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Posted 6/14/2009 6:03 AM (GMT 0)

Hi Everyone,

I am have the strangest thing, my tongue is so sore and covered in red dots/spots! It hurts so bad, it burns and stings constantly and of course worse if I try to eat or drink  mad   I have garged/swished with baking sode and warm water, but it has not helped at all.

Has anyone experienced this? If so, what have you done to relieve the pain?

I guess I will call one of my docs on Monday, but in the meantime, I seriously don't want to eat or drink anything because it hurts so bad.

Any advice you have is appreciated!
Hugs,
Melissa

Posted 6/14/2009 4:00 PM (GMT 0)
Melissa,

That happens to me from time to time and it's miserable. Popsicles can be soothing but I don't know what makes them go away. The strange thing is that my last two rheumys tell me that mouth sores (I know you're not talking about mouth sores here, but it seems to be related) in lupus are not painful. I frequently have painful sores and others that don't hurt, but just aggravate me.

Let us know what your doctor has to say!

Hope it gets better real soon.

Pat
Posted 6/14/2009 5:56 PM (GMT 0)
"Mouth sores in lupus are not painful" --- I'm sorry, but unless those drs have lupus, I maintain a healthy level of skepticism!
Posted 6/14/2009 6:26 PM (GMT 0)
I find that sometimes the mouth sores are really painful, especially just coming on, and other times not so much.  I do think the sores on the tongue are more painful and harder to ignore.  Someone told me the tongue soreness could be related to yeast....anybody have comments on that?  I know that walnuts and high acid foods can trigger problems for me.

 

Sorry - don't know why this font is so large - can't seem to change it.

Lucy

Posted 6/29/2009 9:03 PM (GMT 0)
Hi,
There are two common causes of sore tongue with red dots.

The first is excessive consumption of citrus fruits, especially pineapple.

The second is excessive consumption, usually unwittingly, of MSG. Excessive quantities of MSG are used at most restaurants so if you eat out beware and also in processed food. If you avoid MSG eventually your sore tongue will go away and if you continue to avoid MSG it won’t come back. Read all ingredient labels carefully and look at the sodium content listed in the nutritional section.

Take care,

Logan
Posted 6/29/2009 9:58 PM (GMT 0)

Hmmmm....interesting.  I hadn't realized the MSG could impact the tongue - isn't MSG a kind of yeast?  I try to avoid it when eating out or in processed food, but - you almost need to be a chemist because it has many aliases.   My favorite dessert salad contains cherry jello, pineapple, apples, fresh cranberries, celery and walnuts - I still eat it once a year or so - and it never fails to produce pain afterward - somewhat lessened by the addition of real whipped cream tongue

I think the mouth ulcers on the palate, inside the cheeks, gums, etc. are of a different sort - and may be more directly linked to lupus.

Thanks for the input Robert - and welcome!

Lucy

Posted 7/3/2009 7:26 PM (GMT 0)
It could be a variety of things.... from my experience..

1) Too much citrus
2) Allergic reaction to another food
3) Allergic reaction to meds
4) Yeast/Thrush (white bumps on back of tongue for this one?)

or this one was my major factor... I don't get it anymore because I eat better and take Vitamin D..

My tongue would get big red "patches" where it looked like I had "lost" a layer of skin on my tongue! Came on fast, hurt like hell, and made eating/drinking suck. It is called "Geographic Tongue" and it is linked to nutrition deficiency, more common with people with Diabetes.

You have Sjogrens, so it could also be associated with that. I would take a pic for your next visit.. If you have a web cam on your computer/laptop, you could always save it in a file?

good luck
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