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Welcome to Mary Ester!

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Lupus
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Posted 7/21/2009 4:51 AM (GMT 0)
I hope this is alright, but I wanted to make sure that Mary Ester had a welcome.

Here is her post:

"hi this is my first time doing this so I dont know if Im doing it right or not... my question is this I have been disnosed with mctd for a little over a year and my dr has not found a medication that will help releave some pain. I have pain constantly in both my hands to the tips of my fingers .. My toes always are hurting, and I have shoulder and neck pain. I feel weak all the time as if I am about to catch a cold or something. Im acky and sore all the time. Im constantly have rashes that swell up on my face, arms , back, and now I have sores on my leg that appears to be healed or scab over but are painful and sore to touch, I have the butterfly rash on face and Im haveing hair loss isssues... My dr wants me to chem- therpy ... Is this normal for anyone with mctd?"

Welcome Mary Ester - I moved this to it's own topic so more people could see it and respond.
It sounds like you might want to make an appointment with your doctor to discuss the pain issue. I don't have mctd so I am not sure what the treatments are, but it is autoimmune so I am not surprised that the symptoms are similar to lupus.

This is a wonderful group of people and I am sure that someone will be along to answer you, soon. Welcome!
Posted 7/21/2009 5:31 AM (GMT 0)

Hi Mary - Just want to welcome you also.  I have UCTD - and am familiar with the pain and fatigue issues, and surely relate to your description of feeling weak, achey and sore, like you're coming down with a cold or the flu.  I hope you are staying out of the sun and using sun block all the time! 

Like Fran said, probably a good idea to check in with your doctor about feeling so bad.  There are others on here with MCTD - I'm sure they'll be along to help.  Glad you found this forum - it's a great place to ask questions and feel understood.

Lucy

Posted 7/21/2009 6:31 PM (GMT 0)
Hi Mary,

 

MCTD is treated the same way Lupus is.  Chemotherapy drugs are common treatments.  Do you have any organ involvement?  You'll probably find that once proper medication is started your pain will subside quite a bit.  Is the relationship with your doctors good?

 

Nice to have you here, and let us know if you have any questions!

 

Blessings,

Ginny

Posted 7/22/2009 8:42 PM (GMT 0)

Hi Mary ,

                 Hope you feel beter soon , are u on any meds , some can cause hair to fall out , I find taking folic acid helps a whole lot , stopped my hair from falling out , I have a lot of the same issues as u. Do u have a rumey ? If u do he should be getting u started on the right meds to help make u feel alot beter, but if you are anything like me and most of us , you will still have flares , Well take care and hope you feel beter .

                                                    Crystal

Posted 7/23/2009 3:01 AM (GMT 0)
Just wanted to say Welcome to the group! You'll love this little family of lupies! I'm sure you'll get some good information! Judy
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