Don't know what to do. Lost 4 1/2 stone in 4 months, help!

allie cat

New Member

Joined : Oct 2012

Posts : 4

Posted 10/23/2012 1:58 AM (GMT 0)

Hi, So I have no idea what is wrong with me. First I had a rash as a child that eventually cleared up on it's own - cause unknown. I don't know if it has anything to do with my current situation, but I have seen all the GPS at my practise and none seem able to help me.

I have no history of stomach problems, no operations, no medications, no anxiety or stress problems. All I had was the stomach bug, two months before first symptoms, I recovered the bug easily. I have gone from being able to drink/eat whatever, whenever to suddenly being able to eat next to nothing.

I woke up one morning 6 months ago and had loose-stools after stomach pains. I thought I'd eaten something I shouldn't so went on a bland diet. Two weeks later thought my Diaheerea was gone, I still had symptoms.

I have been diagnosed first with Acid Reflux (though I don't get it) Crohn's disease until tests proved differently, Celiac (same) I was then tested for liver fuction, stomach inflammation, ect. All came back negative. I cut wheat from my diet completely for 4 months, no change, I went back on it, no change.

I was then diagnoses with IBS. Since I have tried Mebeverine, fybogel, buscopan, peppermint oil caps, and so much other stuff I can't even remember.

At first I couldn't eat any kind of red meat, and I couldn't tolerate too much diary. Then I couldn't eat chicken, veg, fruit, salad, no diary at all, all down to now all I can eat is bread (wheat based things like pasts, noodles, crackers) fish and potatoes.

Symptom: Stomach pain - occasionally sharp stabbing pains but mostly like a constant aching 24/7, like my stomach is raw mostly in the area between my ribs and belly button. I do get a hot burning sensation lower down if I have diaherrea.

No constipation

Diaherrea, hardly ever, all that seems to cause it a bit is meat or diary.

Nausea (never vomiting)

Shakes

Headaches

Muscles tremous in legs and arms at night

My symptoms worsen at night

Going to the toilet does not help and often makes me feel worse.

I rarely feel bloated, or get gas.

My GPs say I've been diagnosed so they wont help me any more and just keep giving me pills that don't work. Even on fish and potatoes I feel ill, the symptoms just aren't as bad.

I don't know what to do. I've lost 4 1/2 stone in 4 months. No vomiting and hardly any diaherra, and I'm in constant pain and feel constantly sick.

Does this sound like ibs too you?

HOGGSofWAR

New Member

Joined : Nov 2012

Posts : 1

Posted 11/8/2012 11:23 PM (GMT 0)

Hi,

I'm sorry this reply probably won't help you with an answer, but I've been looking through the internet for over a year for somebody with a similar problem to me and this sounds like it!

Around July in 2011, I one day went to eat a meal and experienced quite unusual discomfort. I had never really been ill in my life, great immune system, no problems. I weighed around 9 and a half stone. I began ignoring this symptom, continued with my days.

Eventually eating became fairly uncomfortable, I then had to start taking paracetamol before my meals. Once this lasted for more than two weeks I booked to see my doctor as I thought it wasn't healthy to take paracetamol too often.

My doctor jumped straight to IBS within a minute. Prescribed me with mebeverine then rushed me out. I took the pills and my symptoms got worse. I thought maybe it would take a while for the pills to kick so I tried to wait as long as I could. By September my stomach pains were very unbearable and I noticed I lost 2lb or so. My bowels still felt normal at this point. However, I began noticing blood in my stool. I went back to the doctor, was told it was perfectly normal for ibs and they just said mebeverine should work.

Went away and by December I really was suffering, I cut back to about 2 meals a day, no snacks but any food made me feel very sick or caused pain. I weighed myself and noticed I was 8 stone, having lost 1 stone and a half.

Returned to my doctor in February as my symptoms worsened, still told IBS, if anything it got a bit unpleasant as they accused me of wasting their time. The whole cycle continued until my bowel habits changed a lot. I reached 6 and a half stone in September this year and was still told IBS.

Last month my pain disappeared, my bowel habits improved a bit, but my weight plummeted again now to 5 stone 13lb. I struggle to walk, move or eat anything much now. about a bread roll a day I think I can manage, some days a bit more. I am becoming quite frightened because nothing is really getting done, I also don't know if this is normal for IBS?

I went to my doctor again today to finally be weighed. They said my weight was dangerous now and I could suffer organ failure. I hoped this meant I would be checked for something finally, instead I was accused of bulimia and am being referred for an ED. I felt pretty offended, they say I'm in denial and everything. It's frustrating because I know that isn't the route cause at all, I love food. I'm also scared if my doctor thinks my weight is dangerous, and also hearing your rapid weight loss it sounds similar, but I am scared this could be something more serious and I don't understand why nobody is treating me for it?

If this is normal for IBS then what the hell do we do, because there is no way I would be in employable, I can barely stand for more than an hour and I have to sleep about 15 hours a day to get by. IBS isn't taken very seriously by my lecturers or my previous employer, so I don't really know how to resolve this problem especially as my GP won't really take an action on it. I'm also starting to feel a bit uneasy about going back because of the uncomfortable experiences I am having with them.

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