New to IBS and totally lost

Hello I am a new member here. My name is Kristen, but you all may call me Kris if you prefer.

I have some health issues that I had for a while but I am new to IBS. I am totally lost. I been having GI issues for a while now. In 2009 I was told I have a Gluten Intolerance and Sensitivity and went on a gluten free diet. My symptoms then were nausea, left sided abdominal pain, and nausea. I had Celiac testing (blood and endoscopy) which were negative for Celiac. Since then I have had some significant medical things come up and this issue got pushed to the back burner.

With in the past year I been getting the migraines back, nausea all the time--no relief, vomiting about 5 times a week, Severe abdominal pain about 45 minutes to a hour and half after eating that lasts between one and three hours, very gassy after, bloating with all solid meals and liquids in amounts over a cup, variation stools from constipation to diarrhea throughout the day with urgency, and fruits and veggies do not digest--come out solid in chewed up form. I saw my local GI who is useless (and has been in the past). I am in a GF free group on FaceBook so asked them where to go. They suggested the GI/Celaic center at Beth Isreal in Boston. I went there last week. Talked to the fellow, told him my symptoms. He talked to the Attending Dr who came in and told me I had IBS and kind of left it at that. I feel blinded. I did see the nutritionist yesterday there and she gave me lots of information on gastroparesis and gluten free diet...said we will work our way up as my diet is complicated. I also have a bacterial overgrowth breath test done (waiting on results but the machine always said 0.0 or 0.1). I have no idea what to do for relief of these symptoms, testing to ask for, diet to eat, etc.

Some helpful information...I also have type 1.5 diabetes (insulin dependent diagnosed at 18) and lots of food intolerance...no dyes, no artificial sweeteners or flavorings, no carbonation beverages, no beef or pork or seafood.

Thanks for taking the time to read this and any help you may have to offer me. I am open to all suggestions. If you have book recommendations that's great too...I am an avid reader on my medical conditions.

--Kris

Yes I had the stool test and Blood work to support it.

Yes I am gluten free since 2009. Is a basic imaging study xrays or CT scan? I cannot afford a CT scan (on medicare). But I will inquire it. I do need to do this for life. It will help me in so many ways. Its just getting there thats the hard part. So used to eating empty calories.

Hi, Kris.

I have a lot of your symptoms.  Right now I am trying to balance a gastroporisis diet, lactose free diet, and gluten-free diet.  What is good for one diet is not for another.  It is a balancing act.

Have you been tested for gastroporisis?  It is called a GES--gastric emptying scan.  I do have IBS, but I also have gastroporisis, reflux and gerd, gluten intol., lactose intol., and possible SOD.  It sounds like you need to find a different GI doctor and get proper testing.  Irisart