new

im new have sle discoid. been well except headaches and colds over christmas. I am asking because iam confussed brain fog dont help

what hapens usually in the first few years this being one. I have another question aswell when is the best time you can claim for benifits if entitled to anything only have child tax need to now job hours are changing soon will be a problem later on long days this illness wont help.

 

hi troll-my heart really goes out out to you.I have not yet been diagnosed with lupus..but everything is adding up and 2 of my docs say it is.but rhumy has to make the call.so stupid.I got sick 3 years ago,thought I was having a stroke.for almost a year I couldnt even think properly...was thinkin I was really going crzy-then I asked the doc to check my b12.long term low b12 can cause permanent brain damage as well as nerve damage.so I go get a needle every 2 weeks.Im taking vit d as well..and am on paquenil.I get really short of breath and a heavy chest like im havin a heart attack.Im hooked up at night to a machine to get sleep.its not pleasant but I do feel better the next day.have you been to a sleep clinic?today is not a good day-feel like Ive been up 3 days straight...cant think rite everything comes out jumbled.then my family laughs...which it does sound funny...but I know its not.I understand you bein grumpy,I can snap on a dime,but its cuz Im just spent,sometimes ya wonder if its all worth it,but it is.and ya sure lose friends,cuz ya cramp their lifestyle.my hubby wanted to go on vacation overseas,but Im really not up to it..so he left it at that.the sun is deadly.if you are out,coverup good,cuz it will send you into a tailspin.