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SED rate test? I don't understand! Any advise?

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Posted 9/25/2010 3:20 PM (GMT 0)
My Ana keeps going up.  It is still low level but the dr doesn't know why it keeps getting higher when my SED rate is only at 5.  He said it should be over 40.  He thinks MS, which is what my eye dr says.  I am so confused.  I am just plain tired of being sick and tired all the time.
Posted 9/27/2010 12:17 PM (GMT 0)
Hi jdrea. Sed rate is an indication of inflamation. I don't know why your sed rate isn't elevated. Try www.labtestsonline.org I hope this helps. Love, Butterflake
Posted 9/28/2010 1:09 AM (GMT 0)
jdrea, why does you doc think you have MS if you have a high ANA?? I don't get it? What are your symptoms? Have they done an MRI or scan of your head?
Posted 9/29/2010 10:04 PM (GMT 0)
Here are my symptoms; muscles spasms all over my body, optic nueritis for the last 11 months that has affected both eyes, pain and weakness in my legs, itchy skin, frequent urination (30 to 40 times a day), low vitamin D, problems with sun and heat, it affects my eyes and also makes me hurt and stiff all over and even makes me sick with headache and stomach ache. I have a lot of numbness from my mid abdomin to my knees, I don't sleep much, my mood swings swing, my skin hurts, I drop things all the time especially with my left hand, I stagger off and on. Now my blood work is also showing that my liver enzymes are up too much but my albumin levels are perfect higher that they have ever been. I am not sure, I may have forgotten some symptoms but those are the ones that bother me on a day to day basis. The dr said MCTD and then MS and then maybe both and the no it can't be MCTD because of my SED rate. I guess that I am going to have to start enjoying confusion. It is definately a part of life.
Posted 9/29/2010 10:04 PM (GMT 0)
thank you for the website butterflake I will check it out.
Posted 9/29/2010 10:08 PM (GMT 0)
Also involuntary twitching happens quite often, mainly at night but can happen. I am also always very tired how could I forget that one as I sit her yawning lol So if there are any ideas out there, that would be great, any info that I can research or share with my dr would be great.
Posted 9/29/2010 10:26 PM (GMT 0)
apparently I'm I'm also forgetful too, I did have an MRI on my head and spine right after I started having problems with my eyes. they were normal besides inflammation around my sinus area and all throughout my spine. No lesions noted. No sinus infection either, unknown inflammation. then on the 20th of Sept 2010 I was in a car accident and I almost immediately lost my sight in my left eye, it did recover somewhat over the next few hours and days, anyways the ER did a CT and saw inflammation in my sinus area again and again there wasn't any signs of a sinus infection and I had just finished a series of Amixocillin the week before for a middle ear infection. The dr did say some of my vertigo could be because of ears but then once I took the antibiotic the vertigo didn't really change much. I can't turn around or swing, or even turn my head very quickly without getting sick at my stomach and feeling like I am going to fall over. Sexual problems of course have been an issue for a long time. ovarian cysts and intestinal problems. So if you weren't confused before now you are. See confusion should be fun...... I am tired of being sick and tired. I know I could deal with anything if I just knew what it is that I am up against.
Posted 9/30/2010 2:05 PM (GMT 0)
Hi jdrea. Before being diagnosed with lupus, the docs thought I might have MS, then they thought is was psycosomatic (that went over real well). I have always had lots of central nervous system problems. Tremmors, jerking movements, numbness over various areas (it travels), vertigo, stuttering, weak legs (my legs give out from under me) and staggering. I fall so often I must use a cane or walker depending how unsteady I feel. I have colitis and was hospitalized for a partial bowel obstruction last month. I also had a car accident a couple of weeks ago because my spatial reasoning was off and I drove over a curb onto the sidewalk resulting in a flat tire and my truck out of alignment. I had sinus surgery last April which helped with my sinus infections, but not the staggering. I also have sexual problems (like many here on the forum). It seems like the only thing we don't share are your optic inflamation and frequent urination. I hope you're going to see a urologist for that. BTW optic inflamation is also a symptom of lupus.

I started taking the drug Cellcept almost 2 years ago and it has changed my life. It has drasticly reduced my tremmors, jerking movements, numbness, and stuttering. Anyway, I'm telling you all this to helps calm your fears. You're not alone and there are treatments. The downside is Cellcept is a chemo therapy drug so you must try lots of others before they use Cellcept. I'm sorry this is so long, but I just don't want you to think you're alone. Love, Butterflake

Posted 10/3/2010 6:23 PM (GMT 0)
Thank you so much butterflake.  I am just seeing the Rhuemtologist for the first time on Monday.  I am really hoping that he will know what direction I should go.  I have really enjoyed reading in the forum.  Not because I see so many suffering, but because I can relate to so much of what I read.  I do get good ideas and get another view on somethings that I am going through.  I wish there was a way that we could all feel better all the time.
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