Does anyone take B6 for neuropathy/nerves?

Since I have diabetes and endocrine problems, my risk is really high so they prescribed 50mg of B6.

The neuropathy and nerve problems, including brain, on this drug have been severe for me because of my bad liver and other problems. I couldnt type for long spells, really numb and mental issues like panic and short term memory problems.

I recently got 100mgs since I couldn't get 50s and a lot of it went away.

Now, I wonder if they know so well that B6 works (and it clearly clearly does from my experience--could not go without it), why don't they try it on us plain neuropathy patients instead of harder meds like lyrica, neurontin and the rest. My RLS is so much better and I'm much more normal taking it.

The B6 bottle says it protects the nervous system. Now I know the FDA doesn't approve that stuff but it is standard protocol for anyone taking INH so there must be some real medical evidence and merit for taking it. I know from experience that even after I quit taking INH I will continue on the B6 100mg. It seems such a harmless thing I can do to protect my nervous system, it makes me mad it wasn't offered before.

Has anyone had B6 recommended to prevent nerve damage? Some say B12, but that has not workedfor me and gives me bad side effects, but the B6 works with no side effects.

Just wondered and thought this mght be helpful and something to discuss with docs since it makes such a dramatic positive effect, stronger than any prescription nerve med I've taken.

Marji said...
I know from experience that even after I quit taking INH I will continue on the B6 100mg. It seems such a harmless thing I can do to protect my nervous system

A word of caution - when you finish your INH regime, I would suggest asking your doctor to test your B6 level. Vitamin B6 can cause problems if a person has too much in their system. B6 toxicity can cause neuropathy and other nerve disturbances. My B6 and B 12 levels were tested during the search for a cause of my peripheral neuropathy. My B6 was a little high and I was told to not take any supplements and watch foods supplemented with B6. In addition my B12 was low and now I take 1000mcg sublingually every day.

http://www.merck.com/mmpe/sec01/ch004/ch004h.html

It was so interesting to read about your experience with B6.

Completely by accident my husband and I recently had a similar unexpected experience - but in our case it was after taking P5P which is a safer way to take B6.

It seems there are risks if one takes a lot of B6 for a long time - but not with P5P.

If you do some googling you will find the info.

Thanks a lot for sharing:)))

Yannic

B vitamins

I have recently started taker

One A Day vitamins for Women

They have all the B vitamins that I have been told help the neuropathy and poain from it.

Hopefully it will help as I more or less have constant pain in my feet.

DC1946

In my case, I got tested with a really high end high sensitivity test for gluten/celiac and don't have it.  I do have metabolic syndrome and glycogen storage disease marked by hyperinsulinemia and severe steatohepatitis, which is finally beginning to be investigated and taken seriously due to links with liver cancer and other diseases.  Metabolic problems can be very serious. In my case, due in part to heredity, my liver does not metabolize glucose or carbs properly and does not burn fat well. Eating a low fat diet causes me to store more fat since that is the body's response to fat starvation.  I must eat a moderate to high fat diet, almost like the ketogenic diet, in order to lose weight, and must avoid as much carbs and sugars of all kinds as I can. Many diabetics have the same problem, where it is the liver, not the pancreas, causing issues.  Eventually, the increased demand for insulin will send me into type two diabetes full-blown because the pancreas will just burn out. I take metformin, which helps the liver to deal with sugars better and follow a special diet.

Diabetics are beginning to take issue with the national diabetes foundation's recommendation of a "heart healthy" diet, as it contains lots of carbs and little fat, which causes those of us with fatty liver, once called "diabetic liver", to get much worse.  I was on a very low and low fat diet for many years after the onset of my fatty liver as they thought it was a good thing, and even put on the drug now called Alli, all of which caused significant worsening of my liver disease to the point that I'm one step from end stage liver disease. I have stopped the progression of my liver disease through Metformin given to me by my hepatologist, and an Atkins type diet with moderate fat intake and significant protein, etc.

So one diet might be okay for one, and very detrimental to another.