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Over the course of months I'm intolerant to almost everything and got IBS-D, what is going on?

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Irritable Bowel Syndrome
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Posted 1/16/2015 2:57 PM (GMT 0)
Hi guys. I'm a frequent lurker and poster over at the GERD forums. Since you guys obviously know more about IBS, I thought I'd ask you for some advice. If you would take the time to hear my story, I would be forever grateful.

For those of you who don't have time, or don't feel like reading too much, here's the short version:

Been using 40-80mg PPIs daily for 5 years to treat GERD. 2 years ago I started burping 50-100 times a day, and this happened over night. Over the next couple of months I got intolerant to many different foods that I've been eating all my life without problems (milk wheat etc.) Symptoms when eating them were stomach pain and diarrhea. After I stopped eating these foods completely my stomach got a little better, but I still have major stomach pain and diarrhea problems, and I still burp 50-100 times daily. A bit down there's a list of what tests and treatments I've done.

Here's the longer version of what happened:

I'm a 22 year old guy. Except for my GERD and hearthburn, I've had no stomach problems in my entire life. No abdominal pain and no diarrhea. 5 years ago I was put on 40-80mg PPis daily to reduce the acid in my stomach and treat my chronic GERD symptoms. Everything was just amazing and I ate everything I wanted without any problems at all. My entire life I've been a big consumer of milk, drinking maybe 1 litre a day since I was a kid, and it has never bothered me at all.

Fast forward 3 years and over the night I start to burp excessively after eating. I mean like maybe 100 times a day. A month later or so the real problems started. I started getting massive stomach aches and bad diarrhea. I soon linked my symptoms to milk consumption so I stopped drinking it and felt better. One month later, same thing all over again with wheat, another thing I've been eating all my life. This just kept going with more and more foods, until the point where there's not that much I can eat anymore. I went to the doctor who just said I was allergic and that my IgE levels (Allergic levels) were high and that my stomach would settle down when the levels did. It didn't and i get IBS no matter what I eat.

So here I am a year later, with major IBS-D and food intolerances, still burping 50-100 times a day and don't know what to do.

These are the tests and treatments I've done and the results I've gotten:

4 allergy and intolerance tests: I'm allergic to peanuts and some other stuff, and total IgE levels: 300-500. Intolerant to milk, wheat and the other stuff I cant eat any more.

2 Endoscopies: Clear

1 Colonoscopy: Clear

1 stool test: Clear, but showed signs of allergies

Several complete blood works: Clear, no H.Pylory

The only thing that has actually HELPED is 20mg amitriptyline (Aka Elavil) daily. It reduces my stomach discomfort and diarrhea greatly, and for this I'm thankful.

I still can't accept that I've got "real IBS", and I'm convinced that there something, hopefully treatable, that's causing all this. I'm ceratin the high doses of PPIs 40-80mg daily I've been taking has played some role in this. The only remaining thing that I could come up with could cause all this is SIBO. I've asked to get tested for this but the doctors have been reluctant. Also, would amitriptyline (Elavil) relieve symptoms if SIBO caused this?

What do you think guys. Is there anyone out there with a similar experience? Does this sound like SIBO or is there something else that could cause this sudden onset of IBS?

Thanks in advance guys.

Jakob.

Post Edited (Gewarn) : 1/16/2015 8:00:33 AM (GMT-7)

Posted 1/16/2015 3:37 PM (GMT 0)
What about blood work looking for inflammatory markers, anemia, other vitamin deficiencies?

Have you tried taking a daily antihistamine? What were those "signs of allergies" in your stool test?
Posted 1/16/2015 5:10 PM (GMT 0)
kazbern: Hi and thanks for your answer.

Not sure if they looked for inlammatory markers in the blood test, but they did extensively in the stool test. They checked for both red and white bloodcells, and a bunch of different other stuff and nothing indicated an inflammatory problem. I was tested for every vitamin deficiency available on the sheet and no deficiencies were found.

The signs of allergies in the stool test were the secretory IgA levels. It says on the paper that "elevated levels of sIgA have been associated with an upregulated immune response" This also correlates with the IgE levels in my blood tests, which are to high. I'm just not sure how this is supposed to affect my stomach, especially since I've been strictly away from every possible allergen for over 6 months now. I'm on a daily antihistamine since a year back. The only difference I've noticed is that I don't sneeze as much.
Posted 2/5/2015 5:14 AM (GMT 0)
i think the PPIs are part. amitriptyline is a anticholinergic like antispasmodic drugs, not main action but still enough for Tofranil PM to be used on young children with bed-wetting issues because it relaxes the bladder (another smooth-muscle organ) by means of the anti-cholinergic effect. acetylcholine will promote spasmodic conditions in the colon, bladder (Detrol XL for incontinence works by blocking the acetylcholine, same with Ditropan "oxybutin"). i think amitriptyline is just taking edge off a bit temporarily. 1. for GERD: an Amino acid complex with all 18 protein forming amino acids will provide protein in it's most usable form, powders are good. this can build the muscles that are relaxed that close the valve from the stomach 2. look to Ayurvedic Medicine, "Trifala" a 3 fruit compond (organic at health food store or website), safe, restores GI system, L-Glutamine and N-Acetyl-Glucoseamine, the first mantains villi cells in colon to allow nutrients to pass into blood stream, the second is part of lining of bowel that probiotics form colonies on. 3. allergic reactions and sensitivities can be helped with Quercetin, Bromelain, Papain, probiotics, Bioperine, a enyme complex, B-complex, Stinging Nettle, Pycnogenol, Boswellia, extra B5 maybe 50mg 2-3 per day, Ester-C, Inositol Hexaphosphate "IP6", beta-carotene, Tumeric, Neem, Guggul (India myrrh). the burping may be coming from a major imbalance in your GI System and Immune system's signal of allergens and inflammation from foods and drink your have sensitivity to. the immune system creates that inflammation. non-fish oil omega-3s like algae or chia seed or flax seed derived. bring the omega-3 balance with omega-6 to a 1:1 ratio or 2-5:1. grains, oats, veggie oils, corn are omega-6 rich, when omega-6 is 5-20:1 over omega-3 it is a inflammation generator. amitriptyline is a weak antihistamine and an antihystamine cannot compete with what your body as a whole is in as a biochemical whole. may sound crazy but try to find a "TCM or Traditional Chinese Medicine Doctor, who is Chinese" and let them do their thing, interview so they will know facts, a amazing examination, then they have many tools to work with. also, google Ayurvedic Medicine who are great with this area. good luck and i think you will catch up with this and put it behind you. Nick
Posted 11/10/2018 10:58 AM (GMT 0)
How were you cured of your burping?
Posted 11/14/2018 1:58 AM (GMT 0)
I was having terrible stomach problems - IBS like symptoms. I went for tests and the doctor said I had gastritis and a hiatal hernia. Gave me some nasty medicine to take. It was so bad that I couldn't take it but when I tried, it did little or nothing anyway. I had frequent accidents from diarrhea. As I have Sjogren's Sydrome with ever-worsening fibromyalgia pain, I ended up trying Charlotte's Web CBD oil and it has almost eliminated my fibro pain since last February. As a major side benefit, my IBS accidents stopped. My stomach issues have been 90% eliminated. That's an unexpected benefit of the CBD oil. I don't know if the CBD oil would help with your problems, but I'd say it's worth a try. It can't hurt.
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