thanks Laura for that. Way, way beyond what I can afford I am afraid.
I wouldnt be insured either from Ireland to go there, so it would have to be out of my own pocket and I am single and have hardly ever really worked cos of my circumstances.
Please, please tell me....its a weird question...how ILL can you feel with as I was told I had, mild sjogrens.
I feel I am getting sicker and sicker. I cannot believe that since my collapse in 05 that it was just sjogrens.
More and more i think its Lupus with CNS involvement.
I feel shattered tired, now I am hardly able to do a thing athough I do push it but in past two weeks just sleeping a lot and lying down.
If the mepacrine works will it make a huge difference, I am unable to take plaquenil cos of rubella eye damage.
I feel so ill I feel I am dying.
No blood work has indicated that, but you have just got to look at me and see that I am near dead on my feet and the patronising looks from strangers seem to say the same with the sympathetic weak smile.
I really am frightened.
second week of the mepacrine.
xxAnn