New, sick and looking for advise.

Hi guys,

Ever since I can remember I have suffered from loose watery stools but kind if payed no attention to it. Until now.

I have always suffered from loose BM with the occasional episode of D. But since Aug last year this has suddenly excaserbated. I am now have very loose watery/bile like BM 5-6 times per day sometimes even more. Most times I get little or next to no notice and can quite easily be stuck on the toilet for 25-30 mins at a time so my family advised me to seek medical advise. With the D though Im suffering from other aches and pains. All my joints hurt and ache on a daily basis, I'm constantly feeling tired, weak and drained. I have severe lower back pain (kidney area) which hurts at the slightest time of being bent over. I get random bouts of severe headaches, and my stomach hurts on the lower left side like a cramping/stabbing pain, and the area just under my belly button feels bruised, and my belly is constantly making a gurgling/watery sloshing noise.

I went to see the Dr who ran blood tests and stool samples for common allergies etc. but the only thing they found was a very low vitamin D count. he then signed me off from work due to the D and abdominal pain.

The Dr then referred me off to a GI. I saw the GI in Dec and she booked me in for a colonoscopy which they took 8 biopsies and all came back clear so she booked me in for a gastroscopy. They carried this out in Feb but keep putting the date for the review meeting further and further back to the point I have to wait till aug now for the biopsy results as the camera results were all clear.

I've been backwards and forwards to the GP who has tried me on a few types of medication to try and stop the D, but with no success.

At first he tried me with mabeverine to stop the stomach pain. While taking them they ease the pain slightly but don't stop it. Then to stop the D he has tried me on two different types of AD. First was amitriptiline (spelling) second was Citalopram (spelling?) the first gave me horrendous headaches ( felt like I'd been hit in head with a brick) second had no effect whatsoever.

So basically I've been off work for nearly 9 months now. I've lost over 2 stone in weight, can barely leave the house through fear of having an "accident" if I can't make it from A-B quick enough, have work due out in the next two weeks to have a meeting about wether they will be dismissing me through medical capability and I still have no formal diagnosis as to what's wrong with me.

My mother suffers from IBS-D but her symptoms and mine are completely different, my Nan suffers from Diverticulitis. So there is a history of gastrointestinal problems in the family.

So I was wondering if anyone else suffers from similar symptoms, or wether they are common symptoms for anything specific. I'm really getting sick and tired of this sickness. I miss work and miss going to the Gym and was very active before this (flare?) just really want to get in with life and am sick and tired of being scared to leave the house and the anxiety and stress it causes when I really do have to leave the house.

P.s I read on here about trying calcium tablets and am currently in the process of this. I'm still trying to find the right doseage as at the min it's having no effect.

Thanks for the reply. No noone has checked my gall bladder or anything. When I first went to the Dr his first response was to eliminate IBD, they went straight down the path of Crohns, UC, etc.

I have tried elimination of dietary foods, I.e dairy elimination etc but no matter what I eat there's no change in symptoms so Dr doesn't think it's dietary related.

I've pretty much been signed off and left to get on with it.

When I see the GI, it's comes across as she doesn't really care and just wants to get you in and out as fast as possible.

My last appointment with her was basically they'll do the gastroscopy and if that comes back all clear then they may try and endo pill camera. If thats all clear they'll just diagnose IBS as they can't find anything else.

GI is a specialist referral to the Local Hospital so not sure if there's a chance to change it.

At the moment I'm willing to try anything to get the D to stop even if it only Holds for a few days at a time. Just really want and need to get back to work even if only on a part time basis.

Just trying to do what I can to try and find answers lol

 

    Ok, so my ibs and your is pretty different with a couple similarities. One difference is my IBS started after a freak stomach flu last year that lasted a week but the nausea and pain never went away so i had to take 3 MONTHS off work....ever since then my BM were never the same again! TOTALLY wacky and off kilter. cramping, bloating, hurt, pain, diarreah and mostly NAUSEA before and after BM's EVERY TIME leaving me tired, shakey, wiped out and gross till this day i still have it. Did a colonoscopy&Endo....came back normal! did test of celiac, chrones blah blah blah nothing! anyway I have always struggled with depression and anxiety and something told me that whatever was happening to my body (and truly this was physical!) that my mind was sending my stomach the wrong signals....so igot so much anxiety from feeling sick all the time i was admitted into out patient therapy after that I saw a psych doctor and I researched it and asked him if I could go on anti-depressants. NOT my number one answer but I had come to the point of desperation and and all the issues just didnt seem to add up so i had to be my own doctor. anyway I ended up going on an extremely low dose of prozac and an old medication called doxepin (dox is a med used for obsessive compulsive, add, and mostly IBS) also the doctor prescribed it to me cause i was so nauseated all the time and dropped 35 lbs! (was not that big to begin with!) and told me the meds would give me my appetite back. Well those meds together has helped ALOT! I am not cured thats for darn sure infact i struggle everyday and i am still trying to figure it out.  still get nauseated before and after EVERY single BM for the last year which is when I initially had the stomach flu. SO strange, unexplanable, inconveniant, and very upsetting. and while i KNOW I could have it MUCH worse and am very thankful its very concerning to me. sorry I cant give you more help but I just want you to know there are other people who get it.

So I know yours is very different and THIS MAY NOT BE THE ANSWER FOR YOU but am merely giving you one avenue you might have not explored. I still hope to heal this naturally. trying to go see a hollistic doctor.