cellcept and blurry vision

Petpuppy,

My short term memory improved remarkably almost immediately when I went on cellcept. I've had no change in vision since I've been taking it. Sorry you're noticing adverse side effects. Have you mentioned either of these side effects to your pharmacist? How about your doctor? I don't think I'd ignore either of these new problems. Good luck.

I have not mentioned this to my neurologist b/c at my last appointment he told me he was considering stopping my taking cellcept because he read it hurt one patients immune system. Well, to be honest if I have to stop taking it I'm in a world of trouble b/c my MS flares were coming every 3 weeks so I don't to alert him just yet. I thought I'd go see an eye specialist first. I'm confused. very confused and frustrated

Sometimes it seems that all our medical decisions are between a rock and a hard place.   I looked up the cellcept and found that it is an immunosuppressment drug I think.  I would love to have a clear mind again, to remember things normally like I used to.

My prayers are with you Petpuppy.  I hope the medicine works out for you.  But like Lynnwood I would have to say that it might be a good idea to call your doctor on this one.  i overreact to things sometimes, and imagine in your shoes that I would be terrified.

Please keep us posted. I would be interested to know how the meds work out  for you.

Hester

When I went to the grid created by Lynnwood, i had a problem with my right eye.  I saw ghosts of lines beside the real lines, and part of the grid seemed to be missing in places.  So I do not know.  going to call the rheumy and tell him my findings, and the pain in my eyes due to bright sunlight, and let him decide to a degree.  Ultimately the decision is mine to make, not his.  but I am thinking he will probably take me off plaquenil.  Will face that road when and if I come to it.

For the moment it is really a good day in NC, and I would like to hold onto it.  but if it means losing what little eyesight I have left in my right eye, I won't do it.  Before starting plaquenil this time, the sickness was so overwhelming that I asked for lupus to be started again.  Now I may have to request that it be taken away.

one bump in the road however, one day at a time.  who knows? Not me.  who knows if this  really isn't a lesson teacher in some other bigger spiritual path in life's journey.  I will call the doctor, and stop worrying about it until the doctor calls me back.  and enjoy this really good day relatively speaking.

Hester

I started CellCept because my speech was a mess- stuttering, slurring, and unable to find words. So far CellCept has made a marked improvement in my cognitive function.

With what you have shared with us above, lets me know that I have nothing to complain about.  People just do not know.  Sometimes I think they do not want to know about Lupus.  Hard to be empathetic if one has no idea of what all Lupus can do.

I am glad that cellcept is working for you.  It must have been extremely difficult to keep one foot in front of the other after Lupus made you do the things above.  did they think it was a stroke, or did they know all along that it was lupus?  Really hard to do such a thing I imagine.  I feel humbled by your experience Donna.  I would be at my wits end if it happened to me.  How did you find the strength to keep moving in a forward path?  One foot in front of the other?

Hester

If you take cellecpt, you should also be drinking a lot of water so that yopur kidneys can keep up with the drug. I took it for about 9 months but the Neurologist took me off of it because he didn't notice any difference. I then had to go to Chicago to Rush Prezbeterian to get a treatement of Cytoxin, which did wonders for me. Since then, I have had 5 treatments of Tysabri and am now waiting once again to go back on Cytoxin Treatments. My point here is, drink plenty of water so that you don't do any damage to your kidneys. It's very important!