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Posted 1/28/2008 5:24 PM (GMT 0)
I don't know if anyone experience this but I wake up in the middle of the night soaking wet from head to toe and freezing. not sure if its the lupus,meds, or both

Jessie 

Posted 1/28/2008 6:06 PM (GMT 0)
I had night sweats a lot at the beginning of my dx -- they still seem to come and go in patches - had a few again just last week. I think it's the lupus rather than the meds, but then there are those that argue for it being perimenopause -- I've been tested for that and it doesn't seem to be the case - night sweats on & off for almost 15 years and only just now turned 49.
Posted 1/28/2008 6:11 PM (GMT 0)
would you say its a flare?
Posted 1/28/2008 10:20 PM (GMT 0)
JesseieRose, like Lynnwood I had frequent night sweats when I first got sick and wasn't being treated properly for my illness. I would sweat so much my hair would be soaked. Once plaquenil got into my system, my night sweats decreased and I don't get them as often. I notice I sweat more in general, especially since I've been on prednisone, but I don't get night sweats too often anymore. It's possible you might be going into a flare - are any of your other symptoms getting worse? I can usually tell I'm heading into a flare if a lot of my symptoms start getting worse and it's hard for me to do even little everyday things. If I remember right, you also posted about being really fatigued, so you might be flaring. If things get too bad, call your doc - also remember to tell your doc about your night sweats on your next visit, especially if this is a new symptom. I hope you get some relief soon.
Posted 1/28/2008 10:38 PM (GMT 0)
JessieRose,
Did you recently start a new med (in my case it was Imuran). I had a VERY severe reaction to the Imuran -one of the symptoms was chills and sweats!
Take care. Hope you are feeling better!
Posted 1/28/2008 11:03 PM (GMT 0)
I am glad this question has been raised. I have NEVER had night sweats until a couple of nights ago... very weird. I am one of those that's always cold.... hmmmmm...... could have been because I was headed into a flare right before my monthly.... I have definitely added this to my list for my rheumy. confused

Jessie, I hope you figure out what's causing it and I will let you know what my rheumy says next Tuesday. Take care
Posted 1/29/2008 11:28 AM (GMT 0)

I usually have night sweats when im flaring but they come and go like everything thing else with lupus.

take care
tash32

Posted 1/29/2008 2:25 PM (GMT 0)
I had them frequently before dx. Less since I've been on meds. More when I'm flaring. Bad for long time after childbirth. I think they match my weak/ill times.
Posted 1/29/2008 6:12 PM (GMT 0)
Yep like most everyone here I got them before they got e on meds. I'd wake up with my hair drenched. I had a hysterectomy when I ws 26 i'm 50 now so I don't think it has anything to do 3with that. So i'd have to agree with Lynnwood it i probably more to do with the desease than the meds. As for a flare, I really couldn't eventake an aducated guess on tht one. Oh also I don't even have to be sleeping. I can be in a room with alot of people who are either comfortable or a little cool and I will have sweat pouring off my face. I feel silly somties because I wear my hair up in the winter time beause my hair would actually drip from the sweat in a room that's 50%. it's gotten better especially at night but I still have it a bit.
I hope you're gets better soon
hug
carol
Posted 1/29/2008 8:14 PM (GMT 0)
Hello everyone Yes I did just start the Imuran and Just had a increase last week so that could be also as I was reading someone said they get them right before the monthly and I just did that to so who knows I did see my doctor today and she said that it could be the meds or fevers and to keep a record. I have to increase my Predinsone again and now Im increasing the Imuran to 125mg as well so we will see how it goes. Im really starting to get really depressed all I want to do is lay in bed.. I really need to snap out of it....

Jessie
Posted 1/29/2008 8:56 PM (GMT 0)
I was on Imuran for about 18 months and it didn't seem to make any difference to night sweats. I guess it's like all lupus meds -- your mileage may vary!
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