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Does this sound like Lupus?

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Posted 10/15/2011 7:26 PM (GMT 0)
Long term low white count, recent low platelet count, recent pos ANA 1:160 homogeneous, fatigue, sluggish immune system, don't get sick often but when I do it seems I don't have a strong immune response. If I get a fever which occasionally I do for no apparent reason it can be 100 and I feel bad. My temp usually runs low. Hypthyroid since 1993. Have had episodes of dizziness very infrequent but last winter it was so bad for 2 days it caused vomiting. Pain in hands to the point it's effecting function but x ray shows mild arthritis and very little calcium formation and joint damage. . Body stiffness. Memory problems. Raynauds for the last 3 winters increasingly getting worse. All other tests negative for immune function. Sedrate normal. I'm white female 54 but some days it seems this must be what it feels like to be 84.
Any info is greatly appreciated.
Vicki
Posted 10/15/2011 7:54 PM (GMT 0)
Hi,
See your dr and let them know what is going on. Some of that sounds like lupus. It is different for everyone. I had the spins for 6 weeks!!!! I was so sick. I am 41 and have been sick on and off in my life and not know what it was. This last flare was bad and I finally got some answers. My GP says is it lupus and we are treating it with Hydrxychoroquine, acupuncture, strict diet, supplements and change in my life style. The meds take a bit to work. I have been on them for a month and a half and last week was the first week that I was able to a full work week. I have inflamed small intestines and the worst fatigue I have ever experienced with bouts of vertigo. My sedrate is low so my dr thinks that it is a mild case of lupus. If this is mild, I really feel for others who have it worse.

I am going to the Mayo clinic next week with all my medical records and getting a second opinion.

It is a long road to diagnosis and it can be a long road back to a healthier self.
Posted 10/15/2011 7:58 PM (GMT 0)

Hi! Vicki,

Welcome and so glad you found us. It helped me alot to read old forum threads and make a list of questions for my family dr. When I got to a rheumatologist, I had had time to construct a time line of my symptoms, and get copies of all the abnormal tests I had ever had to plug into it. I actually typed it out and handed it to him. I read everything about autoimmune illness that I could find. I borrowed every book on lupus and APS the library could find for me. So many of us here never get a conclusive diagnosis. What's important is that you don't stop looking, and find a dr. who will help manage your symptoms. Don't give up and keep us posted.

Hugs, and good luck,

suetoo

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