So Frustrated !!!!!!!!!!

(((hugs)))
I've been testing negative for lupus for a year in my bloodwork. Not sure what your symptoms are but all of mine point to systematic lupus. I have had to be the greatest advocate in my sickness. I can't tell you how many Dr.'s have wished me luck and sent me on my way. As frustrating as it is, I just keep plugging along trying to find that right Dr.
It's taken me 18 months to get a diagnoses of lupus panniculitis. I'm scared as crap about it, but am happy to finally have a name, I think that was all I really needed.
Don't give up, keep at them. You'll find yourself a Dr. that will get it :)

She might be waiting to see if the medicine helps you or not and then diagnose you.
You said you're trying a new medicine and are beginning to feel better? Then maybe this is your answer?
Hang on until you see her again. See what she says in January after you've been on the medicine.

Honey I feel so badly for you I wish I could give you a big ole hug. I have been treated so crappy you wouldn't even believe it. I had a surgery in June that was to be really simple and it went way way different and with all the complications I almost died. A lot of it was due to doctors not listening. Anyway I have always had auto immune problems so I wasn't getting better and for some reason this seemed to make the doctors mad at me and I mean like irritated treat me like crap mad. I had some odd mouth fatigue pain symptoms going on and I had heard of Sjorgens so I asked for an ANA test....my darn dr roller her daggone eyes at me but she did it. It came back positive 1:320. She was a little shocked at that point because 4 mths into then I had lost 1/2 my hair I was getting sicker and had more symptoms, I used to work for my PCP and I know her she thinks everyone should work and it makes her mad when people dont and I know she was just ticked off. Anyway she knew she needed to get me to a rheumy immed. Now all the other tests he did came back negative for Lupus and autoimmune hepatitis but he said it is Lupus because ANA is so high and symptoms are 100% positive. Also I have a new internist/cardiologist and he said with all other tests and symptoms that are extensive it is Lupus and stop questioning it. It isn't all bloodwork! Be your own advocate! Don't be walked on they are not God despite their own designation for themselves and how THEY think you should feel let them no for certain how YOU DO FEEL despite how they think about it or not let them know the reality of the situation. Once again I apologize for what I NO you are going through it is a horrible feeling!

It sound like we all have the same physician. My physician is an Indian descent who speak very little english and has her assistant to do all of the writing for her. I have been in constant pain on a daily basis. Pain brings me to tears most times. I have taken Predisone and a non steroid and neither helps completely. Every joint in my body hurts constantly, even more so when pressure is applied to the ankle. My hands hurt and have even turned bluish color from time to time. My eyes burn profusely and are runny (looks as if I'm crying). I am super frustrated as well. I'm tender to the touch. I know I'm not crazy but ther rheumy make me feel like its all in my mind. The quack gave me an anitdepressant. I'm not depressed. I'm frustrated as hell that the physicians are treating me like this pain is mental. My past history consists of eight car accidents, twelve surgeries from open-heart, breast lumpectomy to colonoscopy. All of which I believe has something to do with the Lupus.

I was diagnosed as having Lupus by my pain management physician after she sent me to the Lab to have blood work. The Rheumy is the quack I'm referring to. TRIAL AND ERROR MY @#$$ (lol). I'm in pain and nothing is helping not even the physicians that are draining my insurance company. Is there anyone in the boat with me?