Any1 have ibs AND ibd?

In about 2005 I was diagnosed with IBD (Inflammatory Bowel Disease). I had the symptoms, bleeding, D, all that fun stuff. So, I take the meds, get rid of those IBD symptoms but I always hit a wall with it where I get so far into remission with meds but cannot get rid of some other symptoms, like bloating when I eat ANYthing, pain when digesting, and stuff like that. Basically eating is just an unpleasant thing for me. So after crying in the dr's office enough times I was finally officially diagnosed with IBS as well. So the ibd I can manage with meds, IBS is a whole other ballgame for me. I cannot manage it or get it under control. I have days when I notice I feel alright, eating doesnt hurt, but most of the time I am in some kind of pain ranging from slight discomfort to absolute agony depending on what I eat.

I started the SCDiet over this past summer after my last colonoscopy but cant manage to stick with it, I miss treats, especially chocolate, TOO much. I am going to try it again, start all over and see how I get on bc the IBS is just starting to get to that point where I cant manage it after having experienced a small amount of relief just before christmas.

Can I just ask what is your experience with IBS? Ive concentrated on the IBD side of things but now Ive got that under reletive control, I need to begin understanding ibs better. I like to hear personal experiences. My gastro issues have taken over where my focus in life is concerned. Im a 33yo wife and mother of 3 awesome kids. I swing from being ok, managing emotionally and getting on with it to being somewhat depressed. I sometimes end up sleeping a lot, being sharp tempered, and its just hard being normal and my normal healthy happy self. Im a pretty outgoing, social sort of person, extroverted by nature. With these gastro issues Ive become antisocial. I hate it when people come around and there are times when (I feel terrible for this one) I dont want to be around my kids. I feel like I hate everything.

Im off to make some chicken soup now. Thanks for reading and 'listening' to me complain about this... I look forward to hearing everyone's responses.

Genifer I agree with Kazbern, come on over to the Crohns forum. I do have some IBS with my Crohns though. Thats mainly caused by my resections and the fact that I don't digest the same anymore.

Have you ever kept a food diary? That might be a good idea so you can keep track of which foods bother and those that don't. I personally follow a low residue diet all the time as this seems to work best for "me". I find the SCD diet just too restrictive for me, and honestly seems as if its too much work. But it does work for well for some. You just have to be really compliant to it, for it to work best.

One thing that helps my IBS symptoms when I have eaten something that doesn't like me, is Librax. Its in the antispasmotic family like Bentyl and Levsin, but this one is specifically for IBS. It really helps to calm the crampy guy down well also has an anti anxiety med in it that helps to calm your spirits some too. Hope I have helped a little. Hugs!

My first diagnosis was proctitis (c. 2001). It took another two years to get a more general "IBD" diagnosis, and then another two years to figure out that I had inflammation in the cecum and my doc and I started treating for Crohn's. That was an unpleasant 5 years.

IBS/IBD in my own experience and analysis is caused by poor circulation of blood and energy in the intestinal region. This results in accumulation of toxins (any substances that one's body cannot use but cannot rid off) which leads to inflammation that does not subside easily causing pain/discomfort in intestine, particularly colon/rectal area.

Try Curcumin capsules (high absorbability type like Super Bio-Curcumin from LEF) and Black Fungus (Auricularia auricula-judae), Boswellia.

Take them with strong Ginger soup for maximum efficacy.

In my case, it took a few weeks to 1 month to see significant effect and a few months for what I feel like a real cure. I cannot say it will apply for others but given that 3 of the herbs are in fact food-grade, it is worth a try.

When one is suffering from IBS/IBD it is living hell at times with the distress of bleeding and inflammation, pain and emotional depression. One does not feel like a human being. I know about this having been a sufferer for over a decade.

Other good herbs will also help to tone up the body and may improve IBS/IBD but try these four first.

I never gave up searching for a cure even though my doctor waved her hand in my face and say there is no cure. Why give up if giving up means more suffering including the unthinkable prospect of having the colon removed?

I rather trust in Nature's pharmacy, have faith that God has prepared the remedies for us. One just have to search hard enough and be eclectic by daring to try (cautiously of course) natural remedies from various cultures : China, India, Middle East ...

Of particular surprise is Black Fungus which can treat the disease. This the herb did by improving blood and energy circulation and removing toxins from the intestines. This knowledge is in fact known in China for more than 1 thousand years.

Unfortunately Black Fungus is usually not listed as a TCM herb because it is used more as a food. The result is that despite searching exhaustively through herb databases on the Internet it took me quite a long time to find out about its powerful curative properties.

This power of this common food took me by surprise given that years back I had taken another fungus, Lingzhi spores, an expensive herb said to improve micro-circulation for over a year without similar effect.

Black Fungus can be soaked and cooked in water with molasses and ginger and eaten. Black Fungus can be roasted and eaten to improve its efficacy to stop bleeding.

As regards the SCD diet, I bought the book and tried the diet. It works to some extent but to me it does not treat the root cause of IBS/IBD.

My own theory about the root cause and how to treat it is of course just a personal opinion based on my own experience. I write all these in the hope that other sufferers might benefit.

I have planned for a decade to start a blog on this topic to help other sufferers should I find a cure. It was a long and hard journey to a cure. But now I think a blog would be too long-winded. I just want to get the information out to as many desperate sufferers as possible and hopefully some will benefit from it.