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anyone deal with dizziness/feeling off balance?

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Posted 10/24/2007 12:07 AM (GMT 0)
Hi Ginny:

I was thinking about you today and was wondering hows your balance doing? Has it gotten better? Are you feeling any better? I just wanted you to know I'm thinking about you and praying that you're feeling better.

Hugs,
Barbara
Posted 10/24/2007 12:57 AM (GMT 0)
Hi Staceymommy,

 

Here is a link that has some good info regarding APS (Hughes).  I wish the medical community would stop calling it Hughes Syndrome when this antibody is present in those of us with lupus. I think it creates more confusion when it's being called two different names!  I hope you got some relief when that hematoma was drained.  That just sounds awful.  Let me know if you need any more info about APS.  Your rheumy should be very knowledgeable about it. http://www.medicinenet.com/antiphospholipid_syndrome/article.htm

Hi Mom7,

Thank you for your input on the dizzies!  Yes, I agree that during my flare ups, my balance is the craps.  I'm through my flare now and tapering back down on the prednisone.  I haven't had any balance issues for about 2 weeks now.  So that really confirmed to me that my lupus is the culprit.  Thanks for the support!

Hi Barbara!

Yes, it is much better now.  Pretty much gone! I just explained to Mom7 above that it was from my lupus flare.  Sometimes though, if I'm on too much prednisone I'll notice a balance issue too.  Hard to differentiate sometimes isn't it.  How are you doing? I want you to know that you are in my thoughts and prayers too.  We gotta stick together through this.  Love ya!

 

Ginny

Oh, I posted to all three of you in one go because the "spam filter" makes me wait about 5 minutes between each post!  S L O W!

 

Posted 10/24/2007 2:49 AM (GMT 0)
Hi ginny, if it is persistent I would get your electrolytes checked, low sodium due to several types of medicine can cause that problem and it is a side effect of many drugs anyway. When my thyroid medicine is too high, I get dizzy, when it is too low I get dizzy. When my bp is high I get dizzy, when it is low I get dizzy. Hope you can find the cause of the dizziness and fix it.
Posted 10/24/2007 7:09 AM (GMT 0)
Hi Ginny,

Yes I got instant relief. When I woke up from surgery they asked me if I needed anything and I said no! I felt like I was in heaven cuz it was in an awkward spot so I couldn't walk , pee, or sit. But after that I felt great! And I know what you mean by calling it a bunch of diff names Each of my docs calls it smething else ie. one it's anticardiolipin another it's antiphospholipid and another it's hughes. It gets annoying.
Posted 6/21/2010 3:37 PM (GMT 0)
Hi to all and hoping anyone/everyone who reads this is having a truly great day...

I found this subject when I did a search -- and thought I would reply. I know that there are stresses in this life on TOP of the stresses of the illness itself, but today was my first experience with actually getting out of bed and feeling very odd, out of balance, and my hole body seemed to lean to the left in walking or doing normal tasks. Now, just so ya'll know -- my father was diagnosed with pancreatic cancer and died May 14th 2010. It was a difficult and loving experience, but I have also dropped almost 30 pounds from diagnosis to his death. I also was blessed so so so much that his last morning, when it was evident, I got to walk him through his transisition from this life thru. I have had so many things go wrong now -- and today's incident has me frightened to be honest. I think the 'pity party' I've been having missing him soooo much; trying to sleep, trying to eat, trying to get the 'me' back that was in charge and focused on work, and taking care of my family financially as well as emotionally -- maybe its all part of the stress?

Doctor's are monitoring me closely -- of course. But like I said, today, I'm tilting left and crying cuz I miss my dad and crying cuz I'm scared too.

Just wanted to share with someone -- anyone -- and I wish all of you a really beautiful day --
Live, Love, Laugh.
Patty
Posted 10/31/2010 8:17 PM (GMT 0)
Hello, I am new to this forum and found interest reading about the dizzy/balance issue. I am experiencing the same symptom, and it is pretty bad on certain days.
The symptoms improve when I sit down or have my feet elevated, also seems to effect my diastolic blood pressure.
It is scary as you mentioned and my doctor thought it may be from a condition of thick blood syndrome. Today it is very bad and I can hardly function.

Nice to find this site...Thank you for reading my post.
Posted 11/1/2010 5:05 AM (GMT 0)
Hi all, boy can I relate, I had a dizzy spell one day and fell into the wall and fractured 2 of my toes, my docotr just shook his head and said if you were dizzy why were you walking, I told him I wasent dizzy and was on my way to the bathroom when it happened, heard my toes crack and darn near peed myself, was not a good day. I would hate to see what I would be like if I drank, cuz God knows I cant walk straight have the time sober.
Kat10
Posted 1/22/2013 2:31 AM (GMT 0)
Hi Ginny..  I get inner ear infections... totally different than just an ear infection... and have these exact symptoms... its usually if I get water in my left ear... but very dizzy and off balance.  My doctor just gives me an antibiotic and it does go away... so I know this is what it is...  Other doctors try to do other tests... but find that it truly is the inner ear..   Mention that and see if an antibiotic helps..   I get one maybe once a year...  have been told I should get a tube in my ear to help alleviate this fluid build up... just like little kids get.  :)  .  Joan 
Posted 1/22/2013 2:48 PM (GMT 0)
I am so glad I found this site! I thought I was going crazy with the leaning feeling - especially when I wake up. I also have bouts of feeling like I will faint. I almost sat down in the middle of wal-mart a few months ago because of it. The only thing I have been told is that it might be medication or my blood pressure, the inner ear issue is an interesting thought though.

Just another thang ;)
Posted 6/13/2013 7:30 AM (GMT 0)
Hi there

I have the same thing. I feel dizzy for no reason and went to my doctor. She describe the Histamed Co pills and it helps a bit.

I just feel dizzy, the room is not spinning and it feels terrible.

Kind regards
Andria
Posted 2/18/2014 9:54 PM (GMT 0)
Wow, I have been searching for this topic. I have had this for years now, but just diagnosed with lupus just about 1 year ago. I work for a neurologist who told me I was having migraines. I took migraine meds, just about every kind with no avail. I don't have vertigo (spinning) but the lightheadedness- off balance motion sick, weird pressur in head, with sensitivity to light and sound. Sounds just like a migraine right?.....Like I said though, no medication makes it go away. So my question is, is there any remedy for this symptom? What can I, we, do to prevent or treat this? Sometimes it lasts days sometimes weeks. It is so depressing.
Posted 2/19/2014 2:31 AM (GMT 0)
I have the vertigo with my flares.

I just ride mine out until I feel better.
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