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My FRUSTRATING IBS story

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Irritable Bowel Syndrome
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Posted 7/13/2014 11:06 AM (GMT 0)
Hey people. Ok so this is my story. Warning it does get graphic.
So since the age of about 16 I would never go the bathroom, it would be like 3 times a week and as I got older it would worsen I would be so bloated and uncomfortable. I went for my first colonoscopy at 18 and even drinking that horrible laxative I rarely went.
The result was ibs.
When I was 20 another colonoscopy came back with the results that It looked liked my bowel had the measles but once again nothing done about that and was told not too worry.
Now from the age of 22 i wouldn't be able to go to the bathroom for days, like I'm talking 6 or 7 days without pooping. Of course I would feel bloated so trying to push caused me to give myself piles and anal fissures! Which was literally a pain in the *** haha. It got so bad that I did not go to the toilet for 14 days. The pain of the anal fissures and piles caused me to pass out on the toilet. (So embarrassing for a 23 year old girl ha) I went straight to a and e and they gave me cream. Which was the biggest load of junk! And when I finally went to the toilet it was like someone was murdered with the amount of blood!
I went to a specialist then who decided my fissure was so bad that I was booked in for Botox in it which numbs and relaxed my muscle (I joke that I now have the best looking bum in the world) I woke up for that surgery in agony and was told it's because they removed TEN internal piles which have been caused by my ibs. The Botox helped my go to the bathroom as I couldn't feel any pain but I'm still not going frequently. And when I do there is loads of blood.
I would randomly say about once a week get horrible pains and have to go to the toilet asap which is full of blood every week. I really think I have something more then IBS? Can anyone relate or recommend as it's driving me insane and to be honest ruining my social life and my personal life.
Thanks for listening guys
Posted 7/13/2014 1:10 PM (GMT 0)
Sounds to me like you really need to find another specialist. The symptoms you are having are not "normal" and need to be checked out.

As for the Botox you had done, glad that you feel it helped. Did they inject something along with the botox? I get Botox injections for migraines, for an eyelid spasm, and also in my bladder. I'm not sure why you have numbness. With everything I have learned from doctors and read about botox, I have never ever heard that one of the functions of botox is to numb an area. It will paralyze and relax the muscle, but my understanding is that the only time botox causes numbness is if it was done incorrectly and they hit a nerve. I'm really confused about it being numbed. Personally, I would not go back to that specialist. I would get a second opinion and question why you are numb. I'm sure it feels good though. Are you sure it's numb and not just very relaxed? When a muscle is paralyzed, you cannot move that muscle. It stops spasms. When I get the botox for migraines, for example, it relaxes the muscles in my scalp and even down my neck and in my forehead. I still have feeling there, but I can't raise my eyebrows.

I am sorry you are suffering so badly. I also have chronic constipation and at this point the only time I am able to go to the bathroom is every 2 weeks when I take a combination of laxatives and drink 1/2 gallon of the bowel prep stuff you have to drink usually for colonoscopy. So, I feel for you with that problem. The blood and your bowel habits need to be checked out by a good GI doc. s

Really hope you are able to find a good doc who will figure this out and find a way to treat whatever is going on with you. Good luck and keep us posted!
Posted 7/13/2014 11:03 PM (GMT 0)
Tell us about your diet. Like, what did you eat the past few days for breakfast, lunch, dinner, snacks? My IBS started when I was about your age, and I know now (I'm 58) that I have never eaten as much fiber as I should have. So, I'm trying to eat more now, and things are actually getting better.
Posted 7/13/2014 11:03 PM (GMT 0)
Tell us about your diet. Like, what did you eat the past few days for breakfast, lunch, dinner, snacks? My IBS started when I was about your age, and I know now (I'm 58) that I have never eaten as much fiber as I should have. So, I'm trying to eat more now, and things are actually getting better.
Posted 7/14/2014 9:28 AM (GMT 0)
Sorry only seen this now. My next doctors appointment I'm going to demand a reason to why I'm bleeding and I get dismissed as usual I will let them know I will be changing doctor.
My diet is good I am very health conscious I exercise regularly and eat well. Many doctors have gone through my diet with me and have ruled it off and not being diet related. Things like dairy would set me off a bit so I completely avoid dairy. I would consciously eat a lot of fiber to avoid being constipated. The only bad ha bit would be I would have a can of diet coke maybe twice a week but I have recently stopped that as I find it makes me very bloated.
Posted 7/14/2014 3:35 PM (GMT 0)
Your DR will probably say that the blood is from hemmorhoids.

What does it mean when you say your bowel looked like it had measles on your last scope?
Posted 7/14/2014 3:47 PM (GMT 0)
But The bleeding should have stopped since I got rid of them and never did. At present I have no hemmorroids yet I'm bleeding

That's my point I was told that it looked like the measles but shouldn't be anything to worry about? Surely that's something to worry about?
When I mentioned it to the last specialist I went to he just dismissed it also. To be honestly I feel like they don't know what is wrong and dismiss me when I question them about it.
Posted 7/14/2014 5:41 PM (GMT 0)
did they show you pictures? What do you think it means to "look like measles?"
Posted 7/14/2014 7:33 PM (GMT 0)
Nope they didn't show my anything. I was just awake from an anesethic and Sleepy. No I wouldn't no what it means??
When I went for my removal of my hemmorroids I was told to sit in the waiting room and hold my file just before I went under the sugery. I had a quick look at my file and they had a picture if it with just dots all over it. No notes attached?? I have no idea what any of it means. I just keep getting dismissed.
Posted 7/14/2014 8:37 PM (GMT 0)
OK. If someone tells you something and you don't understand what they mean, you need to ask them to explain it. From rereading your first post, you are the one who came up with the measles description.

Since you were able to see your chart once, I hope you can get another look at it. You should be able to get a copy for yourself. If the biopsy results were normal then there is really nothing more to say about the scope. Since you can't really tell from looking at a picture what's normal or not (you are not trained) you will need to see the words written in the pathology report and the notes the doctor made after the scope.
Posted 7/14/2014 9:55 PM (GMT 0)
Actually no it wasn't me who 'came up' with the description it was a trained doctor and as I have mentioned I have asked many times to get a answer of 'it's fine' I'm not assuming it coming up with anything.
This is what I have been told.
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