HealingWell
Search Close Search
☰

Rituxan infusions

Support Forums
>
Lupus
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 2/3/2011 9:54 PM (GMT 0)
Hello everyone, it's been a while since I've posted anything.  I have dermatomyositis and my rheumy wants me to get this new medication treatment, it's called Rituxan.  I want to know if anyone else has done it and if so, what the results were.  The side effects scare me.  Anyone have any info?  Help!
Posted 2/4/2011 3:35 AM (GMT 0)
well I had it a little over 2 years now and now I am showing signs of a flare... Although I can tell you I did have a bad reaction to the med.... All my platelets drop & WBC tanked.. so the admitted me & did a bunch of tests.. I also had a horrible rash...  But before I did the infusion of course I did all the research and it seemed very 50/50 for patients.. some had reactions & some were perfectly fine...  Over all I am glad I did it, even with the bad side effects..
Posted 2/4/2011 2:22 PM (GMT 0)
Thanks Robyn for your reply. I'm still not sure of what to do, but I'm leaning on not doing it, sounds too risky for me, although I don't like taking so much Prednisone (60 mg) and Imuran (100 mg). Hope you're doing well. Hang on in there.
Posted 2/4/2011 3:25 PM (GMT 0)
yeah no prob... right now my doctors are trying to figure if I need to go back & do more infusions... I cant stand taking prednisone... I feel like I have been on it for like 5 years straight.. YUCK! Its been a struggle & I sure you can agree...
✚ New Topic ✚ Reply