can any one help (new member)

In the 80s, I had an ana in the 600 combined with Reynauds. But my internist said it was some sort of false positive since I didn't have any symptoms of lupus. I went through a lot of strange symptom and finally got a Dx of fibromyalgia. OK fine- then my ana went back down to normal, RA negative- so all doctors are content. But I am realizing now that what I had was some sort of initial symptoms. For example, when a person first gets oral herpes - it is a red rash all over the mouth, but later, they just get a sore here and there. The same thing with chicken pox later showing as shingles. The same disease can change into different things as it moves along.
For me, somebody finally put my psoriasis together with all my joint pain and I got a proper diagnosis of psoriatic arthritis. This is also an auto immune disease. Diagnosing took 20 yrs.
My guess is you do have a problem starting with your immune system. You are in the initial phase. It is probably too early to tell what you are going to end up with. You may even go into remission further complicating the whole thing.
Foggy head goes along with migraines- which may not even be related to the ana problem.
If nobody ever figures out what you have that is probably the best diagnosis there is- because it means you don't have really bad- deadly - problems. You might be miserable, but just putting you on steriods or the new bio-meds to hold down your immune system can be worse. If you stop your immune system from working, it may not fight off cancer. This is a very tricky area.
I wish I could tell you some magic thing to do- or say "Don't worry about it"- I can't. If you are having a good day, go try and enjoy yourself. Don't stress over every little symptom, or worry about what caused all this- slip in some happiness and wait and see.

Hi wees, I also wanted to add my welcome. I'm sorry you are going through this. The whole thing can be very overwhelming, especially when you do not have a diagnosis. Sometimes it can take a while to get the right diagnosis. Like Ginny said, it's really important to keep track of your symptoms and also take pictures of your red cheeks or any rashes to show your doc. Hang in there. This is a great forum and you are among peoplw who understand what you are going through.

Hello Wees,

 

Oh yes, heart flutters or palpitations are very common.  It's what put me in the hospital to get my diagnosis actually!  It's called Libman Sach's Endocarditis.  Inflammation of the mitral valve.  The valve is inflammed and doesn't close properly which allows blood to seep back into the other heart chamber.  Once the inflammation is treated, the valve will work just fine.  But that's likely what you're feeling.

 

Definitely tell your doctor about the heart flutters. Soon.  No need to live with that happening longer than necessary.  Mention Libman Sach's as well.  You might have just hit on the symptom that will get your doctors really moving on this!

 

Keep me posted!

Hi Wees,

 

It's not a life or death situation, but you should contact your doctor today or tomorrow and get in to see them this week. 

 

If you start getting any shortness of breath, or if the flutters start to get really strong or don't stop, I would head over to ER.  That way you can be looked at right away.  No waiting to see your doctor.  But I think once your doc knows you're having this you'll get an appointment right away.

 

You'll be okay.  Don't panic.  Just tell your doctor, they'll guide you from there. 

 

Blessings,

Ginny

Hi Wees,

 

Wow, that's still a month away.  Keep an eye on it and if it gets worse go to the ER.  That way you'll get seen immediately.  I know what it's like to be told it's all in your head..... I got that too for a long time.  Then the heart stuff started and I made them eat their words.... It's frustrating as heck.  Listen to your instincts Wees.  If you think you need to go to the ER, then you should go. 

 

Blessings,

Ginny