Feeling pretty bummed...

I'm feeling pretty depressed lately mostly due to having to deal with side effects from Lupus. I've had to leave early multiple times from work, and had to take the past Friday off due to a shoulder injury that Lupus caused... and while some people from work are supportive and understanding, it's still hurtful to hear other people make comments like "She's just being a baby" or "Wow her pain tolerance must be really low". It makes me feel like giving up, though I know I shouldn't. I'm very frustrated and am doing what I can at work, and in life in general. I think one of the side effects I dislike the most is the constant fatigue. It's so hard to get out of bed and face each day... is there anything someone can recommend to help deal with that other than loads of caffeine?

Thanks,
Misty

stay away from caffeine, it really does a job on ur adrenals, which u need really badly now.........when i use to use caffeine, it got so it put me in the dirt for a week or more after the fact..........it got really bad, till i figured out my adrenals just couldn't handle it anymore..........

i don't know what kind of steroid u r taking for the lupus, but i take hydrocortisone, prednisone was awful for me.........i know, b 4 i was Dx, i was being treated for adrenal fatigue & was being given the hydrocortisone, but not enough.........& i was always so tired........it was so awful........after the Dx, the dr increased the hydrocortisone..........it has made a big difference.........

i am still tired & sometimes it gets bad, but i have the ability to take more of it, if i need it........i take it & things r better in a short while........

maybe u need more of whatever u use for the immune suppression of the lupus...........

i don't know how anyone works a job with this horrible disease........i've been dealing with it for 8-1/2yrs & there is no way i could work a job.........i would get fired after they realized i couldn't b counted on.........there r some days when getting out of bed is more than i can do.........

i have a wonderful husband who takes care of me, thank god for him.........

Sorry Dinosaur, I didn't answer your question.....probably because I don't have an answer for you. I'm getting closer and closer to having to quit my own job(s). :(

A sleep aid might not be a sleeping pill. It all depends on the detailed history your doctor takes. For me, a medication normally used as a mild anti-depressant happens to work great to help me sleep without any hangover or other side effects. Medications that are 'addictive' in nature are not as prevalent as you might think, and expressing your concerns with your doctor can help you together choose the right option, whether it be using an over-the-counter solution or changing your medication every few months.

Whatever you try, remember to let your doctors know *everything* you put into your body - it is easy to inadvertently use something that might interfere with some trial & error your dr is checking out for you.

I was wondering if anyone has tried those memory foam pads to add on top of the mattress? I've been considering buying one. I read a lot of reviews from one from Walmart and it got a lot of great reviews, but a few naysayers said it retained too much heat and made them sweat. I was hoping maybe I would get a better night's sleep with a little relief on my joints?

I would suggest buying a pillow or some other small sample of the material to test before committing to the larger purchase of one for the whole bed.

I have friends who love theirs and I tried it while house sitting --- I *hated* it!