Hyperkinetic Gallbladder?

I have been in New Mexico since my last post. And...I finally have a diagnosis. I have LYME disease. Turns out all my abdominal pain was due to the lyme and my liver trying to detox everything. To Edward1, maddybear23, and kim34 you are not crazy and you need to find a lyme literate doctor and be evaluated for lyme. I was lucky to see a neurologist by chance and she knew what I had right away even before the lab work came back. ALSO, traditional lyme blood tests are not accurate and you need to find a doctor who knows what they are doing. I was diagnosed off of my labwork sent to a lyme specialty lab in CA, my CD 57 results, and my clinical symptoms. Also 2 weeks of antibiotics will NOT kill lyme. I am going the homeopathic route. But with LD it is important to build the immune system as well as get tested for heavy metal toxicity and address that as well. In addition, I have candida which is very common in LD patients. I have been on treatment for 3 1/2 weeks and I feel 50% improved already. Most of my health costs are out of pocket because they are homeopathic and include tons of supplements and IVs of Vitamin C and Chelation. Thank the Lord my parents are helping me. I am able to eat normally now. However, I have excluded gluten, dairy, and sugar from my diet which helps reduce inflammation. I have stopped losing weight :). My brain fog is improving, burning and tingling only in the A.M., headaches essentially gone, still having some chest pressure, depression and anxiety still there but much less. I also have more energy and cry less. I am far from being restored to my old self, but I am confident this the correct diagnosis. I have learned so much about LD in the last 6 weeks. To all... please watch lyme documentary on Netflix or youtube called 'Under Our Skin'. To anyone on this forum...ABDOMINAL PAIN CAN BE A SYMPTOM OF LYME DISEASE. If you have had every test imaginable like I did and you have NO answers, please find a lyme literate M.D. and get evaluated. If anyone has questions I would be happy to help. I will keep checking back. Good luck to everyone and don't give up!!!

Perfect Health, you are right about the mold. My doctor who is an M.D. but treats everything homeopathically did a full work up on me for mold as well. She wanted to eliminate any confounding factors that would exacerbate the Lyme or prevent me from healing. Luckily all my mold tests came back negative. Since I have been on treatment over 4 months most of my physical symptoms have completely resolved. Just so weird twinges here and there. I am however still struggling with depression and anxiety. I am predisposed due to family history and the Lyme causes anxiety and depression in itself, so it has been a major obstacle for me. I never had problems with emotional health before the Lyme, so I am hoping it will improve with my treatment. I will probably be on the Lyme treatment for at least another year.

FYI...I tested positive for an antigen which makes me magnesium deficient. I now take a Mg supplement and my heart palps are gone! Don't know if it's the Mg or my Lyme treatment working. I also get regular acupuncture.

I am also well enough to be back at work. I encourage everyone who is suffering from health issues to get a full work up by a good homeopathic doctor since he or she will usually look at the whole system. But that is my biased opinion. I wouldn't have said that before I got sick with Lyme, I was pretty much strictly allopathic and I am a health care professional. But when all allopathic medicine failed me, homeopathic medicine was the only treatment that has improved my health thus far. Good luck, many blessings, and excellent health to all of you.

Hi! I am new to the forum. I am so happy I found this Hyperkinetic Gallbladder topic. I just got diagnosed with that today. I went to the ER on January 15th and we ruled out kidney stones, ovarian twist, obstructions, and appendix. I have never been in so much pain or so sick in my life. I stayed home for a few days and immediately changed my diet. I managed to get through two more days of work before the pain came back and I have been out since January 21st. My life has revolved around pain management. I'm one of those types that HATE medications and its the only thing keeping me comfortable as the tests and doctors took their sweet time. I got a small bowel xray, ultrasound (no stones),and then the Hida scan. My Hida results gave me my diagnosis for hyperkinetic gallbladder. I pretty much understand it as the gallbladder is trying to be Hercules. Pumping too much and too hard. My primary doc referenced me to a surgeon and I go on Tuesday, February 4th. A whole new week to go. 3 weeks of constant and pain and nausea. Mind you, I am 24 years old, 140 lbs, 5'6", and I have not had children yet. I did read that emotional stress is related to this issue and poor diet. Dairy and caffeine I think are my triggers. I knew for years I had problems with dairy. I ignored signs leading up to this diagnosis, like diarrhea on a daily basis, higher cholesterol, my chiropractor even told me my migraines were related to my gallbladder!!! It looks like surgery is the most recommended avenue and there is not a lot of other treatments out there for it. Considering that I have only had the pain for 2 going on 3 weeks do we think that I may have better luck going to "normal" after surgery? I will of course talk this out with my surgeon but I am appreciative of feedback and support. Thanks!

Hello,
I am new to this forum, and have been reading the previous posts. I have pain behind the lower rib on my right side. I had an Endoscopy and a Colonoscopy, HIDA Scan, blood tests - normal. I had a more recent Endoscopy last month. I also have Gastritis. Other than that, I've been watching what I eat, but my PA wants to refer me to surgery to have my Gallbladder removed. I am skeptical about the surgery "after effects" because some folks end up with chronic diarrhea. I would not want to live with that! If they remove your Gallbladder, they remove the organ that holds the bile produced by the liver, so without something to hold the bile, and release when needed; it goes directly into your intestines, causing irritation. I'd have a lot of problems with that.
I have explained to my PA that my Gallbladder releases too much bile at times, when there is a trigger (i.e. eating something that irritates my GI system) and that I am not able to digest food fats very well. In my opinion; my Pancreas is not releasing the necessary enzymes to break down food fats, my Gallbladder is releasing too much bile, and it ends up in my intestines. Thus, loose stools, cramps and diarrhea.
MSG is a huge trigger, as well as Carrageenan. MSG is also sold on store shelves where the spices are. It's a flavor enhancer, not a spice - an "excitotoxin" that tricks your brain into believing that you need to eat more of the foods you eat, and is sold as ACCENT or AJINOMOTO. It's also making us fat! You will also find it mixed in powdered spices such as crab boil, and in BBQ sauces, but remember, it's not a spice.
I am back to 119 lbs. after being ill for almost two months, and on a paleo-style diet. Afraid to eat much of anything else that may cause me any distress.
I have started reading lots of food labels, after a lot of trial and error; I narrowed it down to those two things. I am checking my fridge and pantry, and avoiding fast-food (they put MSG in their liquid shortening), restaurants (the stuff can already be in there), and watching what I eat. MSG is found in many processed foods, frozen foods, chips, processed lunch meats, sausage, bacon, pizzas, broths, Chinese foods, Ramen soups, some beers. MSG is listed on some food labels as "natural flavor(s)."
Carrageenan is a stabilizer and is found in some brands of ice creams, sour creams, non-dairy coffee creamers, custards, puddings, some Almond milks, canned pet foods, etc. Check and read the labels! Carrageenan is much cheaper than Guar Gum, Locust Bean, or Gelatin, which were used to emulsify and thicken foods. The FDA allows food manufacturers to put this junk in our foods because it's cheap. Carrageenan is also found in aircraft de-icers. Yikes! Neither MSG nor Carrageenan have any nutritional value. It could be food-grade or non-food grade, it can and does end up in our foods! Who is going to check? The FDA? As long as the food manufacturers give them money, and free spa treatments, who cares?
I would keep a diary of what I have eaten in the past couple of days, and check the labels. Check your pantries. Organic foods may have MSG, or Carrageenan - as both are "natural." Also, some fruits and vegetables are sprayed with liquid MSG before being sold in markets. Do a little research. I ended up with flu-like symptoms, and my Gallbladder feels like it's being squeezed, cramps and burning in my stomach, tingly feeling in my extremities, rapid heart beat, my tongue feels strange and tingly, tightening of my throat, and numbing of my lips, sweating and flushing, nausea - lightheaded and about to black out from the distress. A lot of inflammation and irritation of my GI system. My intestines hurt, and sting. I've been feeling much better since I've been checking the labels of foods I eat, and actually controlling what goes into my foods.
I would like to know how those who've had their Gallbladder removed, have been coping, and if positive or negative? Is your life better than it was before surgery, and was it the answer? Thank you for all the information I can use to learn and compare to my symptoms. I still do not want to have my GB removed. I do not believe that it's the answer.

Post Edited (dakotahrose) : 6/25/2014 5:19:03 PM (GMT-6)

So glad I decided to try and Google "hyper active gallbladder" again.... back in April/May I went to the urgent care for upper right quadrant pain... they suspected gallstones... x-rays didn't find anything... told me if I experience fever, nausea, vomiting to go to the ER... the next day I was in distress and my husband had to pick me up from work and take me to the ER... once there they couldn't figure out why I didn't have gallstones. They set me up with a GI who scheduled different scans and tests and finally the last option was a HIDA scan... I have no idea what my numbers or readings were... but they stopped the test halfway through and told me that whatever doctor reads the scans was going to love mine... they ended up referring me to a surgeon to discuss having my gall bladder removed.. while speaking with the surgeon he informed me that having my gallbladder removed may not even fix the problem and could make things worse and that he really didn't recommend it being as though there was a 40% chance I may still have problems but the option was mine... I opted not to have it removed and started eating less breaded fatty/greasy foods and more grilled stuff... just this past week I started noticing I was feeling nauseated and sickly again.. and this morning I woke up to massive pains again... My surgeon I met with told me that hyper active gallbladder new thing and they don't have much information on it... when I have more time I want to read through all the threads... but we don't have internet at home and I am not supposed to use my work computer for this stuff but very curious to read the previous posts.

FYI a little more info:
I am 30 year old 5'6" 180lb female, had 1 child when I was 18 and suffer from Kidney Stones, many UTI infections, and for 5 years kept having labs done by my regular MD which would all come back as elevated liver enzymes, vitamin d deficiency, high calcium.. and then spent4 years at an endocrinologist.... and all they would do is up my dosages of vitamins and redo my labs. My mother suffers from gallstones often, my dads side of the family is all diabetic and obese.

Post Edited (Stefff) : 11/16/2015 12:37:18 PM (GMT-7)

Just wanted to tell my story briefly as I read this thread when searching for "hyperkenetic gallbladder" or "overactive gallbladder" on the web. I had strange throbbing pain on the right side of my abs anywhere between my pelvis and chest. I also had nausea at random times throughout the day. Sometimes these symptoms would get worse, and sometimes they would get better--there didn't seem to be much rhyme or reason to when they came and went. I had an endoscopy and found out I had acid reflux and gastritis. Took meds for three months, but was still having the same problems. Went through abdominal and pelvic ultrasound, then HIDA scan. No abnormal results showed up, except that my symptoms were aggravated during HIDA. Afterwards, I found out I had an ejection fraction of 88%. First surgeon I talked to said all was normal and I shouldn't change anything. Second surgeon told me yes, it sounds like your gallbladder is bothering you, and I have reason to believe we should take it out! After 9 months of intermittent pain and discomfort, I'm finally pain free after having my gallbladder removed last week! I was not a typical case, and I would still be in pain if I hadn't gotten the second opinion. After the surgery, surgeon confirmed that my gallbladder was indeed inflamed. Best of luck to all out there suffering with gallbladder issues!

Hi Lincolne3, I've been suffering for about three years now but the last year has been the most steady discomfort. Upper abdominal pain radiating around to my right side and into my back, nausea, lack of appetite, diarrhea several times a day, hiccupping, and bloating. I told my gastroenterologist in February that I was determined this year to find out what is going on. I kept asking if it could be my gallbladder but the doctors did not seem to think that was the problem. After having an endoscopy, colonoscopy, ultrasound and several other tests, I finally had a HIDA scan. My ejection fraction was 99%. Normal is about 35 - 75%. I was told that I have a hyperkinetic (overactive) gallbladder. I was glad to finally have a diagnoses but when I met with the surgeon, he said there is only a 40% chance that having my gallbladder removed would resolve my issues. I decided to go ahead and have it removed because I could not imagine continuing to live with the pain. My surgery is Dec. 10th. I'm praying that it will make a difference.

I've researched hyperkinetic gallbladder online and am a bit more hopeful about what I found there (see link).
https://pubmed.ncbi.nlm.nih.gov/33284026/
https://pubmed.ncbi.nlm.nih.gov/30209609/