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Does anyone else have Avascular Necrosis?

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Lupus
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Posted 10/22/2010 3:06 PM (GMT 0)
My doctor thinks that I have it and I have a MRI next week on my hips but I have questions about the symptoms. I have had severe leg pain over the past year it starts at my butt, and moved down my thighs to my calves and it seems to be deep in the tissue, if not under it. I used to have bad hip pain to where I couldnt even lay on my sides at night, but that went away when my leg pain started. Did you have leg pain with Avascular Necrosis? Where did you feel your hip pain?

My Roummy had done a x-ray on my hips back in Feb. and said that they uneven, I had a baby via c-section 2 1/2 yrs ago, so i was not suprised. Could the uneven hips possibly be from the Avascular Necrosis? Any advice please!!

Posted 10/23/2010 12:21 AM (GMT 0)
As you have probably read, avascular necrosis is the death of bone tissue. The causes are many. My doctors disagree as to whether the cause is my long untreated Crohn's of from the years of on/off prednisone usage to treat my asthma in the early 80s. I didn't take prednisone for 20 years after that. One day in 2002 I awoke in horrible pain. I couldn't even put weight on my legs because my upper thighs and hips hurt so bad. We had done a long hike the day before and I attributed the pain to overdoing it. This was a Friday morning and I thought laying in bed, taking naproxen would make me good to go by the next day. Saturday was just as bad. Finally could walk without help but still had bad, bad groin pain.

Hip problems are typically felt as pain in the groin. Pain on the side of the hip often is bursitis. Pain that starts at the top of the buttock and goes down thigh might be from the sacroiliac joints. That's where/how I feel my SI joints when they get inflamed.

An MRI is the best way to get to the root of this problem. Avascular necrosis doesn't usually stow on xray until the latter stages of the disease. If you are having a different inflammatory process going on the MRI will pick it up.

MY avascular necrosis [AVN] was found on MRI in 2004. I was having pain in the buttocks. My AVN is not active. I was sent for evaluation for a hip replacement in early 2005. At that time, my GI discovered that I had AS. He put me on Remicade, it cleared up the inflammation, no more pain, and I canceled my hip replacement. I have been walking around for a long time with 30% of the top of each femur DEAD. The doctors are amazed. But they don't hurt. My case is very unusual. Most people that develop AVN have lots of pain and need surgery to deal with AVN.

Try not to worry what the problem until they give you the report from the MRI. Unless you have used lots and lots of prednisone, drank excessive amounts of alcohol, or are a scuba diver, your risk for AVN is probably low.
Posted 1/7/2011 4:27 AM (GMT 0)
I have AVN in my hips, knees and ankles. I've had a AVN in my knees since 1999 and the docs just did arthroscopic surgery to remove the dead bone and debris from my knees. I was diagnosed with AVN in the hips and ankles in '07 and I haven't had any surgery for them yet. I have good day and bad days. Some days I feel no pain at all and can go grocery shopping without the motorized scooters at the store, and other times I would rather not get out of bed. It actually got a lot better while I was pregnant. But I wouldn't recommend that a option :)_ The docs say because of Lupus nephritis, I can't take NSAIDs and pain meds dont really work either. My AVN was caused from chronic prednisone use, atleast that's what the docs say.
Posted 11/25/2012 2:22 PM (GMT 0)
Hey there I just wondered if anybody with AVN has seen the success they are having with stem cell injections into the hip using your own stem cells? I'm looking into as I have stage II AVN and would like to figure out what I can do that is not a hip replacement. Thanks.
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