Posted 10/26/2012 2:05 AM (GMT 0)
20 years ago i had a total collectomy after my large bowel lost all peristalsis. Everything was fine until 2 years ago i needed more surgery to remove a portion of my small intestine because it also was enlarged and no peristalsis. Now I am going through hell and back day in, day out! I had 4 major surgeries last year where the surgeon screwed up every one leaving me in intensive care for most of last year. Because he nicked my small intestine in several places I am left with NO large bowel, no rectum and very little small bowel. I open what bowel I have left at least 15-30 times a day and it is sheer agony. The anal burning and spasming is literally unbearable! The ONLY food I have found I can eat is raw fish; anything else causes unbearable pain, particularly in my anal region. I have tried lactose/gluten/wheat free foods and every cream known to man without any relief! I am just about to be taken off pain meds such as oxi codeine because I have been on them for almost a year but the specialist says they have tried everything and to accept this pain will be for the rest of my life! I use numbing cream but it can't numb a part of the burning area and won't numb the internal pain. The specialist say they have tried everything now and have washed their hands of me. I have NO LIFE! I can't go into the city because there are not enough toilet stops and I can't eat out with friends because of intense pain. I can't work because I am either weak from no food or tired from the pain and constant bathroom breaks! I went from 140lb to now 93lb and still losing weight because the only pain relief I get is when I don't eat. The pain is akin to labour pain and the burning is like pouring pure caustic acid on my rear end. Going to the toilet is like passing razor blades! Please, can anyone suggest what else I can do?