Itchy scalp and hair loss

Welcome!! I have the itchy scalp and hair loss. I see a dermatologist for this condition and he prescribes something that I put on my scalp and the itching goes away after a week or so. (I would tell you what it is but I can't remember right now and can't find the bottle I had left) Anyway, I would recommend seeing a dermatologist to just see if there is something he/she can do to help. (my dermatologist is the one who found my Lupus to begin with) Good luck with your hair loss.

As far as your kids not understanding, or having a hard time with your disease, they will get it eventually. I know that it is hard not being able to do everything that you want to with your kids (I have 2 at home) but just know that you can only do your best and that the most important thing for your kids is for them to know that you love them.

LupusMomma

Thank u for ur replys, I will defiantly try the fish oils. I have seen a dermatologist, couple years back I almost lost all of my hair going through a very stressful time. He gave me injections in my scalp to help with hair regrowth, worked really well. But this last flare I'm going through it's happening again. Alot of new symptoms also, it's been going on for over 2 months now. I would luv to wake up one morning and feel good and have no pain. As I'm Sur all of you would luv the same thing. Thanks for Ur help.

Hi everyone,

just found this forum and thought you could help. i haven't been diagnosed with lupus but think i should ask for a test. i too have an incredibly itch scalp before losing three quarters of my hair (third time now). it all started with a pain in my chest, swollen deformed hands and feet, my achilles tendons were locked on for about six months and i couldn't even shuffle, i have hot flushes (but im on hrt), i lost two stone in weight, i have pleural effusion and now high sodium levels. I was initially diagnosed with fibromyalgia, then lymphoma (i had six lymph nodes removed from each armpit before they told me i haven't actually got it), now my diagnosis is rheumatoid arthritis!I take diclofenac, amitriptyline and sulfasalazine. HELP! Mog x

Thanks Joy
I am seeing my rhuemy next Tuesday and plan to do just that. Do you think I should ask for a referral to a dermatologist before I become totally bald!
Mog

Hello Mog

I had the same problem befor seeing a doctor. It was a long battle with all the symptoms and more. Very similar to your symptoms.  I think you should see a doctor and get a referral for a rheumy. At first, the visits can be discouraging but eventually you will get the result needed.

I'm a newly diagnosed Lupus patient and its taken years to get the diagnosis. I also was told I have fibromyalgia.  I was thinking at one point I was just getting old and out of shape :) Needless to say all the pain beginning with the scalp -down to the pain in my toes were all a result of the lupus flares.

Hey Mog,

I actually plan to post this where all us Lupus sufferers can view. Believe it or not, I was losing hair at an alarming rate. I had rather thick and long hair and within about 8 months I still have some length but its not nearing as thick. But, my television doctor actually said that eating a boiled egg a day will help with the hair loss(protein). Since I have been eating the egg daily, my hair actually has thickened and not so much shedding and loss. For shampooing my hair I use Nouritress. Some JCPenny Salons have it but I order off line. After 4 months of Nouritress and one egg a day, I can honestly say that my hair is glossy, silky, minimum shedding/loss and is getting thicker and growing.

I have had an enormous amount of trouble lately actually for years but I had a very traumatic surgery in June that was supposed to be super simple back to work in a week and that was to be that. Well.....it didn't happen that way. I suffered severe malnutrition due to being so ill before and the surgery became so major it didn't get any better after. I was in the hosp all together 22 days in June. However on top of all the other complications it seems to have created some sort of "flare" i have lost over 1/2 of my hair and at this rate I have about 1 no more than 2 months before I am bald. I have severe joint pain that started basically in my right hand but it now branchiing out to other joints. The fatigue is barely describable. That actually started over a year ago and I had to drink about 4 or 5 ...5 hour energy drinks a day to make it and they think that led to the major surg I just had that has ruined my life. I have lost my job and a whole host of other things. My Dr put me on Adderrall for daytime sleepiness and fogginess because I was falling asleep at traffic lights or in traffic or having to pull over to rest just to get home. Even my intestines felt tired. It was bizarre. The trauma of this surgery though has made my life a hell but due to financial ruins because we only thought I would be out of work a week and it is now 5 mths into it I went back to work 2 week ago but it is with an internist/cardiologist. He gave me a sample of Nuvigil and it has really helped with the fatigue. M rheum also just started me on Plaquenil and Pred on Tues so hopefully things for me will begin to change. I had trouble getting dr's to listen to me because some of the main symptoms were pain and that made them ignore me. I also worked for my PCP and she was and I do mean WAS my best friend and when I got sick she stopped talking to me. But when my mouth started having this absolutely bizarre freaky feeling I asked her to run an ANA and she rolled her eyes....yup you read it right....she rolled her eyes the ana came back 1:320..however the other panels came back negative but with me being 100% symptomatic and an ana that high she sent me to a rheum. He did more blood work and my vit d was bottomed out my calcium was low and my liver enzymes were elevated. He thought I had autoimmune hepatitis. Well I don't have the hepatitis and he said despite the lack of some blood tests being positive he is saying I have Lupus and starting the trmt. It hurts my feelings though when he says HE understands how I feel because HE is losing his hair too....and he thinks my hair is pretty.....it really hurts my feelings. I cry so hard everytime I wash my hair which is once a week, thank God itis dry as a bone too. I think he should know better. He is a man I am sure he would prefer to have hair but the impact is completely different. I don;t know sweetie good luck with your hair I am going to try your things, I am on Plaquenil, 50,000 IU 2 times weekly, I take a b12 inj weekly multi vitamin plus my meds. I also am a gastric bypass person but it was 9 years ago but I said that to say I only absorb about 60% of anything I take or eat. Good luck....