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is dbab still on here?

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Irritable Bowel Syndrome
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Posted 7/25/2009 2:36 PM (GMT 0)
I was doing a search and found dbab who was a veteran member a few years back. Looks like we have very similar diagnosis with colitis, IBS, AND diverticulitis, some other auto immune dzes. It is comforting to know that there is someone else out there with similar problems. I don't have just straight IBS/IBD.I have gotten some great help on the UC forum. I am on UC meds that have helped a lot. I still have the IBS though and I swear it is just as bad if not worse than my IBD. Of course, I do believe all of this gave me diverticulitis too. Sigh.... I was wanting to hear your opinion about my question on antidepressants and IBS/IBD. If you are still here. I am a little frustrated right now, in case you couldn't tell. LOL... Thanks so much!
Posted 7/29/2009 3:35 PM (GMT 0)
Hi jeanneac,
Des (dbab) hasn't been on here in a long while.  It's unfortunate because she was a great asset to the site. But who knows, maybe we'll get lucky and she pops in. :-)
Take care,
Lil
Posted 7/29/2009 9:21 PM (GMT 0)
Well, let's hope she's not been on here because her guts have been doing so well she's been off having a good time!  You can tell when mine have been giving me problems for several days in a row; I get on here and talk a lot.  LOL.  It seems to help a little to talk about it, plus there's not a lot else you can do while waiting for the next trip to the bathroom. 
Posted 7/29/2009 10:20 PM (GMT 0)
Yea, I know what you mean about talking more when not feeling too hot. But, I do like to check in and read up on things.
Posted 8/10/2009 4:13 PM (GMT 0)

Hi Jeanneac... So nice to know people are still looking for me :)  I'm sorry it took me a while to get on.  Lil sent me an email when you posted but sometimes I don't always get notifications from it so I saw it when I checked my emails.

I'm still here, don't post as much and I'm usually  on the Lupus forum since that is what's plauging (I know that word is spelled wrong) me mostly although I am still suffering from IBS (constipation).

I'll be happy to answer any questions for you if I have the answer.

Posted 8/10/2009 5:46 PM (GMT 0)
HI dbab,

Sounds like we could be genetic twins almost. The lupus hasn't hit me (yet.) I do have localized scleroderma as well, but I didn't put it on my post. Guess I should add it. Do you have much trouble with the scleroderma these days? Does your scleroderma flare up when your colitis is flaring or is your colitis not an issue anymore? I feel it is all related, just my gut feeling.

I got the scleroderma right after my first colitis attack back 5 years ago. I had some problems with the plaquenil so I quit taking it. It upset my stomach. Now, most of my issues do revolve around the colitis and stomach problems. Funny how when I started treatment after a proper diagnosis of colitis in January, I have not had much of a constipation problem. I think my constipation was a symptom of my colitis.

My localized scleroderma consists of these odd red patches mostly on my trunk and chest. They just look like patches of sunburn but if they are exposed to the sun, they do turn brown.

 

Posted 8/10/2009 6:08 PM (GMT 0)
Yeah, it really does sound like we have a lot in common.

I actually have 3 "patches" of morphea (localized scleroderma).  One on my back/side and two on my lower left abdomen.  They look like scars/old burns... ugly.  I get pains there but never know what is causing it.  I've gone through so much testing that I'm so tired of it.  My colitis isn't bothering me and they stated it was idiopathic although my GI doc has a suspicion that it was caused by my UCTD/lupus stuff.  I've been taking the Plaquenil for a few years now and it really is helping with the joint pain/fatigue although I have had to add on other meds to it.

I'm due for my colonoscopy so I need to stop procrastinating LOL smilewinkgrin

Posted 8/10/2009 11:25 PM (GMT 0)
I'm sorry, what is UCTD?? Is it some kind of ulcerative colitis?

My morphea is pretty bad. I have large patches all over the stomach that have merged. It is like a map! I swear sometimes when I look at what all I have, I wonder why I still try to work. I am stubborn and not ready to throw in the towel yet. These last few years have been pretty bad and if I didn't have a very flexible job, it would have been a lot worse. I am so grateful for the job and a great husband.

Is your lupus the biggest health issue that you experience then? They have tested me and so far, all my markers are normal. My sed rate is high but that is it. Sounds like you are almost tapered off the prednisone though, so good luck with that~! My latest challenge has been some build up in my uterus. I am post menopausal, so they want to do a D & C. I am grumbling about having to get it but it is probably just a hormonal imbalance that caused it but they have to make sure it isn't abnormal tissue at my age.

Actually, the last prep and colonoscopy I had were a breeze. I started my prep early in the day so I could sleep instead of at dinnertime.

Good luck with the colonoscopy! yeah

Let's stay in touch. It was nice chatting with you.  

jeanneac

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