Posted 4/4/2011 7:08 PM (GMT 0)
I have lupus, cryoglobulinemia, rhuematoid arthritis, and hep C along with their numerous symptoms. I was finally approved for disability compensation. Before I was approved, I was collecting unemployment compensation and looked for work because you have to to collect. I found a part time job 2 months before it ran out. I ended up getting a disability check in January for the month of December. Now I need to call SSDI and tell them I worked part time in December, but I'm afraid they'll take away my disability checks. I would have had no income at all in December if I hadn't worked. It was terribly hard to get through the day at work and my boss kept yelling at me because I couldn't do what they hired me to do. I also realized my memory issues were a huge problem. It wasn't as apparent when I wasn't working. When I told my boss I was approved for SSDI, she let me leave that day and she told me they were trying to figure out how to let me go without risking me suing them. After working each day (sometimes just for a couple hours), I'd end up exhausted and stay in bed until the next time I had to work, sometimes several days or a week later. I'm so afraid to report that I worked because I know I can't hold a job. I forget everything! I think I'll remember things but then have no recollection. I even missed work several times because I had no memory of being asked to come in even though my boss said she told me 3 times. She started writing everything down for me. I haven't been tested for cognitive dysfunction because I keep forgetting to tell the doctors about my memory issues. 8^O Does anyone know how I should handle this. I don't want to lose my house. It's the only security I have. Even with SSDI, my son had to move in with me because I don't bring in enough to pay my bills. Sorry if I sound like a cry baby. I just get so scared. I use to be strong and independent. That's not who I am any more. I'm trying to accept who I now am, including the fact that I see a bloated stranger in the mirror. Thanks!