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Not sure I agree wtih diagnosis

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Irritable Bowel Syndrome
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Posted 2/27/2014 2:51 AM (GMT 0)
Good evening all, I have a silly little question... I have been having some issues with pain, and go back and forth between constipation and diarhea. My gyno suggested IBS, BUT can you have IBS with no colon????????
I had to have a total collectomy 2 years ago...so I am not sure I agree with this diagnosis, I do have celiac and have been gluten free for over 12 years...
Just not sure where else to go from here. Just feel like my body is attacking itself sad
Thanks for listening, and can't wait to hear what you all have to say about it!! Have a great night smilewinkgrin
Posted 2/27/2014 4:21 AM (GMT 0)
I suppose if you go by the definition, then no you can't have IBS as it affects your colon! However, I still think you can have digestive upset in your small bowel that can cause pretty severe pains. Have you taken the tests to look for bacterial imbalances?
Posted 2/27/2014 1:54 PM (GMT 0)
IBS is abnormal contractions of the large intestine. No large intestine, no IBS. Have you talked to your GI about these issues?
Posted 2/27/2014 8:19 PM (GMT 0)
Thanks for the insight guys! I appreciate it...I am putting a call in to my colo-rectal doctor. This is stressful enough with out additional problems...
Posted 3/2/2014 7:16 AM (GMT 0)
You might try to get to the bottom of what the "cause" of both neurological conditions could be. I was "under diagnosed" for years. I never tried to put everything together until I was exposed to HSV2. Every HSV dormant in me went systemic, and my neurological symptoms (pain & bowel disruption) went off the chart. I could no longer tolerate allergy shots, and my skin burned like fire when I went in the sun. Sounds odd, doesn't it! Well, I was determined to know what got triggered on a genetic level by the HSV2. It took me three years, and the best doctors in America to figure it out. I started keeping a daily journal of every little abnormality, every symptom of any attack, what I ate, everything I did. I spewed it out at every doctors appointment looking for the right answers. A great gastroenterologist put me on Nexium, and everything went as bad as it could get, then I urinated purple! He put all my neurological symptoms in a med palm device, and out popped HCP a type of porphyria (this requires a DNA test for confirmation). I had to request a biopsy to confirm the Herpes Colitis. Armed with the "cause" I can try and avoid the REAL triggers (not easy, since it's in the food, water, medications, and viruses, especially colds).
Posted 3/2/2014 5:40 PM (GMT 0)
Wow, Gods love...that is horrible! This is why I really can't wait to connect with my surgeon again!
I had been thru over 25 c.t. scans trying to get a diagnosis the first time around, and he is the one who discovered I had a toxic mega-colon! So he took that out, and at the same time I had to have a partial hysterectomy from adenomyosis...since then I have had a couple of bowel obstructions, and had to have a total hysterectomy, had a 12 inch hernia repaired, and ended up with 2 ileus'....
So, now my docs here are telling me I can't be constipated with no colon... well, sorry, but I know whether or not I have pooped!!!!! And now, with the stomach pain and constant nausea, I am being told it is classic irritable bowel syndrome....uuummmmmmmmmm, HOW???? lol, so yeah, putting a call into my surgeons office for MORE tests (yippeee, sorry, I need to wipe the sarcasm dripping form my chin!)
I am just sooo frustrated, and on top of that the depression and anxiety that are plaging me are of NO help whatssoever! I was put on cymbalta briefly, and it wasn't too bad, but the co pay was killing me, so we waited until it went generic, that copay was GREAT! Only $10! BUT, the 2nd omnth I went to get it, the copay jumped to $32, which is only $4 less than the name brand one!!!!!!! UUUGGGHHHHHH, then my rheumy said we will try lyrica as it is MUCH cheaper and see how that helps... well, that copay was $30... so back to square one with this crap... I am getting soooo tired of all this sh#t. It is soo frustrating, and on top of alll this, I have now had over 43 c.t. scans in the 2 years that this has all been going on, and was told with out any doubt I WOULD get leukemia, it is just a matter of when. My poor husband, he has been so good thru all this, but has to go out of town to work and is terrified that I will take sick while he is gone and die without him being there. I just hurt for him.... and we have a 12 year old at home...so it is stressful here...
Sorry, didn't mean to pour all that out, wow, it must have come all the way up from my feet...sorry.....I ahven't spewed on anyone in a long time (especially since my last hospitilization in November when I had to see a psychiatrist, and have YET to get a follow up since they keep rescheduling me as she keeps getting called out of town!)
Thanks....even if you got tired of reading this I feel a bit better for spewing :)
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