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Unbearable Pain!!

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Irritable Bowel Syndrome
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Posted 6/29/2011 9:21 AM (GMT 0)
Hey guys, this is my first time on these forums so bare with me.

Since i've been 13 (almost 18 now) i've had digestive problems.

They started by, if i drank liquid in the morning (even water) i got horrible horrible cramping and diahrea. It has become worse since then.

Nowadays,  i can't have any liquid in my stomach if i haven't eaten, otherwise i get bad gas, particularly in the morning, and it lasts all day.

If i get less then 4 hours sleep, i can't eat or drink anything that day, if i do i'll get terrible diahrea and cramping so bad i start moaning in pain.

I have had CT scan on my intestines, biopsies for coeliac's, Chron's, lactose intolerance, i've had colonoscapeas. I've had blood tests for iron deficieny and other things i can't remember. I've seen a hypnotist, a gastrointerologist (who couldn't identify it and said it must be IBS) and a Kinesiologist, none have helped.

The main thing that worries me, is that when i poop, i can never finish, at the start it's fine, but the more poop i push out the more i start cramping, to the point where my body stops pushing it out and no matter how much i want to, i can't keep pushing because the cramping is just too severe. My body cramps sort of the intestinal area, it's hard to describe, it's so overpowering it's hard to pinpoint the exact area.

I've never had a bloody stool that i can remember either.

I've tried everything i can think of. I'm out of ideas. Help guys?

Posted 6/29/2011 9:29 AM (GMT 0)
Welcome to HW!
Glad you have found us.
When they diagnosed IBS , were you started on any medication to help the cramping? An antispasmodic of any type?
Are you still seeing the Gastroenterologist?
Posted 6/29/2011 9:32 AM (GMT 0)
I was given Colofac, did nothing.
Posted 6/29/2011 10:40 AM (GMT 0)
Anyone have any ideas?
Posted 6/29/2011 12:19 PM (GMT 0)
I have tried that before. Buscopan works better for me. I have been put on Amitriptyline 10mg for IBS - D as it helps with pain and slows the bowel down.
Have you been tested for Bile Salt malabsorption? That can cause diahorrea.

People on this site can only offer advice on personal experiences. There are no medical professionals here.
I hope that people can help and offer adviceon your symptoms.

A good probiotic can help with diahorrea also - have you tried that?
Posted 6/29/2011 3:28 PM (GMT 0)
I have tried Buscopan, it did not help.
I should have been more specific in my opening post. Too much liquid and little sleep gives me diahrea, but even if i have a normal amount of liquid and a great sleep, i still can't poop without the cramping/pains. And that is what i'm most worried about.
Thank you for your feed back.
And yes i do know there are no medical professionals here, i have seen many medical professionals and they've been useless so far. So now i'm asking regular people.
Posted 6/29/2011 6:32 PM (GMT 0)
Sometimes I think regular people suffering from the same symptoms or similar symptoms are a God-send!

You have come to the right place. I'll do my part to keep your topic current by replying. Wish I had answers for you. All I can say is the motto - you are what you eat - is so true with my now touchy gut. I can always tell when I've eaten an offensive food. My challenge in summer is all the fresh produce - it's so tempting to eat it all but then I pay for all that roughage. I seem to digest simple foods best, from a low residue diet and often canned fruit over fresh is best for me.

For now, keep a food diary/journal and record every single thing you eat and drink in a 24 hour time period, if you took meds, vitamins, etc. These are all useful details. A food journal helped me greatly, by pin pointing what I should and shouldn't eat.
Posted 6/30/2011 7:07 AM (GMT 0)
 

Hi AussieFtw,

Have you had any parasite or bacteria testing done?  To my surprise, I didn't have intestinal parasites, but I did have E.coli (non-deadly form), Klebsiella, and Pseudomonas in my gut.  I received Rocephin injections to address the bacteria.  The lab I used is www.parasitetesting.com.  They're in AZ (USA).  They can do a complete stool analysis and also a pathogenic bacteria test.  They only send results to medical professionals, so you can do the test at home, but you need a doctor or chripractor to intercept the results. 

I wish you the best in your search for answers!

 

Posted 6/30/2011 7:40 AM (GMT 0)
Thank you very much Marsky. I did try a food diary but i kept forgetting to write in it haha.

Lyme14, I'm not sure, but i've had this problem for years, wouldn't the bacteria/parasites be dead by now?

2 weeks ago i started to go somewhat vegetarian, i've cut out all meats except seafood and chicken. The cramping has reduced significantly, i ate a cheeseburger from McDonalds the other day without thinking that it contains beef, and i had huge cramping that day, so i've cut red meats and processed meats out of my diet.
Posted 6/30/2011 8:23 AM (GMT 0)
 

Parasites and bacteria live off of a host.  If you have them, they won't go away on their own.  I had Lyme, Babesiosis, and Mycoplasmas for 15 years before they were tested for, found, and treated.

Posted 6/30/2011 9:24 AM (GMT 0)
I find that fatty foods and processed foods cause me a lot of problems. It is a good idea to keep a food diary and at least you are noticing some differences when you are cutting out certain things.
Make sure you take a good multivitamin also when you are cutting out foods.
Posted 7/1/2011 1:42 AM (GMT 0)
Oh wow. I did not actually know that Lyme14, thank you! And having those for 15 years must really suck :/

I will do that, thank you Tori.
And yes I do need to start taking multivitamins, thanks for reminding me!
Posted 7/4/2011 3:52 AM (GMT 0)
Any more help?
Posted 12/27/2011 7:01 PM (GMT 0)
Hey Aussie:

I just came across your post while searching for my own cure to a similar problem. I too forget to keep the food journal. Speaking specifically to the cramping and can't poop issue, I have had some success however am laid up in bed right now from it. It is the worst thing I have ever experienced. I am almost 42 years old and was diagnsed with IBS @ 17. The specialists all have told me that I am dealing with it so well that there is little they can do...some offered Imodium. I fear that Imdoium, as well as anything to slow down my colons process can cause the cramping without pooping issue.

The best drug for the cramping is an old one, Bentyl aka Dicyclomine. The downside is there are severe side effects like easily overheating to the point of heat stroke. I am very active, but thought I was gonna die from a 5 minute bike ride in the sun. The cure was to drop the dosage down from 3 to 1 pill a day. Unfortunately today's episode was with me on that regime. I think what caused it was my lack of hydration over the past few days with it being the holidays and all.

What happens to me is that I cannot even start. It is as if I have a blockage caused by the muscles refusal to work, thus the cramp. It feels as if my intestines are splitting inside me. I cannot move or attempt to stand as that makes it worse. And when I finally do pass the poop, I feel as of a truck drove out my rear and took my groin with it. Sometimes that last bit is equally as painful.

Finally, when I suspect it is happening I pop a muscle relaxer/anti-anxiety pill because my panicing cannot help the tense muscles to relax. I also do a deep breathing exercise and pray for the best.

I hope this helps. My advice is lots of water depsite the fact you feel it is causinng other issues...and get on a drug like Bentyl however try not to stay on it for too great a time.
Posted 7/19/2012 1:36 PM (GMT 0)
Hi AussieFtw!!

Wow another aussie :)

I am very sorry to hear that you are having such a bad time with your intestines. I do agree with everyone saying a food diary is a good idea. Also, have you seen a dietician? In Queensland we can see them through the public health system for free (just takes months and months to get an appointment because they are so busy). I'm sure that is the same in most states. Or you can see them privately. You do not need a referral from a doctor to see them. I have seen a few over the years with my digestive problems and they can be a great help. Especially to help you with food diaries, working out if you have allergies to foods and also to check you are getting adequate nutrients, vitamins and energy. Sounds like you have a really hard time eating and drinking enough!!!! Good luck and please keep us posted.

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