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Irritable Bowel Syndrome
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Posted 12/5/2006 3:42 PM (GMT 0)
i am now even more fed up. been to see gastrontgoloist today and have been discharged. i got told that i may have had ibs the bleeding is because i am straining to go to the toilet which is a bit strange as i don't have any problems there i can't stop going. he gave me something to help me open my bowels which i laughed when he said that. how can he precribe me that when i can't stop going. he said that should help the bleeding. he said from the tests sidocopy they did in october they didn't find any piles or reason for the bleeding. they didn't even mange to get it up very far. i went to the casulty department about a few weeks ago and they said that my liver function tests were high he said no they weren't and then said well they high but bascailly its to much troulbe to find out why.

he hasn't given me any medication but told me to carry on taking the strong painkillers so i will probably end up buggering up my boby anyway. i am now just confused and not sure what iam supost to do. i am still in pain and have taken quite a few painkillers today.

i don't have a life at the momnet and it looks like i never will.
Posted 12/5/2006 5:22 PM (GMT 0)
I'm so sorry that you feel terrible. How long has this been going on? Have they tested you for IBD? I think you may need find a new dr. Find one that will help you treat the symptoms, and not dismiss anything just cause you don't have a "textbook" case of anything. If I was seeing your Dr I would not be happy. I know how emotionally draining being ill can be. It's especially worse when you don't have answers. Good luck and I hope you find the answers you need. Kepp us posted.
-Kim
Posted 12/5/2006 5:49 PM (GMT 0)
Oneday,
What about going to another city? It seems as though you've exhausted your resources and you need to find another barrel. Blood and severe (constant) pain ARE NOT indicative of IBS. Why don't your docs see that? Keep looking for a doc until your concerns are heard.
Maybe you need a special trip to the Mayo Clinic.
Posted 12/5/2006 7:25 PM (GMT 0)
You need a colonoscopy to look further up into your colon to see if you are bleeding from higher up. It definitely sounds more like IBD than anything else; it's certainly not IBS. And did you travel to any 2nd or 3rd world countries before you got sick? I've heard that some parasites can cause bleeding and they all can cause pain. That's something to look for if you've been outside the UK where you might pick one up.
Posted 12/5/2006 7:41 PM (GMT 0)
hi ya i accaullty live in the uk. we have an nhs health service which is crap. i just found out that the tablets hew has given me are laxitives. i still can't quite get my head round why he would give me a laxitive when my problem is i can't stop going. the side effects are dirraoh and irrtation of backpassage which is what he said i probably have as no reason for bleeding. i am taking ibs tablets just so i can go see gp and say look this ain't working. he said that my pain was because of lifting up children in my work. how the hell can pain in both sides be because of that and the fact that i have not been at work for months kinda doesnt fit.

i think he must have been on drugs when he saw me. i have to say i was very rude to him and basacilly said so what am i surpose to do live life like this. his answer was yes! this is what i have worked my butt of at work for an nhs health systom out of my wages to told to bugger off and suffer. i really don't care anymore about my life and will just take loads of painkillers and if i bugger up my liver i will no who to blame. i am just so angry i am finding it hard to controll my anger. there isn't any one else who will help as i can't go to another gp surgery and i can't afford to go private. i am surpost to be going in to work tomorrow how they expect me to go in i don't know. what is the point of living a life like this.

he also told me it could be an agergie but then said i had to work out what? i have kept a food and syptom dairy and my dietition couldn't find anything. he told me to eat more fibre which i have done before which made me even worse. he said this would help with passing wind being in pain. i don't think so.

right at this moment i just wanna curl up and sleep for ever.
Posted 12/5/2006 8:23 PM (GMT 0)
Oneday,  Hello...  I have had IBS or whatever they want to call it for 10 years.. Been to a lot of doctors.. Had a hysterectomy, gallbladder, appendix and adhesions removed..  And I am still sick!!!  I get so frustrated that no one can figure out why every friggin day of my life I am in pain and on the toliet..  Now they are telling me that it is phycological..  Well no crap!!!  You try and live like this for 10 years and see how you feel..  I really feel bad for you..  If you want you can email me..  Hope you get better than me!!! 

Posted 12/6/2006 1:48 AM (GMT 0)
I just love that psychological crap. I was having something almost like seizures and they kept mentioning anxiety and did I have it. Heck, yes, after the seizure but before that when they happened I was just having a good time with friends or sitting watching TV. I am not saying that stress does not play a part in many things and I think very much with IBS but that is just a cop out when they say that. They just can't admit they don't have an answer. I do have one friend that had no known depression, actually a very functioning person and the Dr. did give her Paxil and it did cure her intestinal problems for the most part. I did read that there is more Seretonin in our stomach than in our head but the fact that I can get so upset because I feel terrible day and day out when I am going thru a spell and start to cry doesn't make it a head problem.
Posted 12/6/2006 5:16 PM (GMT 0)
I was very pleased with one of the doctors that I saw in Ireland. I didn't have any health insurance at all and wasn't a citizen, but it was only 25 pound to see him, and that included my blood work. In the U.S., that same doctor visit would typically run you $100, plus several hundred for the blood work. I don't know what their test fees at hospitals were, but if they were also reasonably priced, it would have been something that I could have afforded completely out of pocket (impossible to do in the U.S.). Maybe you can see how much a U.K. doctor costs that doesn't take NHS insurance? Or maybe just scan Ryanair's fares until you find one to Ireland that you can afford and go over there and see if you can find someone that will help you. You've got to be looked at by a competent doctor because there's something seriously wrong with you.
Posted 12/8/2006 3:04 PM (GMT 0)
i have recently been back to see doctor. i am still getting the pains in my sides and also had more bleeding. she said she doesn't know what to do next as i have had painkillers and a pelivc scan and nothing has shown up on them so they said it can't be a gyne problem. she is sending me to the mental health unit. i feel really down as i don't think she understands what i am going though. i can't understand how that is going to help my bleeding as i don't even have to have a bowel movemment and i bleed. i am sure they think i am making it up just because they can't seem to work out where the blood is coming from. i must be imageing it. thats the best we can do. i hate the it's in your head routine. how much longer do i have to suffer this? i have started useing surpostorties now as i am so sore with going to the toilet.

why can't i get an answer? why is everything you suffer always in your head? there never seems to be a reason for anything and i am now really frustrated.

iam so not looking forward to going to mental health unit. i have to go next week and if i don't go then they will say iam refusing treatment and i won't be able to get any more.
Posted 12/8/2006 5:54 PM (GMT 0)
Hey there oneday...I wanted to ask you how much bleeding you're having.  Are there clumps of brownish blood in the toilet, or are there streaks of bright red blood on the toilet paper when you wipe?

Posted 12/8/2006 6:04 PM (GMT 0)

Oops, wasn't quite done.  I also wanted to let you know that the fact you're having pain on both sides, instead of one side of your body, might actually be a GOOD sign (even though it sure must not feel like it to you).  Unilateral (one-sided) pain is generally more worrisome because it could signify a diseased organ or a blocked area of the intestine, etc.  Sometimes bilateral pain can indicate disease activity as well, but I don't think that is as likely a scenario.  Also the fact that you've had some imaging tests done and they are clear - that should be comforting.

Granted, none of this helps the fact that you're in pain.  I seriously understand where you're coming from; it sucks when no one can give you an answer to that kind of pain (I've been there too).  Can you describe the pain?  Is it burning, crampy, sharp, dagger-like, constant or intermittent, and where is it located exactly?  On a scale of 1-10, 10 being the worst pain you've ever felt in your life, how would you rate it?

Posted 12/8/2006 8:45 PM (GMT 0)
hi
sarita

the bleeding is red it can be just a little ie quite alot on paper and on my poo. or it can be where it drips out which can last a few days. they have looked up a few times and never find any thing to cause the bleeding no piles or tears nothing. the pain is a sharp pain and it was consant but now i get a bit of a break before it starts again. i get a aching pain which seems to go round my back and sides. when i say my sides it is really low down where your ovaries are. the pain i would rate it at moment at about eight but it was worse a few days it seems to go like this. a few days it not to bad then it is really bad and i can hardly move. then i would definalty have rated it at ten.
Posted 12/8/2006 9:01 PM (GMT 0)

Oneday,

The bright red bleeding probably means you have some irritation on your bum from your bathroom trips.  I also had red blood and also fecal occult blood with "no explanation" (that's what the docs said; the GI said my hemorrhoids were of the non-bleeding type) and I attribute it now to the fact that my bum just gets irritated when I have diarrhea or even just "normal poo." This is what I suggest for that: every time you have a BM, use wipes soaked in witch hazel (Tucks pads) to clean up with instead of regular toilet paper.  It might sting initially, but is pretty soothing on the behind.

As far as your pain...you've seen a gynecologist, right?  You might be in the beginning stages of endometriosis or another gynecological issue that wouldn't necessarily pop right up on a CT scan.  Have you had a pelvic ultrasound done?

Posted 12/8/2006 9:02 PM (GMT 0)
Gosh, I keep posting, then having afterthoughts.  I was reading your first post and noticed that you had elevated liver function tests (LFTs).  Let me be the first to assure you that this is not necessarily abnormal.  If you drink any alcohol, at times your LFTs may be elevated unless you abstain for 2-3 weeks before your tests.  At one point my LFTs were high but the docs weren't concerned, and sure enough, a month later, they were back to normal.  It's regularly elevated LFTs that are generally cause for concern.

Posted 12/8/2006 11:08 PM (GMT 0)
I didn't know there were non bleeding hemroids. I had a lot of blood a few weeks ago after having been constipated and straining a lot. I had to go to bathroom and release some blood for about 24 hours and then it subsided. My Dr. said it was from internal hemroid that ruptured and wanted to do some proceedure to get rid of it. I passed as it has only happened once and I have more important things to take care of. He didnt check me but I took in the toilet paper and showed him and he said that was what it was. I had colonscopy and endo within the last year so he knew I had hemroids.

I don't get the connection to sending some one to a mental health clinic for your problem. A little blood from irritation is one thing but to have to pass the blood is something else. How often does this happen? Have you had a blood test to see if it is affecting your blood as in anemia? When they didn't know why my friend was bleeding they had her swallow on of those camera's after they did the colonscopy. She was bleeding more, I think. Course it didn't show anything but it was worth a try especially with the pain you have. Have you tried a heating pad for the pain. It really works when I have intestinal pain. I hope you find some answers soon or you will be ready for that mental health clinic. Perhaps you should go and talk this out with them and maybe enlist their support. How about that?

Posted 12/9/2006 11:16 AM (GMT 0)
thanks for your relpys it nice to know some people understand what i am going though. the high liver function tests don't have anything to do with achlol as i don't drink. i never really drank much maybe a glass or two at most of wine but not had any for a year now. over the past six months i have had my lft testsed about six times and they are always high.

as for the wipes i use to use them but find that i just can't at momnet. it is to sore. i have seen a gyne and have had an plevic unltasound which showed nothing. i do have a condition called pcos but you don't get pain with it. this is a gyne problem.

my doctor sent me to mental health unit as she wants me to have counciling. somehow this is going to sovle all my problems! how i ask you saying ? i haven't the foggest. about four months ago i ended up in casulity as i had a really heavy bleed from back passage they did nothing just sent me home as i was waiting for the camrea. had they bothered to do something for me then i may not be in this mess now. they left me to bleed after a few dyas i did stop but then it started again. i have come to one conculsion that evenally if i carry on bleeding then i will become anmeic so then they will have to do something. i am kinda glad i am going to see mental health as i can talk over my frustrations with them. maybe they can convince my doctor something is wrong. i do need to find an answer to it all as i have been signed off work for stress. i wonder why. they are feeding me anitdepressants as well. i only feel low because of my problems. i keep trying to explain to them that i got the stomach problems first but they just don't listen to me.

i am so miserable at moment. i am turning to eatting thr wrong foods which i shouldn't be as i am a prediabetic due to my pcos condition.
Posted 12/9/2006 6:05 PM (GMT 0)
dear oneday. That mental stuff is crazy why does people allways go to that direcction?
If you are a christian pray for healing thats what I do and It works. alot of times or I have a
preacher that believes in healing to pray for me . and it works. maybe you can too If you wish.
Posted 12/14/2006 6:35 PM (GMT 0)
Hi oneday. I am new here, but want to ask you about pcos. Are you referring to polycystic ovary syndrome? Actually, that condition is quite painful! I doubt that is what is causing the south-end bleeding, but it certainly does cause pain, and a lot of it.

Quick introduction, I have severe abdominal adhesions that cause all kinds of bowel troubles - mostly C because the bowel is partially obstructed in one or more places 100% of the time. It took 10 years to finally get a team of doctors who know me and treat me appropiately. I have my surgeon, my pain management physician, and last year added a pain psychologist. I was extremely skeptical going into the pain shrink, "What is this about? I'm not crazy, I'm in pain!" Believe as you will, but that woman has probably been more helpful to me than all the surgeries or pills I've had over the years. My pain doc was the one who asked me to at least give it a try - "can't hurt, might help" was her philosophy. I am so very thankful to have hit it off so well with my pain shrink, and it is what I've learned from her that has kept me out of the hospital this past year. Just a thought from one who has been in your shoes. A shrink can't improve your symptoms, but they can help you deal with them better.

Hang in there - all you can do is what you're doing. Use the resources at hand and keep plugging away to find answers. You are not alone!
Posted 12/14/2006 6:42 PM (GMT 0)
Hi TexasJen,
Welcome to HealingWell!!! :-)
Thanks so much for your input and sharing your experience. Contrats on finding a team of docs who have proven to be so helpful.... we know that process can be difficult.
Hope to see you continue to post.
Take care.
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