I'm a newbie and not feeling so great!! Any advice would be greatly appreciated!

Well I was diagnosed with SLE about 6 months ago after my third spinal surgery didn't improve. Now it's believed the surgery wasn't necessary it was possibly a Lupus flare up that was making an already damaged area worse. I have about 3 okay days out of 7 now. Flare up's are often. Photosensitive as well. I'm taking Medrol 4mg 2 to 5 times a day. Depending. I take Vicodin for the pain, but very limited. I work in a high stess physical job and it seems to really be doing a number on me. Probably the reasons for all the flair ups!! I was also told I have Myositis in my neck area. The typical pains in joints and muscles. I get a butterfly rash often. I go in usually once a month for a shot to get the flare under control but it only works for so long. Wondering about a different medicine that will control things better without the crazy side effects. I also have Epilepsy so I have to somewhat be careful with what I take there. Thanks for any advice!!

Lupus, Spinal Stenosis, Epilepsy, Myositis

Medrol, Kepra, Ambien, Vicodin, Vitamin D

Thanks Amy! I was in the understanding that the Medrol was for the Lupus. Yes the shot is a form of prednisone. It gives a little boost and the Medrol gets it back to bearable. I'm not sure if my RA wants to give it a while and see if the Medrol can control it or what. From what I understand it is where you start at. Medrol is used to treat inflammation from Lupus or RA. I'm ready to try something else and start feeling better. I haven't had a day without pain from this in over a year. Some days are much worse and others are okay. Thanks for the advice. That was what I was looking for. Have a great Thanksgiving!!

Yes I am seeing a rhuematologist. I'm taking 4mg 2 to 6 times per day. Depending on the flareup. It only helps moderately. I will definitely have to ask about the Paquenil. Something needs to change to make things a little more bearable. I'm no stranger to pain with my spinal problems but this is getting stupid!! I appreciate your time and advice, it helps to read about other people going through similar problems. I have a great family but don't like to complain about my "issues". It sounds like you have your fair share of health issues. Thanks so much for sharing!!