Keep the faith you guy's and gal's out there :-) :-)

Never forget those who sacrificed there lives for you, through them you have many opportunities yeah    One happy bunny, allyb smilewinkgrin smilewinkgrin smilewinkgrin smilewinkgrin smilewinkgrin

Posted 11/13/2008 1:56 AM (GMT 0)

Ally, that is WONDERFUL news!  Recuperation from a transplant often takes months, though...so you might want to postpone a wedding date until you know he is really up to it.  I think 6 mos. seems reasonable.  While in the hospital, your fiance may look "good as new," but once he gets home you will see how weak he is.  I just want you to know what to expect.

Again, congratulations, and the very best to both of you.

Posted 11/13/2008 3:19 AM (GMT 0)
Ally, I am so happy for you both. I will be praying that you both have a bright and happy future together. Please keep us updated.
Posted 9/3/2009 8:22 PM (GMT 0)
Hi There and welcome,

I'm a nurse too but in mental health. I used this site a lot last year when my fiance was very sick.

It helps to hear other folk's stories and get advice and companionship that no one in your inner circle can provide because they are not living the experience.

It's a scary place to be but good to have others share their experiences and guide you in finding out more giving you the confidence to ask what's going on.

I believe that the actions my fiances family, my family and I took in September last year led to his survival. It took @8 hours to get him into hospital for intensive care. Staff who nursed him thought he would die that night.

He survived.

He was transplanted on 11th Nov 08, nineteen days after going on the transplant list. 

5 days b4 we were getting married too!!!!!!

The op was a success, he was sitting up in bed the next day and although it dominates your life, he is still here and sometimes feeling really good.

We got married on 8th Feb 09 and things are good but the path isn't smooth.

Hope your situation gets better and never lose hope cos where there is breath there is life.

Best wishes and thoughts to you all in this situation,

Allyb

Posted 9/4/2009 8:11 PM (GMT 0)
Hello Ally and welcome back. Glad that your hubby got transplanted. With the road to transplantation usually being so long and hard for most.......it's a miracle that your husband was transplanted so quickly. My husband made it to the list after a year of trying and then had to be taken back off a month later. He may have lost his battle with liver disease but it was not in vain. The sharing of information here and all the compassion everyone has for one another makes this, in my opinion the best forum on the net for liver disease.

With members still active after transplantation we are now learning about the issues that the transplantee goes through. When I first started here........I thought that once a person got transplanted it was happy ever after : redface . Until members start posting about the different complications that were going on with their loved one, I didn't realize all the problems that could come up. That's what I love about this forum and it's wonderful members........the exchange of education by experience. It beats the heck out of what you learn from the doctors.

Take care.......thoughts and prayers...........
Posted 9/4/2009 8:50 PM (GMT 0)
wow! is that really true about GREEN TEA and liver disease?

so if your liver enzymes are elevated you shoouldn' drink green tea?

are you saying the coffee is OK?
Posted 9/4/2009 9:55 PM (GMT 0)
Hi Bucci, I don't know a thing about green tea and liver disease........but I did hear that Kaiser did a study on Coffee and that it was suppose to be good for your liver........That it protects it from cirrhosis. I tend to believe it as I have 2 brothers who drink coffee everyday and are alcoholics and have been for years.......so far so good.......no liver disease. As far as if it is good for a diseased liver ...I don't know. They didn't mention if it was good for a liver which already had damage from cirrhosis though.

Losing it grabbed her original post, so some of the members on this thread may not be active members any longer.

Thoughts and prayers.......
Posted 9/5/2009 11:33 PM (GMT 0)
Hi Pink Grandma,
Thanks for your reply:)
Life isn't a bed of roses after transplantation in any way. My husband has been back in hospital with kidney infections, has type 2 diabetes caused by steroid's prescribed, he has had one biopsy early on showing fatty changes to the new organ(currently being monitored for progression) and still has Hep C:O
They are hoping to give him 12 months treatment with Interferon and Ribavrin when he is able to tolerate it. If that fails due to problems with white cell count than next step is retransplantation. I've read a bit about both and they seem to carry their own risks.
But hey, he's alive and i'm thankful for that and we just go from day to day. His health fluctuates a lot, some day's is a struggle to get out of bed, others he is at the gym:)
He was 22 stone at time of the op partly due to acities(due to have drainage the next day at local hospital). He has lost @9 stones and looks great.
He is now ready to write to the donor family, advised to wait @ 1 year so feedback can be given and to give hime time to be at that stage emotionally. Each new day is a blessing from God.
Take care all of you out there
A
x
Posted 9/6/2009 1:46 AM (GMT 0)

An old post was picked up.  I have hep C and cirrhosis and am a liver cancer survivor.  My doctors know I drink green tea and say "good!"  So apparently it is okay.  I have been drinking it for over 2 years.  I still drink coffee occasionally, but much prefer the green tea.  After I had the right lobe of my liver removed due to cancer, my palate totally changed.  I have become primarily a vegetarian.  However, I recently had a 5th hip surgery and was very anemic following surgery.  I was receiving iron tablets in the hospital and rehab, but they made me nauseous and I actually upchucked twice.  Iron can be toxic to those with liver disease and that's what I feel was happening.  Now that I am home, I have zero energy and am forcing myself to eat meat to increase my iron levels.  I still crave mostly fresh fruits and veggies.  My g.f. in NY just sent me a big box of veggies from her garden which were grown organically.  The tomatoes are ripening.  Can't wait to eat one!  She also sent a large eggplant and a yellow squash, a huge zucchini, and cucumbers (which I gave away as I can't eat them.)  I hope to make some ratatouille next week. 

Ally, congrats on your marriage!  I hope your husband won't need another transplant, but I'm sure you both will deal with it if he does.  From your use of "stone" for his weight, I take it you are in the UK.  That was an unusually wait time for a transplant!

Hugs,

Connie

✚ New Topic ✚ Reply
12