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Schimbare's Transplant Journey

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Posted 12/18/2014 4:22 AM (GMT 0)
Hi Friends,

I am back in the hospital. I got another infection in my belly. The ascites is all chopped up into small pieces, so they cannot safely stick a needle in and pull some fluid out to test, as they fear they will hit an organ, or whatever.

This is hospitalization five or six, for the same general thing. Three times it turned out to be strep b in my blood, and the other times it was some other infection of unknown origin.

My friend brought me in to the transplant center on Monday for an appointment to meet with the transplant surgeon. After that, we went to another liver office to see my primary transplant hepatologist who had asked me to stop by after the appt with the surgeon.

So by the time we get to the second office, I am woozy. There are no chairs, so I sit on the floor. But then someone offered me a chair. My hepatologist was not available. I started feeling sicker, so we took a cab to my friend's house where I could take a nap. Within a few minutes, my fever went up about two degrees. I called my hepatologist who said to come on back to the hospital. He put me on the quick pass to get me in and out of the ER, but it was just so crowded that I stayed on a stretcher that they squeezed into a parking spot that was about 3 feet wide where I stayed for eleven hours. Ah New York City! You can imagine the cast of characters all lined up on stretchers for hours on end. I was not worried about my care or safety. You must be a special type of person to work in a busy city ER. It is like one or two normal sick people, interspersed among the drug addicts, malingerers, homeless looking people and who knows who else. I am not against all people getting care. In fact I am glad that everyone is welcomed here and not put on the street, despite their life circumstances. Could I ask that they all just stop yelling, coughing, moaning and crying "Nurse!! Nurse!!" But I digress.

My MELD shot up from 15 to 20, and they pumped me with a bunch of different antibiotics. My entire mid-stomach area was really hurting.

Yada Yada, it is now Wednesday and I will be here at least through tomorrow, unless my fever comes back, or my blood tests (specifically WBC, RBC and platelets) do not improve. Oh, and now I have little red spots all over my legs. Itty bitty spots that do not itch, nor are they raised. I don't have any allergies, and I am not a rashy type person, so this is sort of odd.

Lastly for this evening, I noticed extra security guards on my floor. Then I saw guards with guns holstered to their hips. I am thinking, oh how fun! A celebrity must be here!

Ummmm. Not so much. One of the gun toting guys has a federal marshal patch. Then I see more guards in the room. So I ask around and I finally get a staff member to tell me that it is a prisoner, not a celebrity. I don't want any gunplay on my floor.

But, I did hear that Blake Lively is here in the hospital having her baby. But she is not on my floor with the prisoner (who yells in pain) and his gun-toting federal entourage.

Sigh.
Schimbare
Posted 12/18/2014 1:40 PM (GMT 0)
So sorry you are again, in the hospital. Hope to hear you go home today. You were having problems with lactulose and HE. I hope you are doing better with that now. Too many hospital visits for you, Susan :(

Did your MELD drop back down after the doctors tuned you up?

I have been curious about your living donor's evaluation in your transplant journey. Is he/she is a match for you? I don't know much about that process of evaluation and timing for the donor. We were told a few weeks. We don't see a living donor story here much. Matter of fact, I can not recall one in anything I have read in our forum! Get feeling better, kiddo. Big Hugs
Posted 12/18/2014 4:41 PM (GMT 0)
Themiz,

My potential living donor has taken the first step. After I was accepted as a candidate, he called the number for donors and he went through a long questionnaire on the phone. They then said they would call him to schedule a three day appointment to do all the tests necessary. His caregiver (his wife) will need to be with him for those days, so not only will he miss work, but they will have to get three days of babysitting for their two small children. Just the very first hurdle for him to jump over!

Since I wound up in the hospital again this week, I called him and asked him if he could call his donor people and ask them to give him an appt as soon as possible, as I was sick of getting sick and I want to move this thing along. He said he would but I have not heard back from him. He would like to do the donation operation as soon as possible so he will feel up to snuff for the summer beach season. They take the baby right to the ocean and put up a baby tent. The poor guy has to bring so much gear...but he and his wife love it!

In news about me, I am being discharged within minutes. My MELD was 15 before this week, 20 when I was admitted, and today it is at 18.

xoxo
Schimbare
Posted 12/18/2014 5:29 PM (GMT 0)
S

We are thinking about you from our city hospital to another...

Sometimes I think we are the only English speakers on the floor...and the other English speakers have accents from a dozen homelands...our own little melting pot.

MIKE HOPING TO BE OUT FOR Cchriztmas....bummer.

ML
Posted 12/31/2014 8:48 PM (GMT 0)
Well it is finally officially official - I am listed.

I had been assured that it was a done deal, but it is good to know that the final meeting has been held and I am good to go to get a new liver.

My brother has stepped forward to be tested as a living donor for me. I am 50 years old and he is 44. His liver should be in good shape - he was never much of a drug or alcohol user, and any excessive alcohol use would have been over fifteen years ago.

He is basically totally healthy. He had testicular cancer 12 years ago. The cancer did not spread, and the offending nut was removed. He then had a course of radiation as a precaution. You cannot even tell that he had a testicle removed except that when he walks he lists to one side. (joke) He has two children who were conceived in the usual way, illustrating how amazing our bodies are to have doubles of some organs in case one craps out on you.

He will have a two day appointment of tests to see if he can serve as a donor for me. He goes in about two weeks.

Between now and then, I will see the dentist for a check-up and cleaning, and I also have an appointment with my transplant hepatologist.

Have a happy new year!
Posted 12/31/2014 10:42 PM (GMT 0)
Wow wow wow turn turn turn

This is a first for us at HW.

Keep up posted every step of the way...what a wonderful New Years eve update.

You brother is your superhero.

Hugs,

Mama Lama
Posted 12/31/2014 11:00 PM (GMT 0)
Good luck! I hope your brother is a match.
Posted 1/1/2015 12:43 AM (GMT 0)
So happy you made the list, Susan. This is a big hurdle. I really hope your brother is a match. What a gift he is to you. Happy New Year, indeed! Big Hugs
Posted 1/5/2015 8:54 PM (GMT 0)
Thank you! Thank you!

My brother and I decided not to tell our parents until it was closer to the time he was going to be tested. We talked about the donation a month a go, or maybe longer than that, I can't remember. In any event, he told my mom and dad on Christmas. Our mom and dad are both divorced and re-married to new spouses. We are fortunate that all four of them get along well, and Christmas is the time that they get together at my dad's house to celebrate with my brother, my sister, and I and our families.

I was too ill to attend the festivities, and my sister decided not to come down from MA with her family, so it was a small party.

My brother told our mom and dad, who were shocked. They had no inkling that my brother might be a living donor for me.

(My sister has sort of freaked out and lived an unusual life with her husband and children. She (among other things) has made changes in her belief system, going from life long atheist, to Unitarian, to Congregationalist, to deciding she was gay, to joining a Mennonite congregation, where she is no longer gay. She now makes her own shapeless dresses and wears a little bonnet on her head. I was very accepting for many, many years, but the ugly dress with the bonnet has pushed me over the edge. Plus she keeps telling the rest of the family that we will go to hell if we do not accept Jesus Christ as our lord and savior. I have run out of tolerance)

Nevertheless, my sister is in fine health, and she is a blood type match for me. Her kids are older, and don't need babysitting, and she does not work outside the home, so she seemed like the likely candidate to donate a piece of her liver to me.

That was not to be. I asked her, and she turned me down. She said it would be too stressful on her and her family. Frankly, I was flabbergasted. I don't like the girl, but if she needed a kidney, I'd be first in line. She is my sister! And given her Mennonite beliefs, I cannot see how she can claim to live her life as Jesus intended, and then not share an organ with me. I don't think Jesus would have told his sister that she could not have a piece of his liver. To add insult to injury, she again told me that I would be going to hell for all of eternity if I did not accept Jesus as my lord and savior.

Families are crazy. I have worked hard over the past year or so to solidify some of my non-family relationships, and invite them to be "family" for me. This has worked out very well so far.

Schimbare
Posted 1/5/2015 9:21 PM (GMT 0)
Religious nuts have caused every war and most of the problems in the world. Your sister sounds intolerant. What ever happened to "do unto others."
Posted 1/5/2015 10:18 PM (GMT 0)
Amen, Brother David!

Medically, I am going downhill. I have two hernias. An umbilical hernia and another hernia located far down on my abdomen, almost where my right leg meets my body. That is the problem hernia.

It used to stay in. Or I could use a wide elastic belt around that area, and that would keep my intestines from popping through the muscle wall. But now, I cannot stand up without it popping out. I was just sitting up on the couch, on the phone, and I started laughing, and poof, it popped out.

I do not generally feel it when it is popping out, but within 30 seconds or so, the pain starts spreading all over my stomach -around the umbilical hernia, which then also pops out more than it usually is. If I do not lie down and get that lump back in, the pain gets worse and worse, and more and more intestine starts coming through the hernia hole.

Twice, when the hernia popped out, I just kept doing what I was doing through the pain, figuring I would just push the thing in when I was done, but I have learned that that is a big mistake. Both times I did that, I wound up in the hospital needing pain meds to relax enough to get the giant sized lump of intestines to go back in where it belonged. It was very bad. I was yelling in pain for a couple of hours until they got the morphine into me. So, I am not doing that again.

Now, the opening in the muscle wall must have enlarged, because the darn thing pops pretty much any time I try to move. I cannot do anything other than sit or lie down without it popping out. I am a stay at home mother. I cannot do my job with this condition. It is extremely frustrating.

I have a 15 year old son who is the best kid ever. But he has not been raised to make meals or run a home. He knows how to do most tasks around the house, but he would prefer not to do them. Plus, having him take more responsibility puts even more stress on him - just adding to the stress of having a mother who needs a liver transplant. He works hard in school and in general, he is growing up very nicely. My ex-husband and I divorced several years ago, so we already put him through that trauma. Now his mother needs a new liver. Sigh. Oh and now she can't walk. Great. Just Great.

Anyway, I've tried some belts and tight undergarments to hold the hernia in and they simply do not work. Do any of you think there might be some sort of special physical therapist, or someone who works an making braces and the like for handicapped people that might be able to help? I called my hepatologist, to see if he had any ideas, but he has not called me back yet. In the past, I could live with the hernia. Now, the hernia is causing a paradigm shift in the way I am going to have to live my life. I am going to need WAY more assistance. OMG, I hate having to rely on others like that.
Posted 1/5/2015 11:00 PM (GMT 0)
It sounds like an inguinal hernia. Right? Are you using a support like this?

www.braceshop.com/fla-soft-form-hernia-belt.htm?utm_source=BingShopping&utm_medium=shopping&utm_campaign=FLA%20Orthopedic%20Braces&origin=bpa&unique_id=29045&gdftrk=gdfV28018_a_7c2568_a_7c11941_a_7c29045#product-reviews



Some of us non-liver folks have hernia's as well :) The supports are not very girlie...but they do work. And I use Spanks or Assets for some minor core issue I deal with. Hernia's are a big problem for liver folks....good topic. Care to share what you have tired?

As an aside...which tx center did you settle on for dual listing? (if your brother is not a match).

Sorry you feel so miserable, kiddo. I live with one who is sick too much of his days. My heart goes out to you, Susan. Big Hugs
Posted 1/6/2015 3:24 AM (GMT 0)
Thanks for the link, themiz. I ordered the stupid thing. Today must be Bad Attitude Monday.

I have not decided where else to list, should my brother not be a viable donor. Methodist in Houston would probably be the first choice, since my bf can work out of his company's office there. But aside from the published data, I'd like to get some personal information from those who might have been transplanted there.

It really is difficult to ascertain the average MELD score at transplant for any given center. I can figure a range, but I'd like to know how the actual patients at a given center felt about their wait time and their MELD score at transplant.

I did read that I can simply call the center and they should give me the number, but I am not ready to do that. I will wait a bit more and see how it goes with my brother.

Thanks again for the link. Schimbare
Posted 1/6/2015 3:34 AM (GMT 0)
themiz....who can believe there is something for everything. so sorry ladies...what a mess. hugs, ml
Posted 1/10/2015 1:09 AM (GMT 0)
Greetings! The biting cold has finally arrived in NY. Fun!

I was at the hospital the other day for a bunch of appointments. They gave me a CT scan and an MRI. As I mentioned previously, the act of standing, or walking or hopping up on a CT scan table causes the stupid hernia to pop out.

It might sound like I am just a complainer, but the fact is that when the hernia popped out, I could not get it back in, and so the pain just got worse and worse. They were in a big rush in both the CT area and the MRI, so the hernia stayed out the entire time. I almost started crying in the MRI. The pain was very bad. I was going to ask them to stop and wait for me to massage the lump back in, but really, the thing was just not moving.
I will finish this later.
Posted 1/10/2015 6:32 PM (GMT 0)
Sounds miserable :( Maybe that unattractive belt will help some, when it arrives? Let's hope so. That pain stinks.

How did the CT and MRI look? Are these for the pre-transplant eval stuff? Themister has an MRI this week. We get results at the Hepa visit a couple hours after the MRI and labs. I love being able to get his labs in real time. We already know his MELD and numbers before meeting with the tx coordinator and Hepa .

Sorry you are freezing in NY. Here in AZ we have been in the mid 70's. It is cooler today...sweater weather :p Love it!! Big Hugs
Posted 1/10/2015 6:39 PM (GMT 0)
Schimbare,

How awful....what an experience to have to gut through...

At least the MRI will show exactly where the hernia is...I wish they could give you some relief.

The days with the testing and doctors appointments are exhausting for those with advanced liver disease. You want to get as much done as possible after the trip int hte city has been difficult and tiring, but it is exhausting for you, I know. Since you don't drive, can they medicate you some? For the pain at least?

Let us know how all this worked out.

I have a question for you. I didn't know anything about this...whether there is any issue with a live or cadavver doner being a different sex? Is it usual. I know you are hoping your brother will be a match. Will that mean anything in particular long term?

Best to you.

Hugs,
Mama Lama
Posted 1/17/2015 12:19 AM (GMT 0)
Mama, I don't think the sex of the donor matters at all.

You are right, I do try to cram as many appointments as possible into one day. The drive to NYC takes two hours at least. It is 43 miles away from my home, but the traffic is obscene. The tolls are $15 and the parking is $30. So $45 for the day, four hours in the car there and back....at least gas prices have gone down!
Mass transit would mean a drive to the train station, where one has to circle and circle for the $10 parking. Then take the LONG walk to the train. The train is $15 one way. Then in NYC I have to take another LONG walk to the taxi stand. There is no subway stop near the hospital. The cab costs around $20. The whole thing is a giant pain in the neck.

It is totally exhausting on the days I must go in. Several months ago I stopped going in and out by myself. I was too tired to drive safely.

My parents and their spouses are not helpful in any way. When I was in the hospital for eleven days last year, neither of them came to visit me. They both said that it was too difficult for them to visit me. There are many ways to get to NYC, including taking a town car. It is very expensive to take a car door to door, but jeez louise, eleven days with bacterial peritonitis caused by ESLD was not enough to get them to spend the cash? I actually had a huge yelling incident on the phone with my dad when I was in the hospital. It was embarrassing. I think the entire floor could hear me yelling. He was making excuse after excuse about why he and his wife could not visit. After that, I decided that it was best to limit contact with all four of them. It is much, much less stressful.

The best and most wonderful part of going in and out of the hospital is that my amazing and unbelievably kind boyfriend, and my incredible, caring and giving friend are happy to accompany me. So while the actual travel is not fun, the company is great! I could not have better caregivers.

Last time we went in, my friend had to push me in a wheeled chair because I could not walk the long distance from one appointment to the next. She is a tiny thing, and I am 5'7" in a big-boned sort of way. The chair was bright fuchia and it was a bit tricky to push. We piled the purses and winter coats on top of me, and my poor friend had to push me. We were laughing so hard. She kept crashing me into things. We made a small but comical scene.

Schimbare
Posted 1/22/2015 5:15 AM (GMT 0)
Updates - I went for the MRI and CT scan and to meet with my transplant hepatologist on January 8. Blood work and all test remained fine. I am good to go.

I received the hernia belt I ordered, and unfortunately, it does not keep the hernia in. So that was a good try, but no go. Sometimes I can fasten a canvas
belt around the area, and tighten the D-ring buckle and that will work for a little while, but it has to be so tight that it starts to dig into me and I have to take
it off.

My brother went through the testing to become my living donor on Wed and Thurs, the 14th and 15th of January. He was a bit taken aback at how serious they were and
the multiple warnings that in a worst case scenario, he could be out of work for three months, which he really would not be happy with- though it is not like his
company would let him go. He is a loyal, hard worker and he would not want to leave his company in the lurch for that long without him being there. Nevertheless,
he was totally on board with continuing as my donor.

As I mentioned, the lower right hernia just will not stay in at all. I can walk about five steps before it pops out. If I don't stop and lie down and push it back in,
it just gets worse and worse, protruding more and more as the pain radiates all over the place, but the umbilical hernia seems to have the most pain. In the past,
two times I waited too long to lie down and tend to the hernia, and then it was so distended and so painful I had to go to the hospital and get morphine. Over
several hours, the hernia would slowly go back in. But the excruciating pain would last for at least two to three hours before we got to the ER and got some morphine.
I was not going to do that again. If the hernia popped- I stopped and put it back in.

Anyway, I was a nervous wreck while my brother was being tested. I did not sleep well. Then came the waiting for the answer. Waiting for news such as this is extremely
difficult. It is not even like I could go out and do something fun to keep my mind of the wait. We did see a movie, but just getting from the car to our seats meant
I had to stick my hand down my pants three times to try and shove the hernia back in. Fun!

Tuesday, Jan 20 I was really tired and went to bed and slept very soundly. I awakened to use the bathroom, and I made the very bad mistake of doing some
serious pushing to expel what it was that I wanted to expel. I kept my hands on the hernias, keeping them from popping, but I pushed too hard. I got up from
the toilet and almost passed out.

I made it to the couch, but blah blah, both the lower hernia and the umbilical hernia were popped out, and as I tried to push them in, they only popped out more.

Then my entire digestive system filled with gas. I was burping and farting like nothing you have ever seen. Or heard. There was so much gas in me that my entire
midsection was getting hard like a rock. Then I started throwing up. I figured I had either burst a varices or strangulated the hernia(s). I was relieved that the only
thing I threw up was air. Giant gas bubbles of air as I retched. I actually was glad it was not blood. We called the transplant center and they said to have the situation
assessed at the local hospital.

I am going to send. This is long enough.
Posted 1/22/2015 6:01 AM (GMT 0)
I had been at home in pain since 1am. We left to go to the local hospital around 3:30am. The local ER has NO idea what to do with me when I arrive with
various issues, despite that they have all the records from the many times I have been there with liver related issues. I tell them to just look at my records -
How difficult is it to check the computer? But no. So Paul and I tell them what to do. When we tell them I have two untreatable hernias, they invariably say,
"do you have a surgeon you like?" Then we explain that i would DIE if put under the knife because of my ESLD, but I don't think they ever believe me.
Hernia = Surgery. sigh.

They actually took me in very quickly, and took like ten vials of blood and offered me zofran and morphine, and they gave me a small amount if IV fluids. I did
not want them pumping me full of fluids that would only wind up as edema, etc. They gave me an x-ray and a ct scan which showed incredible amounts of gas,
but no strangulation or burst varices. I was very relieved.

After several hours, the pain subsided, and I had burped and farted out much of the gas. My entire midsection was very painful, but the hernias were in.
I got copies of my blood tests and urinalysis and the reports from the ct scan and MRI. My bili was up a point or two from it's normal number, but the creatinine was right in range. All the other blood
work showed my normal pattern of abnormality. So, good.

I was glad to have my blood drawn so that I could see if my MELD had moved at all. But local-yokel hospital did not run an INR, nor did they test for a platelet number.
(my platelets have been way low lately)

Um....Hello!! Cirrhosis? Listed for transplant? NO ONE thought to order such a basic liver related test? And you may recall, they were ready to cut me open to
fix those hernias. Who cares if I don't clot? OMG, frankly, I was upset. I wanted that INR number. I cannot imagine why the MD would not order a clotting test
for a person with ESLD.

I am glad i have a hospital within ten minutes of my home. They were great when my kids had croup and needed some help breathing, and they stitched
up my kid's toe nail when it got ripped off. Stuff like that.

I am glad to be in a place where they can test my blood and give me morphine and zofran. I am grateful. But if I was unconscious or without my bf, those
people could kill me!

We got home at noon. All of the support people for my kid and the dog, the cat and the chickens were totally there, and another neighbor even drove my kid to
and from a social event. He could have skipped it, but they are so kind to help out with extra things like taking the kid from place to place. All of my support
people are wonderful.

So that was Tuesday noon. Today (Wednesday)I am still in pain, but much better than I was. My brother calls at about two thirty to tell me he cannot donate
his liver to me. He is in perfect health, thank God, but his liver lobes are 80%, 20%. Since they have to take an entire lobe, one of us would have to have the
20% lobe, and that is not enough liver to live on, for donor or recipient. So, I will not have a living related donor. BF and I are very sad....of course we knew
there was a high possibility that he could have an issue to prevent donation. They said that about only 20% of living donor candidates are actually accepted.

But he is so healthy, and relatively young (44), we hoped against hope that he would be accepted. But it was not to be.

Tomorrow is another day. On to Plan B.

Shimbare
Posted 1/22/2015 2:24 PM (GMT 0)
How disappointing :( I am so sorry your brother is not a good match. The ER hospital visits are exhausting. I guess you can not get something for pain and nausea to take at home? Pain meds are messy with HE though, so not certain what solution you might be able to find to get through the hernia pain.

On the positive side of this, your support network is going to work out well when you get to the top of the list. Big Hugs
Posted 1/23/2015 12:47 AM (GMT 0)
I still do not feel well at all. My stomach hurts, pretty much all over. Whenever I eat, it feels worse. I burp and burp and burp. I am exhausted.
And I cannot walk more than a few steps without having one or both hernias popping out.

I want to get going and go out of town and get listed. I am waiting for a call from the transplant hepatologist as to which center he recommends.

Seriously, this listing and waiting system of organ allocation is for the birds. I was a teacher prior to becoming ill. When I became ill I started studying
how non-profits work, then I started volunteering for NY-ALF. I was quickly asked to join the board, and soon after that, the board asked me to be the
chapter president. I loved doing such important work.

I am trying to figure out what I might do with my life post-transplant. I think public health policy might be where I want to work.
Schimbare
Posted 1/23/2015 3:08 AM (GMT 0)
I can't believe your docs can't do something about the hernias.
Posted 1/23/2015 4:02 AM (GMT 0)
David, I think I will ask again, though with a MELD around 20, some HE, some fluid in my lungs, some ascites and edema, etc., I don't think they want to
touch me for fear of upsetting the apple cart, so to speak.

I will ask again when I talk to my hep about dual listing.

themiz, I used to have a few oxycodones (or something like that) around the house that the liver MD said I could use in an emergency painful situations.
But I used them all up. Maybe the transplant hep could give me a script for a small bunch to keep on hand at home.

My support network is the best. They all know what to do - even my ex-husband can be counted on to do the right thing. Shocking!!

The chicken minder brings the most delicious treats for the girls - leafy greens, fruit, anything old and funky from the fridge. Those girls
are very happy.

The dog goes home with the chicken minder, who has five dogs of her own. My dog is in doggy heaven with all those playmates.
Plus, the dog minder and her husband walk the dogs to the beach to run AND they all get ice cream every night.

We do not yet have a cat minder. But I think I will ask my brother to keep the cat if my bf and I have to go out of town for a while for the transplant.
My brother used to feed the feral cats by his office, then he would catch them and have them spayed and neutered and return them to where they
lived. He was up to seven cats as pets before he met his wife. We told him he would never find a woman with that many cats. LOL He is a good guy despite
his ill formed liver.
Posted 1/31/2015 5:29 AM (GMT 0)
Hi All

So the burping/farting/massive gas thing has just gone on and on. The hernias have been out of control. That was until about Tues the 27th - one week since I
spent a few hours in the ER due to the gas/hernia pain.

I was ready to go to my NYC hospital. It was just not ending. I called my MD who said I should come in and see him on Thurs - yesterday. Well, by then the
burping/gas thing was abating, but I had a new problem. Completely watery diarrhea. No pain, though. Sigh.

Today, Fri, I still have the poop issue, and the bloating has subsided. I can't take my meds because my digestive system is such a mess. MD said just to take one lasix
which seems reasonable. But I am not taking the lactulose nor Xifaxin, so I am getting stupider, which is not pleasant.

I had to send my son to his dad's house. I did not want to appear confused or in any way not like my normal self. But my son much prefers to be here, and he is
normally a pleasure to have around, but now I feel so weak, and woozy that I think it is best to take a break from him. But I am sad.

The MD thought perhaps I have c-diff so my disgusting watery stool is being tested as we speak. I feel so weak, but fortunately I an not in any pain.

MD wants to look at my brother's MRI or CT scan or whatever in hopes that they made an error in measurement of the lobes. You may recall that one of his lobes
was under 20% of the total liver, while the other lobe was over 80%. I looked it up, and this is very rare. MD would very much like to use my brother's
liver. I appreciate that he is going to review the test results and re-measure the liver.

My test results from all the pre-listing tests in NYC were sent to Mayo Jax yesterday, I think. They will review everything and hopefully call me for an appt.
I am having trouble getting Ochsner to call me back, which is not a good sign.

As of yesterday, my meld was at 17.
And so it goes...
Schimbare
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