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urgently need harvoni or generic HCV 1a cirrhosis with couple of varices

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Posted 4/2/2015 11:14 PM (GMT 0)
hi there, new here.... urgently need help locating harvoni at a reasonable price, or generic.

My daughter has HCV 1a for a couple decades, with cirrhosis diagnosed 1 year ago.
recent scan showed a couple of varices.

she is in europe and has NO USA insurance.
She has fatigue, but is not jaundiced.

She really needs to do the 24 week treatment ASAP to get rid of the HCV so she can give her liver a chance...

2 QUESTIONS:
first, HARVONI or GENERIC TREATMENT... HOW TO GET IT FREE or PAID, including GENERIC IN INDIA

please please write here, and also contact me if you have any info on where to get the treatment.

Europe is scandalous.... no access to harvoni ... it is too expensive for the health authorities.so the possibility of state funded treatment is nearly zero.

after years waiting and waiting, it is terrible that the treatment IS IN THE WORLD, BUT not available.... and now she has to combat the cirrhosis too..

We have heard that generic HARVONI is/will be (?) available in INDIA? we have friends in INDIA and could travel there, but need to be reassured that it IS available and is REAL medicine and not fake!

IN THE USA we have also heard that one can approach gilead and ask for special reduction due to NO insurance... HAS ANYONE DONE THIS or KNOW about THIS?

thank you

SO...my 2nd question...

has anyone tried adipose stemcell treatment in switzerland/serbia or russia to reverse cirrhosis?
OR any other treatment?

some people have told us to get rid of the virus FIRST, then reverse the cirrhosis...

others say that treating the cirrhosis first gives the liver more of a chance... and make the strain on the portal vein LESS means potential of reducing the varices... and giving liver a chance to regenerate...

TO WAIT during 6 MONTHS OF TREATMENT means the cirrhosis/varices continues to harm the liver and the body..

please please help with information...

thanks everyone

AND ALL THE BEST TO EVERYONE DEALING WITH RIDDING THEMSELVES OF HEPATITIS or any other disease..
Posted 4/3/2015 1:13 AM (GMT 0)
I replied to your other post about stem cells. If you can keep all of your posts in one thread (either this one or the other) until we get to know you, that will be helpful . We won't bounce around trying to know you and follow your daughter's history.

about obtaining Harvoni. Check with Gilead Support Path for information in your daughters country. Let us know what country she is in and someone may have some information. Gilead numbers are in our Hepatitis Resource sticky post, along with other useful info. Hope that helps.

I know some people in India have posted here looking for info, as well.
Some recent info and you could look up this company in India, perhaps?
www.bidnessetc.com/35438-mylan-inc-will-distribute-gilead-sciences-inc-sovaldi-and-harvoni-in-india/

Others will chime in and let you know if they have anything new to offer. I hope soon, everyone with Hep C will have available treatment so this virus is eradicated.

I don't know anything regarding stem cells being done for cirrhosis. With cirrhosis, the only cure I know of is a transplant (at this time.) Perhaps some here know of research or trials?

Again I welcome you. Big Hugs
Posted 4/3/2015 3:13 AM (GMT 0)
What country is your daughter in? She could come home and sign up for insurance here. Pre existing conditions would allow her to get treated in the US.

A friend who has his liver transplant in Britain, is waiting for treatment, and told me he has heard that the generic harvoni is sub par to the real thing.
Posted 4/3/2015 2:12 PM (GMT 0)
Most countries are limiting their financial exposure to insurance costs by treating ONLY those most ill. When the start at the top of their pile of sick folks the cutoff when they reach their budget number.

In some places they are treating those with cirrhosis as the cut off. In those countries or provinces, your daughter might qualify if she has insurance in that jurisdiction.

With tight budgets medical tourism for treatment is tricky unless you have a bushel of money.

The harvoni in the US is $800 a pill retail. Wow. Do the math!

I know the UK is really strict.

There are some Gilead programs as themiz pointed out.

This is a huge problem worldwide, notably in India, China and Egypt.

If your daughter is following a healthy diet, hydrating, taking a beta blocker for portal hypertension and avoiding ascites, edema, and varies she may have time for the drugs to become more widely available. She needs insurance somewhere...choose one and move her If yOu can.

Unfortunately this is not a unique tale. Hep C is a worldwide problem.

My partner was treated in Florida US in 2014 and is so fortunate. He is 4 years post transplant and getting rid if Hep C was so important as the new liver shows damage already.

Best.

Mamalama
Posted 4/4/2015 2:48 AM (GMT 0)
I have heard that they finally began to produce the generic Havoni in India for a much lower price then the brand medication in the US. Giliad had agreed to work with the pharmaceutical companies in India to produce the generic version. It would be really terrible if the generic version was, as David's friend claimed, not as effective as the brand, especially if Giliad had anything to do with producing the medication. If anyone learns anymore about this please post.
In the meantime, let us know where your daughter is Helpingothershelps. If possible, I agree with David. She should come home, get health insurance and get treated if possible. Because medicine is all in pill form she can travel and still stay on the medication.
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