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Posted 5/20/2008 7:57 PM (GMT 0)
Hi friends.  I joined this group about 7 months ago because I was so sick and was beginning to give up hope.  A few tests indicated that I might have lupus but was never given a positive diagnosis or meds. I found a new rhuemy and she was very thorough and gave me a positive diagnosis of lupus and started me on plaquenil.  I have taken 200 mg since Saturday to be increased to 400mg.  Up until today all was well but early this morning I got the chills and am completely wiped out and weak like when I got sick months ago.  I am wondering if this happened to anybody else.  I have a call into my doc. as I could not work and need to know is this normal and should I let my employer know. Also, thanks about talking about the shower.  I thought I was the only one who got exhausted from just showering.  I tried a hot tub and it almost killed me. 

Thanks again and its good to be back.

Posted 5/20/2008 9:16 PM (GMT 0)
Hi Dazed, So glad you found a rheumy you feel confidence in. It does sound like you either have a bug or you are going into a flare. The plaquenil takes several months to build in your system. So it will be a while before it really kicks in. Your doc was smart to start you on the 200 and then increase. This helps prevent tummy issues. I hope you will post and update us on the feedback your doctor gives you today/tomorrow. There is a post in "Lupus Resources" about Flare Care by Lynwood. You might be interested in reading that. Link in my signature. Blessings!
Posted 5/20/2008 10:08 PM (GMT 0)

Rosie, thanks so much for the reply.  You are there to help someone out and it is comforting.  This site is great.  i will keep you updated.

Joanne

Posted 5/21/2008 12:28 AM (GMT 0)
Hi Joanne, I am glad you finally have a definite dx but sorry it's lupus. I know it's a relief in a way but no one wants to be sick... you know what I'm trying to say confused ((((hugs))))

I also think it was a good move to start Plaq slowly, it can sometimes cause GI issues if you start off on the full dose. When I started on mine I took 1/2 tab every other day and could tell a difference in my fatigue levels after just a couple of weeks. Rosie is right it can take up to months to feel the full effects of it. If you still feel bad tomorrow I would call the doc and let them know. Hang in there and take care.
Posted 5/21/2008 1:19 AM (GMT 0)
Until the plaq has a chance to really help you be kind to yourself. Get lots of rest-sleep extra if you can. Do some gentle exersize if you can and eat healthy (if you can-if your having trouble eating during a flare than just eat what sounds good). I hope the plaq helps you and you feel better soon.
Sj
Posted 5/21/2008 4:02 PM (GMT 0)
Hi all. Thanks for all the great advice and support. . I slept all day and night and it seemed to help. I am still tired and a little queezy but the fact that I am at work is a good thing. I love my job (although demanding - special ed teacher with alot of physical interaction)I have wondered if my future here is limited. I try not to think about it, and I have the attitude that until they kick me out, I will be here as long as possible and my body allows me to.

have a great day
Joanne
Posted 5/21/2008 5:18 PM (GMT 0)
HI Joanne,

 

I'm so glad you have some closure on the diagnosis end of things.  It's just comforting to know what it is isn't it... Now you can focus on getting better!

 

I understand your ****ies about your job and how long you will be able to do it.  I'm a freakin' wedding photographer....Of all the careers for me to get into, it's probably one of the most physically and mentally demanding things I could put myself through.  I always wonder when my last wedding will be.  I struggle with thinking about it too much.  It's always in the back of my mind. I've been doing this for 10 years now.  I started this career before my diagnosis came.  So it's been intresting to say the least.  Like you, I'm just going to keep booking these weddings and stay positive and look after myself the best I can.  Maybe I can get another 10 years out of this little old body!!

 

Have a good day today Joanne.  Talk with you soon!

 

Ginny

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