Posted 4/24/2015 11:00 PM (GMT 0)
I had been having chronic infections and needed to be Flagyl & Cipro regimen 10 times in 2 years. The diverticulitis only showed up on 2 of the 6 CT scans and my GI and 2 colorectal surgeons seemingly misdiagnosed me with severe IBS and after 2 years of hell, I was finally referred to a surgeon who took my case and had to keep me on antibiotics the 90 day waiting period before surgery. He took about a foot of colon with a lower anterior resection which he performed with the DaVinci robotic technique. I left the hospital in 2 days and had thought the worst was behind me. He assured me that I should not have further issues. His surgical abilities were wonderful.
I was beyond optimistic as I had far less pain and very minimal GI symptoms the 1st nine weeks or so. I had no diet restrictions but choose to remain gluten free as I think I have a sensitivity based on how I feel after having glutenfor. I take Florastor probiotic, aloe juice and magnesium citrate at bedtime. I take a fiber supplement every other day as I have never had constipation issues and eat a very high fiber diet. Ironically it would seem as if I had dueing banjos in my gut. The healthier I eat, the more GI issue I would get. No artificial sweeteners, only orqanic, cage free, etc.
This past week was 16 weeks post op. I had been feeling a bit lousy and had a blood draw which showed an elevated white blood count of 12.6 The surgeon who did not think I ever had IBS that warranted a new GI, had a CT scan ordered. I am waiting for the results, but they told me over the phone that there is not active diverticultis on the scan.
I am wondereing if I have smoldering diver again, and it is not showing up. I wonder if I am very inflammed which caused the infection and perhaps an anti-inflammatory such as Lialda would help mitigate the symptoms. The surgeon had me on it the last month before surgery, but did not seem to keen to keep me on it.
I am out of my mind because the very thought of again having to live my life by the toilet, being destroyed by the antibiotics and having absolutely no quality of life is daunting.
Has ANYONE been through a resection and then had similar issues?
IBS & DD?
Any commentts at all would be most appreciated.
I am 49, a breast cancer survivor, had a TAH, BSO without incident. This diagnosis is simply killing me slowly. I feel lousy all the time.